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    Old 09-23-2011, 01:17 PM   #1
    Yolanda72
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    MS? weakness on left side, burning ringing ears

    ok Im concerned that i have ms and need some input ..

    I RECENTLY WOKE UP WITH A BAD NECK ACHE THAT GOT WORSE EVERY DAY INSTAED OF BETTER THEN CAME HEAT, PAIN AND NUMBNESS IN LEFT SIDE OF HEAD FACE CHEECK, SHOULDERS AND ARMS .with burning in all kinds of places.

    pins, needles in rms hands fingers that led to severe weakness on lft side both arm and leg.shooting radiating pain down both arms worse on lft. I have for three yrs now been telling my dr that i cant empty my bladder well she sent me to a gyn to be put on birth control???

    i HAVE UNcontrolable muscle spazms in my throut and i swallow when im not trying to..weird. i chock on my own spit sometimes because i also breth in really fast uncontrolled. my ears ring all the time. i was treated like i was lying. and now I have some leaking and its numb down there at times.

    I CAN NOT PEE RIGHT! I cant get a stream going and am always in the bathroom.
    I cant seem to be able to stand heat or cold. i either sweat like a stuffed pig or when im cold my teeth chatter i feel exuasted my folic acid level and patassium was low when i was admitted to the ER last week for the severe jerking and weakness/pain.

    they gave me supliments there. I was treated very poorly after brain mri was normal. I left and am home. they feard it was stroke or hemredge.

    long story short im still stuttering my parents have come down to take care of me and all symptoms are still here. i have an EMG on tues. any help would help PLEASE!!!!!!!

    I wake up every morning feeling hip pelvic and leg pain,nubness, stiff and very much off ballance but Im always off balance,was told it was menieres desease and as of late, told i didnt have it. Ioften stutter and slur or cant remember what i was saying and even forgetting if i took my meds for the day.. THATS SCARY..IF I CLOSE MY EYES I SOMETIMES FEEL LIKE IM GONNA PASS OUT.

    The slurring and stuttering started about a yr ago I had lft side head and face tingling, blurred vission and felt very confused in class. I had to ask for the instructions to be read three times and still didnt understand. I felt as if i wasnt there and confused. went to er he says it sounds like stroke but it wasnt so i went home and stutterd and slurred speech ever since with incresng ear ringing and ballance issues. i sweat so bad at times i was checked for menapauase and all is well there. im 38 yrs old...
    its like i seem to get new symptoms each time the tingling, numbness starts in my head and not i have severe uncontrolible body jerking. its hard to rest and my back, butt neck thighs and lft leg kill. all the jerking irratated disc issues. nerve pain is extreammmm. i cant use my left hand to grip i need a pillow under my arm all the time and walk with a cane. i cant shower, cook, brush hair. i cant stand for long because of the muscle weakness.

    I feel like im on a boat with severe ringing in my ears nausious, its worse with loud noises. I bump off of walls all the time. I have bruises to prove it when bouncing off corners.

    Sciatic pain has been getting worse as of late and I have actually fallen because of the weakness in my left leg and foot.

    my reflexes are very weak with a history of foot drop it feels kinda like that. my fibro dr thinks im nuts and argued with me as if he didnt believe me but yet told me i had poor reflexes in lft arm and lft leg ??? huh???
    he ordered an mri of neck because this was my most complaint. the pain in arms neck, shooting pains numbness in left cheeck tingling in head. slurring. he thouth i was crazy. just like all the rest.

    i have set in silence with this afraid to go to a dr in fear of being called a liar or crazy.. it hurts!!!!
    i cant play with my daughter and that hurts worse than ANY OF MY SYMPTOMS.

    I have heat in the bottom and sometimes on the top of my feet and toes but the are cold to the touch.I have very poor reflexes on left arm and leg. radiationg pain down arms JUST LIKE THE SIATICA!!! PINS NEEDLES HEAT, BURNING ALL OVER. TINLING IN HEAD AND Icant really give exact places, very odd.

