It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board

  • tight band feeling around trunk of body

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 04-29-2003, 11:54 AM   #1
    sofatigued
    Newbie
     
    sofatigued's Avatar
     
    Join Date: Apr 2003
    Location: irving, texas,usa
    Posts: 3
    sofatigued HB User
    Unhappy tight band feeling around trunk of body

    has anyone had the tight band feeling around the trunk of the body...about the waist or a little higher? How can I get rid of it. Have had it for 10 yrs off and on and cannot find a med to rid me of this symptom that is very uncomfortable.
    thx

     
    Sponsors Lightbulb
       
    Old 05-14-2003, 09:16 PM   #2
    kathyab
    Newbie
     
    kathyab's Avatar
     
    Join Date: May 2003
    Location: Wenona IL USA
    Posts: 7
    kathyab HB User
    Post

    Hi, I just read your post and I have had that feeling but only in my are at the elbow,it felt like my hand was on fire and going to burst. It was actually quite frighting. I have had it a couple of times and I dont know what causes it.

     
    Old 05-15-2003, 06:32 AM   #3
    sofatigued
    Newbie
     
    sofatigued's Avatar
     
    Join Date: Apr 2003
    Location: irving, texas,usa
    Posts: 3
    sofatigued HB User
    Post

    thanks for your reply....I have this around the waist since I was diagnosed ten yrs ago. Off and on and it is very, very uncomfortable. Baclofen helps sometimes, however, not all the time...I haven't had anyone else tell of this symptom. Thanks for your imput.
    laura

    ------------------

     
    Old 05-16-2003, 02:27 PM   #4
    msking
    Newbie
     
    msking's Avatar
     
    Join Date: May 2003
    Posts: 1
    msking HB User
    Smile

    My husband was diagnosed january 2003. He has complained of this "tire around his waist" feeling for many months. We still do not know any specifics as to why this feeling exists, but it is definitly due to the ms.

     
    Old 05-16-2003, 03:22 PM   #5
    sofatigued
    Newbie
     
    sofatigued's Avatar
     
    Join Date: Apr 2003
    Location: irving, texas,usa
    Posts: 3
    sofatigued HB User
    Smile

    thx for replying msking,
    this is one of the most annoying symptoms I have quite consistently. I trip and fall and go numb, etc...but this is really a bother. If you ever find anything that makes it go away...let me know. I am getting ready to start Avonex...maybe it will help.
    laura

     
    Old 12-26-2003, 04:29 PM   #6
    terryrret
    Newbie
     
    terryrret's Avatar
     
    Join Date: Dec 2003
    Location: Galiano Island BC Canada
    Posts: 4
    terryrret HB User
    Re: tight band feeling around trunk of body

    Quote:
    Originally Posted by sofatigued
    has anyone had the tight band feeling around the trunk of the body...about the waist or a little higher? How can I get rid of it. Have had it for 10 yrs off and on and cannot find a med to rid me of this symptom that is very uncomfortable.
    thx
    I have the same thing and also around legs like a very tight pair of underwear. I'v had that for 13 years it just never gose away. I have spinal damage not MS but some of my problems are like MS like the spasms. I have so much other pain that that is something I just live with. Mine can't be as bad as yours
    Terry

     
    Old 01-01-2004, 03:20 PM   #7
    Jewel2
    Inactive
     
    Join Date: Nov 2003
    Location: Durango, Colorado
    Posts: 1,432
    Jewel2 HB User
    Re: tight band feeling around trunk of body

    My daughter has MS and has the same problem - it's called girdling. It's just another symptom of MS, just like the numbness and tingling in the limbs. When it gets really bad she uses steroids and it starts fading away...until the next time

    Best wishes,
    Juie

     
    Old 01-11-2004, 01:18 PM   #8
    Tumbled
    Junior Member
     
    Tumbled's Avatar
     
    Join Date: Jan 2004
    Posts: 14
    Tumbled HB User
    Re: tight band feeling around trunk of body

    The tight band around the trunk is most commonly refered to as "MS hug". I dont have any advise for you as to how to releave symptoms but maybe by knowing what it is called you can find out more. Take care

    I have to edit this after seeing the blue line under a word I used. If you see a blue line under the word called, do not click, it takes you to some phone service web site. I did not do it on purpose.

    Last edited by Tumbled; 01-11-2004 at 01:30 PM.

     
    Old 01-11-2004, 03:47 PM   #9
    lbstover
    Junior Member
     
    lbstover's Avatar
     
    Join Date: Dec 2003
    Location: Howard, PA
    Posts: 14
    lbstover HB User
    Re: tight band feeling around trunk of body

    This is why I originally went to the doctor. They kept telling me it was my gall bladder since it was more prominent on my right side. I had every test they could run for gall bladder disease and they all came back negative. It took them over 2 years and they still didn't have any idea. I changed doctor and it on took him a little over a month to figure out that I had MS. It is an awful feeling and I sympathize with you.

