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  • MS and Chronic Hives on Copaxone

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    Old 02-02-2008, 06:43 PM   #1
    wtorrens
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    MS and Chronic Hives on Copaxone

    Hello,

    New to the boards. In desperate need of some help. I have had MS for 16 years. I was on Beta Seron for the first 15.5 years and about 6 months ago switched to Copaxone on the recommendation of my neuro due to some replapses. Long story short, I have been suffering from Chronic Hives for about six weeks. I am not talking hives at the injection site after taking the shot BUT hives covering 80 percent of my trunk, upper legs, arms, sometimes my head, scalp, eye lids...they travel. I called my neuro. He said no relation to the copaxone but discontinue use for six weeks. Did not want to even see me. Went to my primary care who treated me wth Beta Blockers and antihistimes, steroids, etc. I am now seeing an allergist who is doing scratch tests. I have found three very similiar postings on various web sites that were not recent and did not have any respones to their postings but specifically were on Copaxone with MS and hives started after not have an initial reaction to he medication. In spite of discontinuing the meds, the hives persist. Any one heard of this, experience chronic hives with MS on Copaxone or any other drug please respond. I am no longer responding the the oral steroids or antihistimens and need to know where to go from here. Any help or feedback would be greatly appreciated.

     
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    Old 02-02-2008, 08:15 PM   #2
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    Re: MS and Chronic Hives on Copaxone

    wtorrens, I have heard of this from other posters- keep watching the board. I myself, am not on Copaxone, but I have read others posting about something similar...give them a chance to read your post and respond. This has happened to other people!
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    Old 03-16-2008, 12:57 AM   #3
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    Re: MS and Chronic Hives on Copaxone

    I have been experiencing the same thing you have. I have been on Copaxone for almost a year when I had my first hive breakout. My chronic hives have been going on for 5 months. I got fed up and stopped taking all meds except anti-histamines last month. I am on antihistamines 24 hours a day to attempt to control the hives. I went and had my allergy scratch tests done but they did not include testing for allergy to the meds I have been on. I saw my neuro and he told me to stop the Copaxone and wants me to switch to Betaseron. Although I have not had any noticeable relapses while on Copaxone my MRI did not look as good as we had hoped with a new enhancing lesion showing. My nero also stated that he is aware of hives with some patients on Copaxone and he is a leading MS Specialist. I am very apprehensive about switching to an interfearon due to the known side effects and the fact that I will have to have lab work done to check my liver and other things to check if the Betaseron is causing problems. (That does not sound encouraging to me.)

    My hives were getting to be less severe after about 20 days off of the Copaxone. As I was not entirely convinced that the Copaxone was causing the hives, (my allergy testing found some food and environmental inhalant allergies) I went back on Copaxone this week. After 4 days of shots my hives are becoming increasingly worse. I am pretty much convinced now that it is this med that is causing the hives. I will stay off of it for six weeks and if the hives continue to get better then I will know for certain that that was the cause. I hear so much good about LDN and I have obtained an Rx for it. I will start back on it to see if it helps. I want to use the treatment that has the least amount of side effects and does the least amount of damage to my body.
    Hope this helps.

    Last edited by Blessed1234; 03-16-2008 at 11:50 AM.

     
    Old 03-16-2008, 11:41 AM   #4
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    Re: MS and Chronic Hives on Copaxone

    Welcome Blessed.

    Thanks for sharing your information. I'll be starting this drug shortly (Copax). Hopefully I don't experience these symptoms myself.

     
    Old 04-10-2008, 08:09 AM   #5
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    Re: MS and Chronic Hives on Copaxone

    I have been on copaxone for 3 years now. I used to do them at night, before going to bed, but recently I switched to mornings and shortly after that I started having hives and rashes. First one was a very heavy case where my upper body was completely covered with hives. But after that I kept having small, more local hives. I never thought it would be because of copaxone but since copaxone is something similar to bee sting, and some people are allergic to bee stings. But I am just guessing. I went to my physician and we did all the blood tests, scratch tests, liver tests and all came back negative. So I am kind of clueless.

     
    Old 04-10-2008, 08:31 AM   #6
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    Re: MS and Chronic Hives on Copaxone

    Hi,

    I just thought of something. All of us have been using copaxone for a long time with no problems. And suddenly all of us start having hives, at the same time. That makes me think, maybe copaxone makers have changed their ingredients a bit, added something or used something different that is causing all of use to break in to hives. Of course, I dont know if there is way of knowing that for sure, but I will call shared solution and ask them for sure. You should do, too. If they are notified of this situation maybe they take necessary steps.

     
    Old 04-10-2008, 03:42 PM   #7
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    Re: MS and Chronic Hives on Copaxone

    The manufacturer cannot do that- legally, without letting the doctors, nurses, distributor and pharmacies know. You would have recieved letters from the manufacturer BEFORE they changed it asking for you to talk to your doctor...its called formularies and they didnt change them without your knowledge.

    However, the simple fact that you seem to think so many people developed hives around the same time, might indicate something that Copaxone wasnt banking on...this is what happens sometimes when meds are pulled from the shelves- meaning taken off the market. If there was conclusive evidence that this had happened, it would have been pulled already; however if you are experiencing problems with the drug, you should definately contact your prescribing doc and make sure he/she is aware of it. ITs possible that your body has developed an antibody making the use of Copaxone impossible for you to tolerate...this can happen...

    Hope this sheds some light on the subject.
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    Last edited by MSNik; 04-10-2008 at 03:44 PM.