    I get this in my neck, shoulders arms and hands, buttocks, back, legs and thighs. some of this is flushing heat sensations and some are a quick burning that comes and goes As far as the flushing radiation heat thingy in my left side of head and face it seems to happen with tingling in head and left cheek and jaw, Along with this i have blerred vision and a feeling of confusion. I often cant seem to find words I should clearly know like.. LETSA SAY I WAS TRYING TO DISCRIBE A CAR.. i WOULD SAY YANO THAT THIS WITH 4 WHEELS, YOU DRIVE IT, IT HAS A STIRRING WHEEL.. OH YEAH CAR.. I do this a lot and stutter and or slur my words especially if im upset. i jerk all over and just had a bout of musles spazms in arms, legs, left face neck stomach, back. it was aweful and causeing me more pain I have sufferd from siatica do to herniated disc l4/l5 s1... i also have cervical issues going on in which i will add mri, xray, ct scan reports.. in the summer when hot my energy is completley sucked out of me. I get sick feeling in hot areas..I have facial flushing at times. My legs feel like they could buckle at times, i walk as if im drunk banging into things. There hasn't been a day that i havent felt pain or something is "asleep" i get pin pricks

    There isn't a day that goes by that i am not suffering with pain, uneasiness in walking, burning in feet, now starting in hands, sciatic pain starting up . Hip bone , pelvic pain almost like the burning in feet. The weakness in arms & legs is scary ..I am 39 and have to prop my plate when eating, cant hold a hairdryer,clothes racks in stores my arms fatique severly. This is scary,. I walk like a much older person. Symptoms are crazy . Numbness,fatique,urine leakage,pins needles,creepy crawlies,burning,cramping,twitching,head aches,feels like someone has a voodoo doll on ya and really hates ya.

    I was diag w/Fibro from Rheumo

     
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    Old 09-23-2011, 03:02 PM   #2
    MSJayhawk
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    Re: MS? weakness on left side, burning ringing ears

    How may we help you?

    It appears that you have neurological problems and I can empathize with your predicament because I have felt the same things you are feeling and some of the pains you describe are happening to me currently.

    You have a test on Tuesday. I suggest that you try to remain calm and avoid stress. An MRI may appear normal the first time because there may not be enough to see. Lesions are quite small and early scans may not pick up on the lesion.

    I would ask for the VEP (Visual Evoked Potential) test. It is quite sensitive. Before the advent of the MRI, MSers were still being diagnosed. If your neuro or doctor is relying solely on the MRI, run, crawl, roll, or hobble away as fast as you can. Your neuro or doctor should be following the Revised McDonald Criteria.

    You may not be able to do much with your daughter right now, but just being part of her life is important. You are blessed to have caring parents.

    If we can help you with words or knowledge, please ask. I am happy to lend you some support. For my pain in my lower body, I use a heating pad at the site of the pain. For fatigue, I rest. For headaches, I have my Dr. Pepper and an occasional Dark Chocolate. For activities, I learned to crochet my first time in rehabilitating my hands. In 2002 I built Legos with my 3 year old; now I chaperon him on campus.

    You have a bright future ahead of you. Though the road appears dark and foreboding, please know that there are more good days and good memories ahead than the bad.
    __________________
    MS diagnosed since October 3, 1982
    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

     
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    Old 09-26-2011, 01:59 AM   #3
    Yolanda72
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    Re: MS? weakness on left side, burning ringing ears

    Quote:
    Originally Posted by MSJayhawk View Post
    How may we help you?

    It appears that you have neurological problems and I can empathize with your predicament because I have felt the same things you are feeling and some of the pains you describe are happening to me currently.

    You have a test on Tuesday. I suggest that you try to remain calm and avoid stress. An MRI may appear normal the first time because there may not be enough to see. Lesions are quite small and early scans may not pick up on the lesion.

    I would ask for the VEP (Visual Evoked Potential) test. It is quite sensitive. Before the advent of the MRI, MSers were still being diagnosed. If your neuro or doctor is relying solely on the MRI, run, crawl, roll, or hobble away as fast as you can. Your neuro or doctor should be following the Revised McDonald Criteria.

    You may not be able to do much with your daughter right now, but just being part of her life is important. You are blessed to have caring parents.

