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Old 12-01-2009, 01:51 PM   #1
Join Date: May 2009
Location: Missouri
Posts: 3
busybusy HB User frustrated!

I am trying to get a diagnosis and having a very hard time. I need opinions and advice - badly!

My symptoms started almost two years ago and went completely into remission during my second trimester of pregnancy. I'm 10 weeks postpartum and some things are starting to return. I am having HORRIBLE fatigue right now. Prior to pregnancy, my symptoms were only one side (left) and the other day I was flat ironing my hair and the heat caused me to lose partial vision in one eye. This eye has also started twitching all the time.

I had an MRI done last year and it was clean. I went back to the Neuro and she ordered another one. I called to get the report from the Radiologist and everything was negative/no change from last MRI. I have an apt. with my neuro in two weeks to go over the results. Could she possibly find something more that the Radiologist hadn't or does she just read his report?

She is only going off of a Brain MRI w/contrast. She believes that my symptoms can only be coming from my brain. I don't know what else this could be and I don't know what else to ask her to do for me. PLEASE help!!

Weakness arms and legs
Vision disturbances
MAJOR Fatigue (worst symptom)
cold sensations in head/face
odd tingling sensations
my head tics or jerks sometimes
restless leg
forgetfullness - brain in a fog

I still feel 10 x better then I did before I got pregnant, but I feel as though things are returning. I'm also still breastfeeding, b/c I'm not taking any medication to ward off a relapse and I have read some positive info on breastfeeding.

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Old 12-01-2009, 02:26 PM   #2
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Join Date: Sep 2006
Location: USA
Posts: 11,800
MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: frustrated!

Dear Busybusy....congrats on being a new mom!

Its not unusual for women who DO have MS to relapse after pregnancy...hormonal shifts often cause it to happen. And, its not unusual for things to shift to different parts of the body, or sides of the body- even if its not Post can happen with MS at any time.

Your question about whether or not your doctor can pick up something different on a MRI is a good question. My Neuro doesnt read reports, only films and when I compare what he says to the radiologist report, its always spot- on...however, your doctor doesnt sound like a MS specialist- does she even have the ability to read a MRI? If she was more voiced in MS- she wouldnt be saying what you wrote- that this has to be in the brain. There is must as much of a chance of a lesion showing up on a spinal MRI, then there is on the brain, and your symtoms suggest that this might be where your lesions are hiding.

If it were me, and I was having the symtoms you are having, Id be taking my films to a MS specialist, or at the very least a good Neuro who has a big practice of MS patients, and getting a second opinion. Now that you are a mom, you need to know why this is happening and only a doctor who is very well versed in MS is going to be able to dx it, or rule it out. Remember too, MRIs can change week to week. What didnt show up 4 months ago, might very well show up now- especially post pregnancy....heat sensitivity is one of the major triggers to feeling lousy. I had to cut my long hair shorter, as the hair dryer was one of my initial signs that something was wrong. Now, I have my hair straightned professionally (keratin) and dont even have to dry my hair with a blowdryer- the heat kills me that badly!

Good luck to you and let us know what you find out.
RRMS- dx 05

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