     
    Old 04-14-2008, 09:44 AM   #8
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    Re: MS and Chronic Hives on Copaxone

    SO GLAD to have found this post.I started getting hives after 2 years on Copaxone. Stopped and tried IVIG and am in the worst flare in my 10 years w/ MS. TEVA has told me that hives are RARE and that there's been only 1 other report of them (hard to believe). In any case after a six month hiatus we are trying it again- maybe starting this week. and I can only hope that I respond favorably.

    would like to keep in touch about this and your experiences

    ivan1013

     
    Old 04-14-2008, 10:40 AM   #9
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    Re: MS and Chronic Hives on Copaxone

    You guys are not helping my nerves as I am waiting for my meds to arrive any day now. It's taking forever for insurance to approve and get them sent, but I'm not really in that much of a hurry.

     
    Old 04-14-2008, 11:07 AM   #10
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    Re: MS and Chronic Hives on Copaxone

    Hi all,

    I don't know what meds I am on since most of you know that I'm in the comirx study. I am either on copaxone, avonex or the combo. I do know however that I was using the copaxane I did not have one problem with it for the first four or five months. This January I have noticed that I am having big red itchy blotches around the injection site that sometimes last for three or four days. I so far have not had any hives.

    hotflash

     
    Old 04-15-2008, 01:43 PM   #11
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    Re: MS and Chronic Hives on Copaxone

    Hey there... not sure that I can add anything, but I have been on Copaxone for a little over 3 months and the only problem I have is a small injection site knot. Once in awhile I' have a little redness but with a warm shower and a little massage of the area the next moring it usually all goes away.

    I was on Avonex for two years and suffered through horrible weekends. I was okay taking the injection on Friday morning until about 6 that night, then regardless of motrin, I'd still get fever and feel like the flu had hit until later on Sunday afternoon. By Thursday.. I'd be sliding downhill.

    None of this happens with the copaxone. At least so far.

    I do hope the hives get better and go away soon!

     
    Old 04-20-2008, 03:53 AM   #12
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    Re: MS and Chronic Hives on Copaxone

    I've been in the Combi-Rx trial (Copaxone and/or Avonex) for about a year. At about 10 months into the trial I started to experience hives periodically, from mild to fairly severe. I'm working with an allergist now to identify a trigger, which involves tracking my diet and activities in a very thorough manner. Still, nothing has been determined as yet. I'm on an antihistimine which does help with the itching, but doesn't seem to prevent hive outbreaks. My neurologist does not think the hives are related to the MS meds.

     
    Old 01-22-2009, 01:51 PM   #13
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    Re: MS and Chronic Hives on Copaxone

    Hey, I hope this message isn't a year too late. I've had MS for a year now. I started on Copaxone at the same time of my diagnosis. For the first 6 months i was fine I just had the bumps at injection sites. But in August 2008 I've been getting hives on a daily basis. I spoke to my nuero and even went to an allergist and they told me to stop taking Copaxone. I was off for about a month and taking allegra, singulair and benadryl every day for my hives. I'm still taking my allergy medicines till this day and I still get hives everyday. I've noticed the hives mostly pop up when i'm very cold, sweating, or doing a lot of activities. They usually pop up at work and I've been working the same job for 3 1/2 years and had never had an allergy attack before. I'm back on Copaxone and still get hives, some days are worse than others. But I'm making an appointment to see my childhood allergist tomorrow, I'll see what he says I haven't been diagnosed with chronic hives yet but I think that's what I have it's been almost 6 months. Do you still get your hives?

     
    Old 01-04-2010, 05:48 PM   #14
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    Lightbulb Re: MS and Chronic Hives on Copaxone

    Hello Hives Queen here and have been for past 1.5 yrs. I'm told that Copaxone can be the culprit however stopping Copaxone doesn't stop the hives. It gets everywhere - antihistamine (sic?) helps a tad but it never stops. I've tried Astragalas (chinese herb) which in one formula seemed to help however that one is now discontinued and the others don't have as much impact. When reading about the other products for MS it seems that they are just as likely to have similar problems so any new advice out there?

     
    Old 06-28-2010, 03:36 PM   #15
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    Re: MS and Chronic Hives on Copaxone

    I was diagnosed with MS roughly 10 years ago and have been on Copaxone ever since. Side effects have been mild and overall no complaints. I have had several flair-ups durring that time - the last one took some of the vision in my right eye, which hasn't yet fully returned. About 5-6 months ago I started getting hives. I used to get hives when I was younger and they lasted roughly two years and then went away. My current outbreak started as itchyness and/or red bumps on my hands and wrists, puffyness of my lips, etc. The effects could at first be countered by taking an antihystamine such as Zyrtech, but after a while that had no effect. The hives progressed to a point where my arms, legs and torso were covered and at that point I went off my Copaxone to see if it was the cause. I also went to a dermatologist, alergist and my neurologist. No one seems to have any brain storms and all tests came back normal. I thought at first that the symptoms lessened when I was off the Copaxone, but then they re-appeared again. I have had better luck recently with Claratin in helping with the symptoms. In my quest to try to eliminate different things from my diet as possible causes, I recently curtailed any consumption of alcohol. The hives lessened considerably and then came back the morning after consuming two glasses of red wine in the evening. Probably all just coincidence and likely it is a combination of factors along with my MS that is causing the hives that I will never get to the bottom of. Anyone have any thoughts?

     
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