    If we can help you with words or knowledge, please ask. I am happy to lend you some support. For my pain in my lower body, I use a heating pad at the site of the pain. For fatigue, I rest. For headaches, I have my Dr. Pepper and an occasional Dark Chocolate. For activities, I learned to crochet my first time in rehabilitating my hands. In 2002 I built Legos with my 3 year old; now I chaperon him on campus.

    You have a bright future ahead of you. Though the road appears dark and foreboding, please know that there are more good days and good memories ahead than the bad.
    WOW tHANK YOU SO VERY MUCH FOR RESPONDING TO MY VERY LONG POST. i can't believe i was finaly able to get it posted.. It is so nice to talk to someone who truly understands... I miss Painting so much and am now using a here we go cant think of the word.. ummmm this can be really fustrating and imbarrasing.. still thinking...... oh yes Im using a walker with wheels it helps A lot.

    Funny thing u mentioned the eye test thing.. about a yr ago when all this started i went to my ENT DR and he did a test where i had to follow a red light and it came out that I couldnt follow to the right, DELAYED REACTION. I noticed when I was in the er for severe jerking mostly on left , kinda like a slow seasure. when the Drs asked me to follow there finger It took a second to do that I noticed it. I should get this test done again????

    for im a lot worse now, home bound and its no fun, I was very active in my church, facilitating groups and celobrate recovery classes. it made me happy to be making a difference in someones life yano? now I cant even shower without a shower chair and sometimes on bad days with assistance.

    if I sit too long I get the siatica type complete lose of feeling//numnbness but severe radiating pain to foot. then Im stuck in bed where I really dont want to be. I WANT TO LIVE MY LIFE!!!! all I get from my pcp is its all in your head, your not in pain and ur mri is normal... same way i was treated at the hospital. even told I was FAKING THE JERKING AND ALSO TOLD i WAS FAKING MY WEAK REFLEXES IN LEFT FOOT AND ARM... IS THAT EVEN POSSIBLE????????????.

    I have noticed the ringing gets worse when i bit down, clench my teeth. does anyone else have that? Iv recently been told to get checked for lyme. by a friend who has it. she seems to have the same things goiung on EVEN THE L4/L5/s1 and C3/34/ 5/6 deginerative probs but not the stenosis. is this all connected? I have also noticed my body jumps with loud noises and I cant stop it?? again imbarrasing .

    I am making an appoinment finally with a neurologist . Im gonna do that today but im told it may take yrs for the right diagnosis. im scared, nervous and afraid of being told there is nothing wrong with me when there clearly is... for now all im diagnosed with is Fibromyalgia and this sure dont feel like fibro. jerking twitching, slurring, stuttering, face numbness tingling in face, head and pins and neddles.. hmmmm please pray that I get some REAL ANSWERS. And thank you so much for your help. I really do appriciate it... Oh I mentioned befor that the hospital gave me suliments, they said my patassium was low and gave me supliments and also foic acid could this be related?/ also I got my own copy of my blood work and it has some places where it says H or L im guessing high or low nect to the result? well i looked up my creatine kinase that had an H next to it 160H was my level. Is this high. I researched what it means, it has to do with the breakdown of muscle getting into your blood stream that only happens with people who have auto imune diseases? like ms, lupus, lyme. any help would be appreciated?

    Last edited by Yolanda72; 09-26-2011 at 02:13 AM.

     
    Old 09-26-2011, 07:27 AM   #4
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    Re: MS? weakness on left side, burning ringing ears

    No worries.

    If you have not yet had a blood test for Lyme, please get one. It is important to treat Lyme as early as possible to lessen the chance of permanent disability.

    In the meanwhile, you should certainly book an appointment with a neurologist who deals with MS. There are many neurologists who specialize in different aspects- look for Multiple Sclerosis.

    The "follow-the-_____" test is a very basic test for your eye movement. The best test is the VEP (Visual Evoked Potential. They attach wires to your head (non-invasive) and you then concentrate on a target on the screen. They test each eye separately. This is a very sensitive test and can pick up information that might not yet indicate on an MRI.

    You would, of course, need an MRI with and without contrast.

    Read about the Revised McDonald Criteria for the diagnosis for MS. Because Lyme is quite possible, get your blood tested. There are over 400 diseases which present with MS like symptoms. Your neuro can help whittle them down. The blood test is important too in order to whittle down those which are blood borne.

