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how long does it take to have MS


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Old 06-23-2008, 01:12 PM   #1
Lilred924
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how long does it take to have MS

How long does it take to develop MS? Had an MRI a little over two years ago and it was clear?

 
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Old 06-23-2008, 01:24 PM   #2
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Re: how long does it take to have MS

MRIs can change day to day...you said you have had one..was it only of the brain or of the brain/spine..and what part of the spine? Was it done with contrast or not? Contrast sometimes picks up lesions which are too small to see otherwise..

MRIs are the first place that most Neuro's start..however, there are other tests which should be done to rule out or dx MS...evoked potentials, spinal taps, even optical tests are sometimes done. Not everyone will show lesions on an MRI (although most do).

If you have reasons to think you might have MS, you should see a Neuro every 6 months or so to evaluate any changes...an MS specialist would be your best bet, but any Neuro who is treating MS patients will do for now.

Good luck.
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Old 06-23-2008, 01:59 PM   #3
Lilred924
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Re: how long does it take to have MS

Thank you so much for responding. The first time I thought I had MS I went through a series of tests to discover that my discs had slipped from my TMJ (the bone that connects the jaw to the skull) which causes SO many problems, or at least has the potential too. My MRI at that time was perfectly normal.

The past four or five days, it started in my right leg, tingling, partically falling asleep, then off and on in my right arm. My teeth and jaw did that as well but I'm used to that because it does it when I clench to much and then goes into healing when I relax.

I'm have been under a great deal of stress. I got a CT Scan done the other day when I had what the hospital described as a "hyperventiliation" because I got all numb and such in my arms and chest and back of neck. I have an appt with the neurologist in the morning so we'll see. I have no history of it in my family, but the symptoms fit pretty well. It is worse in the morning but it has never made it so I couldn't use my leg or arm. Just tingling and hot/cold.

 
Old 06-23-2008, 02:14 PM   #4
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Re: how long does it take to have MS

Oh and it was only of the brain. All I had of my neck was an x-ray

 
Old 06-23-2008, 02:20 PM   #5
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Re: how long does it take to have MS

MS can run in a family, BUT it is most often found in people with no history of MS. I do not know your age or your health, but there are a myriad of possible causes that will need to be reviewed before a diagnosis (Parkinson's, Lyme, ..........). If you have MS, it is unknown what the definitive cause or when you start to get it. That part of MS has remained elusive since the first case of MS was recorded hundreds of years ago.

When I look back on my own life, I think my symptoms started 4-5 years prior to the "DUH" symptoms. I excused my early symptoms as being clumsiness and poor coordination. Would an early detection have changed my life? No. It is important going into this NOT to blame yourself. Pity parties are to be avoided and no invitations are necessary. The only pity party you should attend is for the demise of MS. Until that day, stay positive and keep on keeping on. Life does not end with MS.

 
Old 06-23-2008, 03:37 PM   #6
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Re: how long does it take to have MS

So let me ask you if a question if I can. My symptoms, numbness etc are much more noticable when I'm at rest. I mean, not just sitting or laying or anything in particular. But when I'm walking or running around with my dog they are not as noticable at all, but when I stop and relax just walking around the house or watching tv, when I wake up in the morning they are more noticable. They are definitly more noticable first thing in the morning. Is this normal for MS or does it really vary that much with each individual? Will it help if I continue to work out? I'm sure I will ask the neurologist these questions tomorrow but my mind is consumed with this right now and any answers/opinions help.

 
Old 06-23-2008, 03:42 PM   #7
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Re: how long does it take to have MS

So let me ask you if a question if I can. My symptoms, numbness etc are much more noticable when I'm at rest. I mean, not just sitting or laying or anything in particular. But when I'm walking or running around with my dog they are not as noticable at all, but when I stop and relax just walking around the house or watching tv, when I wake up in the morning they are more noticable. They are definitly more noticable first thing in the morning. Is this normal for MS or does it really vary that much with each individual? Will it help if I continue to work out? I'm sure I will ask the neurologist these questions tomorrow but my mind is consumed with this right now and any answers/opinions help.