     
    Old 01-11-2004, 08:46 PM   #10
    SapphireSky
    Junior Member
     
    SapphireSky's Avatar
     
    Join Date: Jan 2004
    Posts: 28
    SapphireSky HB User
    Re: tight band feeling around trunk of body

    I have this sensation alot......my "MS hug" is just above my waist on the left side, from the middle of my back to my side near my ribcage. I hate it!! I have trouble falling asleep at night because it always shows up when I am lying on that side, and I have muscle spasms in that area on occasion.

    I also get a weird feeling in my calves where it feels like I have tight socks on all the way up my calves.....kind of goofy since this happens even when I have bare legs.

     
    Old 06-01-2011, 04:39 AM   #11
    potala
    Newbie
    (female)
     
    potala's Avatar
     
    Join Date: Jun 2011
    Location: london
    Posts: 2
    potala HB User
    Re: tight band feeling around trunk of body

    Quote:
    Originally Posted by sofatigued View Post
    thanks for your reply....I have this around the waist since I was diagnosed ten yrs ago. Off and on and it is very, very uncomfortable. Baclofen helps sometimes, however, not all the time...I haven't had anyone else tell of this symptom. Thanks for your imput.
    laura

    ------------------
    Hello, i dont know if you are still member of this board, but would like to ask you how and if you managed to sort out your problems. Im having the same sympoms, its been few days now and im already fed up. My GP had no clue what ii could be and sent me off for an x-ray of spine. My trunk feels like a brick, its just a horrible feeling. And i also feel numbness in my fingertips and feet, when im sitting its ok, when i have to walk, i have to watch it, coz the feet feel numb as well. Thanks.

     
    Old 06-04-2011, 11:40 AM   #12
    shepp10
    Newbie
    (male)
     
    shepp10's Avatar
     
    Join Date: Jun 2011
    Location: caerphilly,ccbc,uk
    Posts: 1
    shepp10 HB User
    Re: tight band feeling around trunk of body

    hi-ya hope this helps it's known as the ms hug its where the messages get mixed up to tighten and relax the stomach muscles i find a lumber belt works quite well and this probably sounds silly but some something quite tight around the stomach works quite well

     
    Old 06-04-2011, 02:02 PM   #13
    potala
    Newbie
    (female)
     
    potala's Avatar
     
    Join Date: Jun 2011
    Location: london
    Posts: 2
    potala HB User
    Re: tight band feeling around trunk of body

    Thank you so much for your msg, it looks like ive got it, MS hug, but i also suffer from a very bad scoliosis, so theres many things participating in that, stress maybe as well. My GP did not know what it was, when i described my problems, had Xray done, so ill see what shes gona suggest at her next visit. It is a very umcomfortable and annoying stuff, and i hope it will be gone soon, otherwise ill go mad, also my hands are numb, specially left one, the fingertips. Ive been trying to do my research online, but couldnt find much about that. It sounds scarry, coz i dont have MS, i dont have chest pain like some people describe, just that terrbile tightness around my body and numbness in hand and legs when i walk. So lets see, im gona study MS hug now, thanks a lot.

     
    Old 06-04-2011, 11:36 PM   #14
    domscott
    Junior Member
    (male)
     
    domscott's Avatar
     
    Join Date: Apr 2011
    Location: tauranga, bay of plenty , new zealand
    Posts: 10
    domscott HB User
    Re: tight band feeling around trunk of body

    I have experienced this symtom for many years and i never knew what it was, i dont have any medical advice but i feel your pain.
    My ms hug has subsided for now, but i now have a similar feeling in my legs.

     
    Old 06-05-2011, 06:15 PM   #15
    MSNik
    Senior Veteran
    (female)
     
    Join Date: Sep 2006
    Location: USA
    Posts: 13,193
    MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
    Re: tight band feeling around trunk of body

    Potala,
    if you dont have MS, you probably are not experiencing the MS hug. I guess anything is possible, however the hug is trigered by brain attacks of the nervous system- and the body's responses....you sound like you are having muscle spasms....which can be treated.


    Domscot, you may be experiencing the hug, but you might also be experiencing muscle spacticity...which is probably what Potala is experiecing as well. talk to your neuro about symptom control...especially if its in your legs as well; I get it alot in the change of weather times..and 5 mgs of Flexeril helps me greatly!

    talk to your doctor about the symtoms!
    nikki
    __________________
    RRMS- dx 05

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Tight band feeling duttin Multiple Sclerosis 11 10-27-2006 01:47 PM
    Tight band around ribs? pa235 Fibromyalgia 18 09-19-2005 10:21 AM
    Does Anyone Here Have a CONTINUOUS Tight Headache? looney TMJ Disorder -TemporoMandibular Joint 23 01-09-2005 02:37 AM
    TIGHT BAND AROUND ABDOMEN! Soleil11 Multiple Sclerosis 2 08-21-2003 10:43 PM
    Tight Chest, ADVICE! Took ephedra! Darla11 Heart Disorders 1 03-13-2003 12:06 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 07:16 AM.





    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!