    I would recommend that you keep painting because it can be therapeutic and help you get through your crisis. Delegate or share the recovery group work at your church. Sometimes we have to sit back and allow others to step forward and assume our roles. There is nothing wrong with saying I need help. LOL, that is part of my daily prayer!

    The shower chair is a blessing indeed. When I finally got a shower that I could sit in, it was like heaven.

    Let go and Let God. You are blessed to have your parents help you.

    Perhaps you can help your daughter develop painting skills? When I crashed downward in 2002, my 3 year old and I spent hour building Legos. I fell asleep often, but I would always awaken to him building again. Parental presence is important and children rarely judge. My sons remain an important part of my life even though both are now in college. I am on campus each day with my youngest and I maintain my cognitive exercise as a result. Some of his course work is beyond me, but I know my presence is important to him. My oldest was 11 in 2002 and he has assumed many of my chores. There is nothing wrong with asking for help.

    You may notice that as you get tired or when you have done many things or activities that symptoms seem to worsen. You need to take time to prioritize activities and maintain your energy reserves. When you have consumed everything in your reserves, it takes some time to recover.

    You might also look at possible triggers- if it is MS. Stress and anxiety are big triggers for most MSers. There are many controllable triggers. If you can actively avoid these trigger, life can be nice.

    If you have MS, your life does not end. You will continue to be "mom" and eventually "grandma". Count your blessings each day. I found that even when I was bed ridden from the seizures I could still find many blessings to count. To this very day I know that I lean on God all the time. He has never failed me yet!!

    It can take time for a diagnosis and it may require the patience Job. You will get the answers you need.

    You are in my prayers.
    __________________
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    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

     
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    Old 09-27-2011, 03:31 AM   #5
    Yolanda72
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    Re: MS? weakness on left side, burning ringing ears

    Thank you once angain you are dead on with so many things, actually my daughter has become quite the artist although I may have been laying proped up on bed or couch. we read the Bible and study her homework together on good days I may even be able to get outside.

    My Daughter and I are both soldiers of the Salvation Army in our town . something else I have not been able to do I miss it so much and I miss my womens ministy friends and church Family. We do however have an online prayers meeter for our core so I can keep in touch on a daily basis with them.

    I pray all the time and not just for myself and my family but for many others as well. I do have some of my church family come visit and call me, KEEPS ME GOING..I always try to see the positive in everything, EVEN THIS! Sometimes you just need to hear from other who are having the same problems and I thank you from the core of my soul for your responce and kind words and advice.

    I wrote this letter to my next Dr because I was told it was psycho semantic meaning...Urban dictionary states "When the meaning of a word is largely the result of one's own imagination".

    this was my PCP who told me Im not in Pain and I was faking the twitching and jerking. HE SAID MY MRI WAS NORMAL???????, while I was in the hospital for three days the neuro surgeion came in and ordered a neck brace saying I had a significant injury to my neck for he had read my ct scan and xray results form a week prier.

    I was also told I had low pattassium and folic acid? was given supliments, I could not pee/ empty my bladder all the way as the did check when I went to the bathroom they would use this doppler thing to see if my bladder was empty and it wasnt. the was like 6 hundred something # left in there.

    well altogether I saw maybe 6 DRS in those three days while being given interveiniously Pain meds becase my left leg, stomach and neck, head and arms were jerking so bad It was cause severe pain in the l4/l5/s1 area and my cervical c3/c4/ 56 area. my muscles were involuntarily contracting pulling my head downward to the left.

    mind you I have a neck injury.the last Dr Im not sure who he was came in while friends from church were with me praying and my family and healthcare proxy- godmother was also there.

    The Dr says WHAT ARE WE HAVING A CONVENTION in a very rude way says everyone needs to leave, even the lady changing /emptying my cathoter said how rude was thart? so He say you need to leave to, To my health care proxy and I said I need her here and she also said she is hard to understand and i know what she has been going through and can help answer questions.

