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Old 01-27-2010, 04:01 PM   #1
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bhmomof2 HB User

I was recently diagnosed with MS and now have a question about my daughter. She is 17, and has some unusual medical history. Four years ago she had sudden onset of "muscle confusion". She is a very good dancer and lost the ability to do any basic dance movements with her legs. She also was a cross country runner and developed a strange gait. Around the same time she developed bladder dysfunction. We went to a ton of specialists in many fields and it seemed every one found something else wrong. Eventually she got better and we just quit the doctor thing.
Fast forward two years and she developed gastroparesis. It is a paralyzed stomach. This lasted many months, she had a feeding tube and finally that resolved also. They felt it was brought on by a virus.
Last week she got antother stomach virus and the gastroparesis is back.

Finally my you think any of this is related? Is she just unlucky? Could it be MS or am I just seeing that because of my recent diagnosis.

Any ideas??

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Old 01-27-2010, 05:19 PM   #2
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MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: daughter/gastroparesis/MS

Youre seeing it because of your recent diagnosis. One of the toughest things to learn when you are newly diagnosed, is NOT to think everything that happens is MS related. It takes time to accept and learn that. Youl think a cold is a relapse, a virus is a relapse, a sore throat is reason to go on steroids...youll think a headache is a migrane and sore muscles are MS related. Very few times this will be the actual truth, but its very common in the first year, especially, to go thru this. Dont beat yourself up because we have all been there.

Now, about your daughter. This sounds very concerning. So, dont think MS for now, and start thinking about seeing some GI specialists and getting this resolved this time. Dont wait until something resolves itself and then forget about it. Its happend twice now, and now is the time to get answers. There are some Neurological disorders which also cause this type of symtoms, and since Im assuming you trust your Neuro, a visit to him or her, with your daughter might be a good place to start and ask for some suggestions...just a thought.

I really doubt that your daughter has anything to worry about from a MS front, but as you know, it can strike anyone at any time- but it is so incredibly rare for it to be in both a mother and, look elsewhere and be strong. We are here if you need us.
RRMS- dx 05

Last edited by MSNik; 01-27-2010 at 05:21 PM.

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