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  • Not MS, now considered sticky blood

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    Old 08-16-2007, 07:50 AM   #1
    MS for life
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    Not MS, now considered sticky blood

    Okay, it took two months to finalize my tests and throughout my neuro was gently preparing me for the MS verdict, gave me info on the interferon's to understand when I went to my appt. on Monday, gently told me we were catching it early and maybe my MRI spots would reverse, etc. In between I went to the hematologist and he explained that they found "sticky blood" with more very technical terms and he wanted me to start on a baby aspirin right away and I did not need to go back for a year. He was, however, very specific that if any of my doctors wanted to start me on Coumadin, they should go through him first. Evidently, my weight, BP, cholesterol, etc are all so great he feels the baby aspirin is all I need.

    Well, I go in Monday to the neuro all psyched to begin the drugs and he tells me that the "sticky blood" is probably what caused my brain MRI to have so many spots and he feels we were very lucky to catch it, since MS is so difficult to diagnose and he thinks I don't have MS. I was so speechless, there were many things I did not bring up. I did not ask specifically about my neck MRI, my echocardiogram, or my neck sonogram. He did comment on my nerve test (cannot remember the specific name, but when they poke you with all the needles) was great.

    I did ask if my hands and feet would quit falling asleep if my blood thinned (I have slight numbness also) and he said unfortunately not. He then put me on Neurontin (the generic form) at a pediatric dose of 100 mg three times a day (I only weight 110 pounds) and said to see if that helped. I've been on it a couple of days now and I'm not noticing much difference, other than I am sleeping a little better (but that may be due to not worrying about having MS).

    He did end our appt. by stating if I have ANY changes or odd symptoms to call him immediately, otherwise to come back in six months and we will see how things are going.

    My question, does this sound right? He is an MS Specialist, and I do really like him as he was very thorough. I've spent the last few days thanking God and, in a sense, celebrating not having to start the meds and with a new outlook on life. Should I still be concerned? And should I worry about having a stroke with the "sticky blood"? There was a litte on other threads about that, but not much. I did find, some of the symptoms mimic MS.

    Thanks for listening.

     
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    Old 08-16-2007, 08:20 AM   #2
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    Re: Not MS, now considered sticky blood

    Oh, gee. This sounds pretty strange to me. If your neuro was going to start you on MS drugs not because of "possible" MS but because you had an MRI to support an MS dx, I'm stumped. UNLESS somehow I missed that "sticky blood" can cause MS like lesions. Not saying it's not possible but I have never heard this before.

    If I were you, I'd start taking the baby aspirin and there are other supplements like fish oil that are not only helpful for MS, but also for blood thinning -- but talk to the hematologist before you add anything else. I'd also make sure your PCP gets copies of everything and know what's going on.

    The other thing I'd do is see another MS specialist for a second opinion. A doctor who is competently schooled in MS should be able to tell if the lesions you have are consistent with MS. This all sounds weird to me -- unless "sticky blood" can cause lesions that are characteristic of MS.

    Please keep us posted!

     
    Old 08-16-2007, 09:24 AM   #3
    Jill1221
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    Re: Not MS, now considered sticky blood

    Well, my first response is that you will have to change your screen name...maybe "Sticky Blood for Life" ?
    I know how you feel...not trusting the good news. I would get copies of all of my tests so you know those results that you didn't get. Give it a little time to digest all of this and then decide if you want to get a second opinion. I wouldn't even mention the sticky blood at first to a new doctor and see what they say. I agree with Bearygood that it seems that the neuro should be able to tell if your lesions are MS or not?
    Good luck to you and I hope the aspirin helps!

     
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