    HE SAID I DONT CARE IM SURE I CAN FIGURE OUT WHAT SHE IS SAYING. hE SAID YOU NEED TO LEAVE. SHE AND i BOTH SAID Nicely no. he says fine then I wont asses her then rudly saying byeeee like a TWO YEAR OLD seriously.

    all the sudden they took out my cathitor, took away my pain meds, and the nurses were becoming so rude even cruel twards me and this is not in my head.. remember my God mother a well respected women who runs 5 group homes with the disabled and menatlly ill was still in my room.

    so anyway here comes A psychiatrist WHY??? Well I take savella, lyrica for fibromyalgia and remron for sleep as well as zoloft I was still taking after losing my bay three yrs ago. I never went off of it. so yes in the past YEARS AGO I was DEPRESSED AND THEY HAD THAT ON FILE.

    I am the most positive person I know. Im the one everyone comes to needing advice... I have a letter from my counslor, my pastor, my daughters/ family counslor.. believe me in no way am i depressed im in pain and confused about whats happening to me but at the same time I give it right over to God ...

    I feel like I was being treated like I was crazy because I was on all these antidepresants. they wouldnt even listen to a word I had to say when I could talk and not stutter or slur. everytime I would try to say look I FACILITATE GROUPS ON DEPRESSION, ADDICTION/ ABUSE VICTOMS. HE WOULD LOOK OVER THE MY GODMOTHER AND SAY is this true??????? omg I just couldnt take it anymore, i signed out ama on a friday and then went to my pcp on monday IV ALREADY TOLD YOU WHAT HE SAID TO ME.

    He also said therer was never a neck collar ordered??? and no mri of my neck ordered by the neuro sergion in the hospital when he said it in front of so many people. and even the nurses kept saying your colar should be up here soon... anyway sorry for rambling. I HAVE WRITTEN A LETTER TO GIVE TO MY NEXT DR, whom ever it may be, neurologist, neuro surgion........ LET ME SHARE IT WITH YOU AND YOU TELL ME WHAT YOU THINK?

    ***MRI OF THE CERVICAL SPINE on 9-2-20011***

    There is straightening of the cervical spine.

    There is moderate disc space narrowing at C3-C4 WHERE THERE IS ASSOCIATED CHRONIC VERTIBRAL BODY SPURRING.

    THERE IS ALSO mild vertebral body spurring anteriorly at c4-c5 and c5-c6, there is moderate to severe bony foraminal norrowing on the right atC3-C4 and there is moderate bony foraminal narrowing on the left at C3-C4

    CHRONIC DEGENERATIVE and or post tramatic disc disease primarily at C3-C4 there is associated foraminal narrowing which may be significant. correlation with physical findings is recommended.

    CT OF CERVICAL SPINE...
    There is degenerative change on the cervical spine which is most ssevere at C3-C4 with moderate loss of disc height and broad posterior spondylosis and uncovertebral joint hypertrophy with osteophyte encroachment upon the bilateral neral foramina.

    Additionally, there is resultant Moderate to Severe narrowing of the spinal canal.

    MRI OF THE LUMBAR SPINE...

    L4-L5 There is disc desiccation Along with, mild loss of disc height. approximately 1mm of grade 1 retrolisthesis.

    There is a SHALLOW DISC BULGE Along with mild posterior EPIDURAL FAT.

    There is FACET ARTHROPATHY.
    There is mild NARROWING OF THE THECAL SAC.
    There is mild NARROWING OF THE NEURAL FORAMINA,LEFT GREATER THAN RIGHT.
    ***L5-S1:.. There is "DISC DESICCATION" Along with "MODERATE" LOSS of DISC HEIGHT.

    Again, seen is approximately 1mm of grade 1 retrolistheses.
    There is a small RIGHT PARACENTRAL DISC PROTRUSION.
    Thecal sac appears patent.
    There is mild right posterior CORNER SPONDYLOSIS.
    There is "FACET ARTHROPATHY".
    There is minamal narrowing of the right neural foramen.
    The left appears patent.

    MY hISTORY... L4/ L5/S1 PROBLEM Started at the age of 18 after many, slips and falls going down multible out door flights of stairs coverd in ice. I was wearing heals and just moved to Ma From CA. Never knew ice or snow. and no I did not sue anyone!!! It was my own fault and I am not trying to sue anyone NOW nor AM I looking for proof for work A related injury, LET'S MAKE THAT VERY CLEAR...

