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starting to get worried

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Old 02-15-2011, 01:29 PM   #1
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starting to get worried

This is only my third thread, I am still undiagnosed, but am waiting for my MRI and EEG appointments.

I have had several "episodes" in the last few days, and I am starting to freak out about how frequently things are happening.

I am getting a lot of muscle spasticity, 2 days ago my left arm contracted in a bent position to the point that it was rock solid for 5 mins, I couldn't move it, couldn't release it, I was holding a cup at the time, and I told my mum to take it out of my hands, she had to pry it from my fingers, she said my whole arm and fingers were completely hard,
No matter how I willed my arm to relax it wouldn't.
It happened to my other arm briefly yesterday when I was reaching for the remote control and once I had my fingers around it, I couldn't do anything with it, couldn't lift it up or press buttons, my arm was "stuck" for about 60 seconds.
I have also have had a couple of bouts of sudden severe nausea immediately followed by numb lips and nose, which then lead my my face being itchy (kind of like after anesthesia wears off after the dentist), I kept blinking rapidly and rubbing my face and eyes uncontrollably for a few minutes.
I felt very strange and slightly out of it, but still knew what was happening.
Also for the last few days, several times a day the corner of the left side of my mouth will twitch up to the side like only the left side is smiling, my cheek is starting to hurt.

Also I am constantly getting jerking in my arms, I will just be sitting watching tv and my arm will jerk, its usually my right one, but sometimes they just both jerk one after the other.
Occasionally my legs will do it just not often.
Most of the jerking and other symptoms happen during the afternoon or evening, hardly ever in the morning.

Anywhooo sorry, long story. I spoke to the specialist yesterday when he phoned to go through the check list for the MRI, and told him about these problems, he is still calling them seizures (he suspects simple partial seizures), so perhaps these aren't MS symptoms at all, but in my gut I keep thinking MS.

thanks for listening, I just had to get it all out, its just the frequency of things now that is starting to worry me, it has been 9 months of intermittant symptoms, and now they are happening every day.


Last edited by winterlove; 02-15-2011 at 01:33 PM.

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Old 02-15-2011, 02:37 PM   #2
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Re: starting to get worried

Seizures do affect some MSers; therefore, if you have seizures, it does not dismiss MS. I went through a cycle of seizures and your episodes remind me of my seizures. If they are seizures, then it is more likely to be managed with seizure meds and you can continue your life.

Worries are the last thing you need. Worry can lead to worsening MS or MS like symptoms. Keep the faith and stay strong and positive; you will make it. Your kids and husband need you to be there.
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

Old 02-15-2011, 07:04 PM   #3
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Re: starting to get worried

Although I know that Jayhawk might be right, seizures are definately a symptom for some MSers- I have a feeling you are going to find out this is NOT MS for you. Your symtoms from your first post, just dont mimic MS very much. If you DO have MS, you have a very different presentation then most of us have experienced. Which is still possible. This disease is so different for everyone, that its hard to pinpoint what is "the norm".

I wish you the best with your tests. You said you were still waiting for them to be scheduled. Stay on your doctor and insist that he does this sooner rather then later. If they are seizures of any sort, Jayhawk is also right that getting on the right meds will help you get your life back!

Wishing you the very best.
RRMS- dx 05

Old 02-15-2011, 11:18 PM   #4
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Re: starting to get worried

Thanks Jayhawk,

I'm trying to stay positive My worrying started last night, and things always tend to look brighter in the morning.

For most of today, I felt 'normal' and probably did too much perhaps, and I had another episode hit me late afternoon. I had nystagmus first, then spasticity in my arm, it stayed contracted for about 3 mins, then my jaw clenched for a couple of minutes, then it went away. I'm feeling fine now though.

I think I am just going to have to learn to pace myself

thanks for the supportive message.

Old 02-15-2011, 11:23 PM   #5
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Re: starting to get worried

thanks Nik for your message, you guys are so supportive here, I really appreciate it

I agree, that I should keep on my doctor especially as the episodes are seeming to be coming almost daily now.
Hopefully after the tests it will give the doctor more direction.
To be honest I had never even thought about my episodes being seizures until he mentioned it, but I did do a bit of reading today (but I am trying to not read too much but I can see why he thinks that way.

thanks again


Old 02-15-2011, 11:41 PM   #6
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Re: starting to get worried

How scary, im so sorry for you. All i can say is that i'm here with you, i know those words have helped me and i pray they help you too. I went to bed the other night with severe 'jerking' i described it as having a woman having an orgasm,lol... if only right? Im sorry if that was too crazy to say, but ive had to learn to laugh at a lot in my life, it makes things so much better. The best thing to ever happen to me was to find people at these boards that understood, I thank God everyday and I hope your life will be blessed the same.

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Old 02-16-2011, 12:25 AM   #7
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Re: starting to get worried

Thanks Cam,

your message made me smile

I love your positive attitude. I am very happy to have found these boards.
Thanks for sharing with me


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