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Oral Med


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Old 11-14-2010, 08:58 PM   #1
zadie
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Oral Med

Have any been approved yet can anyone give me some more info

 
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Old 11-14-2010, 09:12 PM   #2
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Re: Oral Med

The closest one I read about is CLADRIBINE which may be available in the first quarter of 2011. There are others too coming soon. You might wish to check Australia since you do not have to contend with the FDA.
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Old 11-15-2010, 04:08 AM   #3
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Re: Oral Med

Quote:
Originally Posted by zadie View Post
Have any been approved yet can anyone give me some more info
Gilenya (Fingolimod) is a new oral medication and is being prescribed...speak to your Neurologist if interested.
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Last edited by Snoopy61; 11-15-2010 at 04:09 AM.

 
Old 11-15-2010, 09:44 AM   #4
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Re: Oral Med

i take ampyra twice a day

 
Old 11-15-2010, 09:58 AM   #5
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Re: Oral Med

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Originally Posted by vanesr1 View Post
i take ampyra twice a day
Hi Vanesr1,

Ampyra is new, it's to help with walking -- I hope it's helping you

Gilenya (Fingolimod) is a new Oral (no injecting) Disease Modifying Drug.
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Old 11-15-2010, 06:00 PM   #6
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Re: Oral Med

Thanks guys that was on the way a few years ago just looked it up and its approved in Oz also which is great news anybody out there on this or considering it.
Michele

 
Old 11-16-2010, 10:45 PM   #7
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Re: Oral Med

I am also on ampyra--how are u doing????

 
Old 11-17-2010, 12:31 AM   #8
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Re: Oral Med

You know quite a lot about meds read you are not on any you seem like you are making an informed choice feeling pressure about starting meds ms clinic tomorrow

Last edited by zadie; 11-17-2010 at 12:32 AM.

 
Old 11-17-2010, 12:36 AM   #9
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Re: Oral Med

snoopy you seem to know a lot about meds read you have chosen not to take them by making an informed choice

 
Old 11-17-2010, 07:49 AM   #10
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Re: Oral Med

I think that you should think about your expectations of the med and the long term use of the med. If you choose to go the med route, make sure you are not being sold on the med based on the doctor's current pharmaceutical representative. Ask your doctor to show you why the med the recommend is the right one for you and what are the long term risks and what you should look for in case of a negative reaction. Also, make sure you are prepared to get the requisite follow-up visits to ascertain any negative side effects. Do not take the med with the expectation of a cure. Lastly, avoid the snake-oil sales personnel who will beat a path to your door to sell you what you want to hear.
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Old 11-17-2010, 07:57 AM   #11
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Re: Oral Med

Quote:
Originally Posted by zadie View Post
snoopy you seem to know a lot about meds read you have chosen not to take them by making an informed choice
Zadie, I am no expert on the Disease Modifying Drugs -- I TRY to stay informed about old and new medications.

I was diagnosed before there were medications for MS. The first Disease Disease Modifying drug available in the US for the general MS population was Betaseron in 1993/94.

Through the years I have just choosen not to use any of the drugs and I, personally, do not believe they work.
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Old 11-17-2010, 01:56 PM   #12
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Re: Oral Med

Have things gone well with no meds I am of two minds the last time went to ms clinic doc told me about the new drug which has now been approved the oral chemo type drug

Last edited by zadie; 11-17-2010 at 01:58 PM.

 
Old 11-18-2010, 09:35 AM   #13
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Re: Oral Med

Zadie its a tough call as no-one knows where they would be if they picked the other option.
I have never taken DMD's and have had MS for 14 years. I am still running/walking working etc However I suffer from fatigue occasional vision probs and vertigo sometimes.

If I had been taking the DMD's they would have attributed my good state of health to them saying they have worked well for me. (I do swank/best bet diets/no wheat dairy/low unsaturated fat and take supps)
If I had been more disabled now maybe I would have said oh I should have taken the DMD's.

There are others who have taken them that are not doing well at all and some people who take them and swear by them.

The truth is those that are doing well say its because of the DMD's but what would have happened to them had they not taken them?

Maybe I would not have suffered a vertigo relapse this year if I was on DMD's I will never know...but as I plan to have kids soon the choice for me is not to take them.

 
Old 11-18-2010, 04:10 PM   #14
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Re: Oral Med

I tend to agree with you I feel like they Drs just assume thats the way I am going not sure what to do right now have you had anything at all. I also run go to the gym etc and since early 2007 have had nothing until now with by scalp being numb .This site helped me alot a few years ago and hoping it will again

Last edited by zadie; 11-18-2010 at 04:11 PM.

 
Old 11-18-2010, 04:57 PM   #15
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Re: Oral Med

If I was to try any DMD's it prob would be the combo of LDN (not approved) with copaxone.
I would also take Vit D3, Q10,Vit C, magnesium, and kelp and have a diet that helps thin the blood i.e foods high in Vit E and drink lots of water. (2 litres a day)

Natures plus are a good make for supps so any from them should be good quality.

x

 
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