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Phantom smells?

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Old 07-28-2011, 04:35 PM   #1
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rosewood32808 HB User
Phantom smells?

I have recently been diagnosed with MS. The symptoms that I had that led me to getting an MRI were memory problems and some headaches. They found lesions on my brain and spine.

For the past 4 years, I have been having these horrible phantom smells. They come and go. I can't figure out a trigger, but sometimes they come when I am stressed. It smells like burnt oil or burnt plastic.

My question is two-fold:

1. Does anyone else with MS experience these phantom smells?
2. If you have, have you ever worked at or near a manufacturing facility? I have read the some research indicates that certain chemicals can trigger MS.

Thanks in advance.

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Old 07-28-2011, 04:52 PM   #2
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MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: Phantom smells?

Hi there. Sorry to hear of your diagnosis. Especially since its new to you, but Im here to tell you, its a very livable disease!

MSers often have very sensitive sense of smells. I can smell things before anyone else can, and certain smells trigger migranes, this never happend before but its one of my triggers.

I dont know where you heard that MS can be caused by chemicals. Not likely. But I can show you where they also say its caused by not getting enough vitamin D. I grew up in a sunshine state, spending my entire summers first as a child playing in the ocean- then for 10 years working as a lifeguard. More than anything I should be worried about skin cancer, but I certainly wasnt deficient in sunlight! I got MS when I was 36. I can also show you where it says that things like eating fast food and processed food can cause MS. Ive eaten fast food maybe 10 times in my entire life. And most people eat it once a week? So you stating that breathing or being around certain chemicals might cause MS doesnt surprise me, but my point is that you will find blame for it if you look hard enough. The most brilliant minds in medicine still dont know what causes MS, and there is no cure, but I can show you 50 websites which will swear if you eat this, avoid that, take this pill or supplement or do this particular procedure, youll be cured. So, please dont believe everything you hear.

MS may or may not be hereditary, they are doing studies right now to see if there is a gene that we pass on, which makes us more susceptible to getting an autoimmune disease. They really dont know what causes it. Look at it this way, youre in good company, over half a million people are dx with MS in the USA alone- and probably another 100,000 havent been dx.
welcome to our world of support. We look forward to having you join us!
RRMS- dx 05

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Old 07-28-2011, 09:53 PM   #3
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Re: Phantom smells?


I do not think I have phantom smells, but I know that certain odors can stop my appetite or make me feel ill. I put it up to MS. Mind you that I used to help raise hogs and part of my duties on the were to clean the holding area after milking. These never bothered me- nor did diaper duty . I think that, for me the smell problem hit me after my MS really worsened in 2002.

I wish I could tell you how to fix it! Again, welcome.
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

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