    At present.. just simply looking for the CAUSE and treatment options of the issues discibed below.It would be GREATLY appreciated if you could please take the time to read this...

    I fell on my buttocks many times IN The winter of 1991? causing the problem in the lumbar region. I have bouts of siatica with foot drop on accasion. left leg, buttock, calf, thigh,foot pain raidiating or shooting in some cases, along with heat sensations, some pins and needles in certain areas along these places and bottom and foot pain.

    weakness in leg and foot along with novacaine numbness has progressed severly to the present time.

    I have been to the pain center seeing Dr. Gannon whome diagnosed me with Sacrailliits? spelling... my hip clicks, and also clicks in lower back.

    I saw him for a period of maybe 6 month with injections into my facet joints along with PT upstairs from the pain center. I told him of my bouts with SIATICA he didnt seem to want to hear that I had siatica even though I had documented Foot Drop in the past and the pain went from my back to both right and "mostly left" buttocks to thigh on right but all the way down to foot on "left".

    Treatments tried... PT, Aqua theripy,steriod injections and pill form, pain meds anti inflamitories, muscle relaxers which did help on accasion..But always got worse when PT stoppped. spinal injectons, epidural, and more PT. spinal minipulation, ice heat tens unit, I WOULD LOVE TO HAVE ONE AT HOME? stretching exercises, more PT and more and tylenaol, advil, alieve,muscle relaxers. predisone which worked sometimes with combo of meds.
    but for the most part, none of them even touch the pain Im feeling.
    I have had percocet, vicoden, codiene 3 and 4, tramidol ext....
    The only pain med that took most of the pain away was percocet but this is "NOT GOING TO FIX THE PROBLEM". I AM WELL AWARE OF THAT!I AM NOT HERE ASKING FOR PAIN MEDICATION IN FEAR OF NOT BEING BELIEVED THAT "I AM" TRULY IN CHRONIC AND SOMETIMES SEVERE PAIN. I am here asking for tests to pin piont my exact problems in the spine, ligaments, nerves, muscle ext... I am in TRUE PAIN!!! I JUST NEED ANSWERS AND TREATMENT OPTIONS???? MYLOGRAM AND A DISCOGRAM COULD BE VERY HELPFULL as you well know.. IN DIAGNOSING WHERE THE PAIN IS COMING FROM.???
    I have had a mylogram 20 years ago SHOWING ABNORMABILITIES, LEADING TO MY SSI. Done at milton hospital and dr latchaw was my back dr at the time. since i have not had a back Dr.

    I have been told that there is NOTHING WRONG WITH ME AND THAT IT'S IN MY HEAD EVEN THOUGH I RECIEVE SSI FOR THE LUMBAR ISSUES, SIATICA, FOOT DROP..EXT.. as you well know is very hard to get if there is NOTHING WRONG WITH YOU!!! THIS ALL IS MUCH WORSE NOW AND IM TOLD ITS NOTHING!? BUT THEN AGAIN TOLD HAVE WEAK REFLEXES ON LEFT ARM AND LEG??? Im clearly confused SO, PLEASE COULD WE KINDLY GET SOME TEST DONE TO SEE WHAT "IS" CAUSING MY PAIN, NUMBNESS,BURNING SINSATIONS,FALLING ASLEEP FEELINGS, SHOCKING PAINS, DULL ACHEY PAINS, PINS AND NEEDLES.SHOOTING/STABBING PAINS, LOST OF FEELING IN SOME AREAS, AND IF I SIT TOO LONG "COMPLETE" LOSS OF FEELING IN LEFT FOOT AND LEG WHERE I CANT EVEN WALK WITH MY CANE BUT NEED ASSISTANCE GETTING TO THE BED FROM CHAIR? I DONT ENJOY THIS AND CERTAINLY DONT ENJOY LETTING MY LITTLE GIRL OR CHURCH DOWN. FOR MOST...WELL... IM sure they would have lost thier mind by now but God keeps me strong in that area and gives me what I need to keep on keeping on.... its my BODY THAT DONT WORK RIGHT..LOL NOT MY MIND.
    Im at peace, no stress except feeling a bit unheard but with no harsh feelings. I just want answers. If you took the time to know me . you would know I am clearly not just making this up..

