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Old 11-25-2007, 01:17 PM   #1
Gagirl610
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Hot Hands

Hope everyone had a great thanksgiving. I need to know if anyone else has experienced this. The palms of my hands get beet red and they get really hot. It comes and goes throughout the day. I've only been diagnosed since Oct. so I figured you veterans could help me out. Thank you!!

 
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Old 11-25-2007, 03:10 PM   #2
tarapags1107
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Re: Hot Hands

Hey hun
My hands are always hot and warm to the touch. Sometimes they feel like their on fire and they get a "mottled" or speckled appearence to them. It makes me feel even more sick then I usually do because when I hold my fiance he feels so cold to me and I know that I used to feel normal and not febrile all the time. I notice the warmth of my hands in the winter alot more than the summer and I htink its because of the temp change. I have not yet been diagnosed with MS, but I am going to see an MS specialist sometime soon since I was referred to them by a neuro and hes pretty sure thats my problem. I get red hands on a daily basis especially when exposed to any heat/sun or just anxious. I feel like my symptoms are flairing up when it happens as well. I was hoping that when I get diagnosed that the meds (if I can take them) would help that "hot" feeling. Who knows, guess I'll wait and see.
Tara

 
Old 11-26-2007, 06:51 PM   #3
Gagirl610
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Re: Hot Hands

Thanks Tara for responding, I guess we are the only ones that have this going on. Take care

 
Old 11-26-2007, 07:07 PM   #4
MSNik
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Re: Hot Hands

Actually GaGirl, I have the opposite thing happening. My hands and feet are always white and COLD to the touch, even though Im the only one who thinks they are cold. My husband will tell me they are warm, when they are freeezing to me, but he'll admit that they look kind of pale or pasty! Go figure. Ive had my ciculatory system checked and everything comes back normal, so my doc writes this off as another "ms thing". Sometimes, I wonder! Ive been checked for everything from diabetes to thyroid issues, everything is fine...so I guess I have to accept his answer.
Ive heard of other people complaining of heat and redness though, youre not alone.
Hugs,
N
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Old 11-26-2007, 07:27 PM   #5
Gagirl610
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Re: Hot Hands

Thanks MSNik, When you start having certain symptoms - you wonder is it "MS" or is it something else. Also, I have decided I am going to start Rebif. I gave my enrollement form to my doctor today. I had a hard time deciding but I felt like Rebif would be a good choice for me. I hope side effects keep to a minimum. Honestly, I've been feeling so good that I'm scared to start the rebif and then feel bad from it. I know, I know I'm doing this to slow down or stop further progression. I have to think about the furture. Yada, yada.Well, Nikki I'll take any advice you have on the Rebif. Thanks so much!

 
Old 11-26-2007, 09:59 PM   #6
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Re: Hot Hands

Hi there. Oh my goodness, you know I can give you advice out the ying yang about Rebif...but I know youve read all my posts on it! First let me say congrats, its a huge step starting any med. I am a fan of Rebif, and I wont lie to you, the first 3 months, I thought about quitting it many times. The good news is the flu like symtoms only last 6-8 hours and you only do it 3 times a week...the bad news is they happen to almost everyone. Once again I get on my Aleve soapbox and tell you that once someone suggested to me that I use ALeve, instead of Tylenol for pre-shot medication, I found it to be a lifesaver....other people whom Ive passed it along to have also concurred that it has really helped. The reason is Aleve lasts 12 hours...so if you take it half an hour prior to your shot, you basically get alot more relief then a pain reliever that lasts only 4 hours....
You will have a nurse from MS Lifelines, the Rebif people, contact you and come to your home to teach you and anyone else you want to, how to do these shots..they teach you how to rotate them, give you a calendar so you can track things....youll start with the titration pack; which is basically a way to start slow and let the medicine build up in your system. The first two weeks, you probably wont have any side effects at all..the dosage is so low, then the second two weeks, you move up, side effects MIGHT start then, then in the second month you go to full dosage...it does take almost 6 full months for this drug (and Avonex too) to really start to work....I had an MRI at 6 months which showed absoltuely no progression (yippee) and then another one at one year, which showed that things were still good..so, for me, Rebif has been terrific! I did have one minor relapse about 4 months into it, which scared me...but it was minor and it was the last real relapse Ive had. I still have days where the MS fatigue kicks my butt...and days when my balance isnt great or my head isnt clear...but overall, I love this drug. Ill also admit that after about 3 months, I never had another side effect. I very rarely take any pre-shot Aleve anymore, only when I feel crappy that day overall and just want to ward off any unexpected aches and pains..but really, I travel all over the country and world with my sryinges and have absolutely no problem anymore with doing them..
When the time comes, and you have had your training, Ill be happy to answer any questions which come up...and you will have some. Just remember, its going to get easier and youre going to be glad you did this, as long as you can stick to giving it the full 3-6 months...the first 8 weeks are the hardest. Also get blood work done every 4 months or so, just to make absoutely sure that your blood levels are okay....Rebif is rarely associated with any problems, but some people whle they are adjusting to it, have spikes in their blood counts, so you want to watch them to make sure that everything is okay...Ive never had a problem. There are more people on Rebif than any other MS therapy drug- that has to tell you something!

Youre going to be fine...and it is terribly scary, I know. It wasnt that long ago that I wanted to curl up and wish the whole darned MS thing goodbye...but since that isnt an option, remember that you are doing this to take control of your disease and not let it control you! ITs a good thing. And, we are actually lucky that this drug exists for us...ten years ago, it didnt...and pretty soon, it will be available in a pill! There is hope.
Im proud of you for making the big leap into the world of shots....scary as it is, I do promise, if you dont give up, you will get past the intial scariness!
Hugs,
Nikki
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Old 11-28-2007, 12:18 PM   #7
scutiesnowflake
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Re: Hot Hands

yup!! hot hands and feet to were walking is to painful- sometimes famliy tells me the hands are frezzing , even thought I feel burn. we keep it "light" at my house - the hot hand joke " will you hold my pop ? to keep it cold?" I have two childern and the jokes help - there stress with my (not sure what to call it - guess cord scare)

 
Old 11-29-2007, 07:37 PM   #8
moore170
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Re: Hot Hands

Like Nikki my hands are always freezing and my feet too! My husband always accuses me of putting the freeze on him.
Candy

 
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