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??? about tysabri?????

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Old 11-06-2007, 05:24 AM   #1
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shaywood HB User
Red face ??? about tysabri?????

I am sure that there has been a lot of stuff posted on here about this, but I really need help. My doctor thinks that it is a good idea for me to start tysabri. I am on avonex now for two years and I am only 26 and have two little boys to take care of. My ms is getting worse like my cognitive thinking and incontinence. He says that i am too young and that my ms is getting worse and that I really need to think about this other drug. I am so scared, so I wanted some others that are on it to tell me all about it and their experience with it.

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Old 11-06-2007, 11:17 AM   #2
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Re: ??? about tysabri?????

Shaywood, Im not on Tysabri, but ive heard SO many good things about it. Have you searched on this forum for tysabri related posts? I know there are hundreds of them. Use the search engine at the top of the page, and search on Healthboards only....
Ive not heard of one person who isnt scared to start it, but Ive also not heard of one person who isnt glad they seems to take about 4-5 infusions for it to start kicking in, but the people who have posted previously have really seen a positive difference.
Good luck...keep us posted!
RRMS- dx 05

Old 11-13-2007, 11:19 AM   #3
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Re: ??? about tysabri?????

I have had 4 infusions of Tysabri. I feel like it is helping me in general. I just feel better and definitely start to drag the week before I get another infusion. I haven't had any real significant improvements yet but I am pretty new and am very hopeful. I have no bad side effects. I am really looking forward to my 6 month MRI. I am pretty sure I have had no new lesions.

Last edited by moore170; 11-13-2007 at 11:19 AM.

Old 11-14-2007, 01:52 AM   #4
glamour girl
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Re: ??? about tysabri?????

Hi Shaywood,
I'm also on Avonex. My nurse just called me up tonight, to touch base with me. She just told me here in Australia we just got approved to use the drug. Apparantly its got a 68% sucess rate compared to a vary of 35% injection use. I'm keen to learn more about it.
Get the infomation you need. I'm sure your scared, most of us are when trying something new. Personal chioce i'm sure. But i've read nothing but good reports on this drug too. Good luck.

Old 11-14-2007, 05:18 AM   #5
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Re: ??? about tysabri?????

Thanks for the hopefull words I think I am going to go for it I am afraid if I dont that I will get worse and then everyone will say see you should have done the tysabri now look and I want to be able to take care of my little boys.

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