    I have had MRI, CT SCAN, X RAY AND EMG all that I have provided to you. You are my last HOPE for help at alieviating my chronic severe pain both in my neck, shoulders, arms hand, back, thighs, calf leg and foot PAIN. I can not walk without a cane and can not stand for long at all. I cant sit for long either. I cant find a comfortable position in bed and definitely can not sit on a hard surface. whatever I do weather sitting, laying or standing Im in chronic pain. AGAIN, I AM NOT HERE SEEKING PAIN MEDICATION!!!! I am here for the right testing such as a mylogram, and mostly a discogram. these tests as you well know will confirm where the pain is comming from exactly. Also I am not looking for anything to do with workmans comp. For I am on disability and have been for 14 years do to my L4/L5/S1 Siatica, foot drop issues. I am honestly here for answers and RELIEF from the pain that keeps me from my life. Although I live in pain and can barely walk without a cane I am a very faithful Christian women who on a daily bases looks to her God for mental strength and support to deal with being stuck unable to do the things I love most, such as Playing with my daughter PHYSICALLY, pAINTing, ATTENDing MY CHURCH, attending and volunteering church and school activities. FOR A MONTH NOW I HAVE BEEN PRETTY MUCH HOUSE BOUND AND ITS NOT FUN..LOL.I AM A VERY ACTIVE MOTHER OR AT LEAST WAS...

    I am A SOLDIER OF THE PLYMOUTH CORE Salvation Army. this is where my life is focused around AND OF COURSE MY CHILDREN. I have been able to help many people in my work there, i FACILITATE GROUPS FOCUSING ON THE POSSITIVE AND DEFINITELY NOT THE NEGATIVE REGAURDLESS OF WHAT LIFE THROWS YOUR WAY INCLUDING MY PRESENT ISSUES WITH MY BACK.

    This neck issue caused everything to go south.... I am VERY SANE WOMEN. and have with me and if asked documentation of this along with my enrollment into The Salvation Army and my dedication to my core. I have a written letter from my pastor that discribes who I was "PHYSICALLY" until.... this neck issue that got worse after my left leg giving out on me and falling more than 3 times in a 4 month period.

    Cervical region... started many years ago with pain on accasion but nothing like this!!!. three yrs ago my pinky finger on left kinda felt like it was injected with navacaine. some pins needles felt in fingers. it has only progressed from there with left arm pain and shock feeling below elbow, kinda like a toothache in the shoulder arm and hand areas.
    this really hurts, just like the thigh and leg pain!!! this went on for over 3 years. No Dr seemed to care much about it. although he did say it was a name i can not remember something like a pinched nerve could be from my neck or not.

    My arm fell asleep at night with severe radiating Pain down arm into hand.
    RECENTLY.. this neck- arm issue has gotten worse after my left leg giving out on me and falling more than 3 times in a 4 month period. the last being a bit over a month ago. I woke up with a stiff neck that I thought would get better with motrin and ice AFRAID OF GOING TO PCP Thinking he would again say its nothing or in my head. So it has just gotten worse with pins and needles in fingers, radiating, BURNING, pain from my neck to my hands. only half way dowm my right arm though but completely all the way down on left.
    I write this because a year ago I had some tingling on the left side on jaw/face and up to head, with confusion, Slurring my words blurred vision, off ballance while I was in class where I could not comprehend what was being said and sent to the ER. where the ER DR said sounds like a stoke/tis? but didnt show on mri.I HAD SENSITIVITY TO LIGHT SO BADLY WITH A HUGE HEADACHE. i WAS GIVEN MOTION SICKNESS PILLS AND MIGRANE PILLS. I was tested many years ago for mineres dissease ? spelling.. at milton hospital.because of severe vertigo attacks and balance issues.. 15 yrs ago maybe? my primaray at the time was Dr ............. after testing I was told I had it and given meclizine? spelling.. so have just lived with being off ballance, nausious, dizzy ringing in ears ever since...

    so AGAIN.. I would never be able to remember all of this without writing it. I stutter and slur my words, get numbness in my ear and tongue and often forget my train of thought. I twich a bit and dont know why but it gets worse when i move around or get nervous/ exited?

    so It would be very hard for me to "SAY" this to you. This has gone on for a lil over a year now cause unknown until i see a neurologist.

