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Convinced I have MS

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Old 12-09-2009, 03:28 PM   #1
Join Date: Dec 2009
Location: Ohio
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bayberry HB User
Convinced I have MS

hi all i'm new here. I have some odd symptoms that i have yet had Dx due to no insurance, which finally will begin in the next week or so' of course the web isnt the best to check out when u have odd symptoms, its kinda scary what you can pull up. Anyways I'll list just a few of my symptoms. I went and saw a GP last week finally after I started to have left eye fuzziness and sometime double vision in left eye for about a month, hands get pins and needles at night while sleeping, have had a few instances of my left arm going numb(feels like it is shot with novacaine), shortness of breath, joint pain(that i chalked up to the dislocations in my hip and shoulder that i have had), easily confused when given a couple tasks at a time, depressed and have anxiety, sometimes i feel as if my tongue is heavy and cant get out the words i want to, oh and the GP had me do some facial movements and noticed a tremor in my cheek that i never noticed.....So needless to say I'm being sent to a neurologist but cant get in until January which is ok since finally i will have insurance..My question i know the only way to Dx MS is through an MRI, but with all these symptoms I'm convinced it is MS,I would appreciate any opinions..Also I'm a 27yr old single mom so worried if i do have it how to handle all of this!!

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Old 12-09-2009, 03:45 PM   #2
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Re: Convinced I have MS

Hi Bayberry. Cute name. And, welcome to the boards.

Sorry to hear you are going thru all this. And really happy to hear that you have not only a Neuro appt, but insurance starting soon! Youll definately need it to get a dx...You said that the only way to get a MS dx, is with a MRI...yes and no. YES you definately need to start with a MRI of the brain and spine, with and without Contrast. What this will do is show if there are any lesions on the brain/ spine...and if they are active or not.

Not all lesions are MS. They can come from migranes, prior brain trauma, infection and other things...lesions, are basically scars which form and show up as spots on the films. The placement, shape and size of the lesions is what determines if they are MS lesions or not.

You might also need to have a host of blood work done. Things like Lymes disease, deficiencies in certain vitamins, Lupus, things like that, present much the same way as in order to dx MS, you have to rule those things out. You might also be asked to do a spinal tap, or Lumbar Puncture (LP). what this does, is show the doctor if Obands are present in your central spinal fluid- these are not definate for MS, but do indicate an autoimmune disease.

So, as you can see- there is no simple test for MS. You might want to read up on the McDonald criteria, which is what the doctors need, before diagnosing MS. I do hope you have a Neuro who is either a MS specailist, or at least has patients with MS...ask! Make sure the Neuro you see isnt a Parkinsons Specialist, or a Migrane specialist....those guys are not familiar with the different ways that MS can show up.

Because everyone with MS has different symtoms, they call it the snowflake disease. No two cases are exactly alike. Keep that in mind- especially if you start "comparing" symtoms....

And thats about it....unless you can think of something else? Welcome to the board...keep us posted...and congrats- at least you are on your way to getting answers.
RRMS- dx 05

Old 12-09-2009, 05:14 PM   #3
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Re: Convinced I have MS

Welcome. The MRI is not the only test/procedure you need to go through. You might want to review the McDonald Criteria to find out what you should expect.

Yes, you can get through all this. You might have "bad" days, but if you will stay positive and have a support group (family, friends, this forum), you will do well!
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

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