 
Old 06-23-2008, 04:13 PM   #8
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Re: how long does it take to have MS

When our bodies are busy, we are more likely to lose focus on what our body is telling us. At rest, our mind is able to "listen" to our body. Sometimes the "DUH" symptom will become apparent due to the progress of the disease. I liken it to whacking the mule on the rear end to get its attention! LOL, at least for me it took a big "DUH" to tell me something was wrong.

Even now, if I am not careful, I can forget to "listen" until I sit down. I also have my service dog who is able to alert me when I am having problems. I guess he can listen better than I can!!

 
Old 06-23-2008, 05:04 PM   #9
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Re: how long does it take to have MS

MS does not have a time frame. Some people wait years for a diagnosis, some get a diagnosis fairly quickly and some are diagnosed with something else.

There are approximately 100 other disorders/diseases that mimic MS.

Numbness (for me) happens regardless if I am active or not.
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Last edited by Snoopy61; 06-23-2008 at 05:10 PM.

 
Old 06-23-2008, 05:52 PM   #10
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Re: how long does it take to have MS

I wa diagnosed about a year ago, but the MS speciaist thinks I've had it 15-20 years, progressing very slowly, for whic I'm grateful.

 
Old 06-23-2008, 05:56 PM   #11
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Re: how long does it take to have MS

Quote:
Originally Posted by MSJayhawk View Post
When our bodies are busy, we are more likely to lose focus on what our body is telling us. At rest, our mind is able to "listen" to our body. Sometimes the "DUH" symptom will become apparent due to the progress of the disease. I liken it to whacking the mule on the rear end to get its attention! LOL, at least for me it took a big "DUH" to tell me something was wrong.

Even now, if I am not careful, I can forget to "listen" until I sit down. I also have my service dog who is able to alert me when I am having problems. I guess he can listen better than I can!!
Dogs are beautiful creatures aren't they Jayhawk? Such great companions!
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Old 06-23-2008, 07:51 PM   #12
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Re: how long does it take to have MS

Quote:
Originally Posted by Nenu View Post
Dogs are beautiful creatures aren't they Jayhawk? Such great companions!
I truly concur; dogs love unconditionally. While the world may judge you for your disability, your dog only sees a companion. I am often indebted for my service dog's assistance and concern. I think I would be lost without him.

 
Old 06-23-2008, 08:04 PM   #13
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Re: how long does it take to have MS

It used to be that the only time I noticed the numbness/tingling was when I was physically stressed; from walking, running, or as the day wore on and I got tired. Now that there is more permanent damage in the spine, the day-to-day numbness seems most obvious after laying or sitting in certain positions, for relatively short (1 - 3 hrs) periods of time.

The funny thing is that the numbness is at it's best after a good night's sleep, where I've been laying for several hours. Why it bothers me when I lay for 2 hrs, but doesn't when I lay for 6 hrs. . . I don't know. Doesn't seem to be any rhyme or reason.

Is it possible that you are particularly anxious when you are not busy doing something?

Cherie

 
Old 06-24-2008, 06:17 AM   #14
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Re: how long does it take to have MS

Hi,
everyone is different but it took about 7 years after first symtoms of MS for the docs to diagnose me. Not all tests were pos. at that time. When numbness returned all MRI's and LP were pos. I am thankful for the 7 symptom free years I had in between.

 
Old 06-24-2008, 11:14 AM   #15
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Re: how long does it take to have MS

I'm new to the site and have the same question. I've had 4 bouts of optic neuritis on the last year and a half, with no positive tests for neither MS nor Devic's. I was on Avonex for 4 months, but the flulike side effects never subsided and I got off of it, only to experience another episode of optic neuritis and the lovely cocktail of steroids. Without a positive MS diagnosis, I'm hesitant to endure weekly sickness caused by the interferons, but the reactive steroid treatments aren't fun either. I feel like a pufferfish for a month! Is there anyone out there also in this catch 22?

 
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