    I saw my ent dr, because of involuntary swallowing/or breathing in, while eating causing choking/ balance issues following this stuttering slurring,memory confusion, numbness tingling on lft side of face and tongue thing and also my voice changing with ongoing lyringitis? spelling? and breathing noises mostly at night. waking up gasping for air or being told by family YOLANDAAAAAAA BREATHHHHHH!!!.

    he also orderen a meneries testing. the test only showed the inabilty to follow that red light to the right but left was ok? not sure what it was called. ENT dr durantie in plymouth orderd this.

    It all seems to be intensified after this neck thing. Im severly off ballance bumping into walls, ears are ringing so loud and the ent sent me for an MRI TO LOOK FOR MS??? But brain looks good. I do know however that a spinal tap along with my history and certain tests by a neurologist is needed a diagnosis.. not that this is what i want!!!! trust that!!!!

    dont know who to turn to as my pcp whom Iv seen one time seems to think im nuts..lol so maybe , hopefully you CAN TAKE THE TIME TO READ THIS AND ANY DOCUMENTS/ LETTERS YOU MAY NEED TO GET A BETTER VIEW OF ME. THE PERSON WITH A HEART AND SOUL I WILL PROVIDE TO YOU UPON REQUEST.

    YOUR MY ONLY HOPE at this point SO I hope and pray you will take the time to evaluate EVERYYY THINGGG!!! THANK YOU


    Yolanda 9/23/11

    Last edited by Yolanda72; 09-27-2011 at 03:37 AM.

     
    Old 09-27-2011, 03:48 AM   #6
    Yolanda72
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    Re: MS? weakness on left side, burning ringing ears

    BTW oh my goodness u were so right about the shower feeeling like heaven boy... and Funny that you mentioned doing too much when Im feeling a bit better. I did that two days ago, decided t6o clean and fold and such, i wound up in bed all day yesterday could not keep my eyes open and the pain in my body was so bad I couldnt even roll over to take my daily meds. I had no appitite at all. and still feel like I have a basket ball under my rib cage its kinda painful. have u evcer felt this? your an angel, I thank you so much for ur support.

     
    Old 09-27-2011, 07:57 AM   #7
    MSJayhawk
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    Re: MS? weakness on left side, burning ringing ears

    Keeping your mind active is indeed important, but even your mind needs to rest because it can use up energy reserves. My speech will start slurring and stuttering when I am approaching low energy reserves. I go into my "fortress of solitude" to recover. My service dog can sense this period, too, and will rest with me even ignoring his meal.

    I taught my youngest from my bed. Keep up our efforts.

    As to doctors, you will meet many who do not mesh with you. When my mother was in ICU there was a doctor who told us it was a waste of our time and she should be shipped off to a nursing home. I took that doctor aside and told him what I thought of his attitude and then I told the hospital that he would not be permitted near my mom or in her room. The other doctors were not that way and my mom got to go home where she is today. Do not let one doctor put you off.

    As to the psychiatrist, depression and anxiety can cloud a diagnosis for MS because the effect of depression and anxiety can present as though you have MS. Many doctors do not understand fibro yet alone, MS. This is why specialists are your best bet, I believe. Granted, there are many terrific doctors who have the wherewithal to recognize different diseases, but there are many, I believe, who are myopic. Even among neurologists there are differences. Neurosurgeons and neurologists are different too. A neurosurgeon is well trained to do fine surgery, but MS does not have a surgical cure.

    You have fibro as well as spurring and disc problems. These have to also be eliminated as potential sources for symptoms. Also your meds have side effects. It will take some time to sort things out, but you can get through this. It appears that you have loving parents and trusted friends from church. I would consider you to be richly blessed.

    I can go through cycles of no appetite or periods when only a certain food can be handled. You described a "basketball under your rib cage". Was this pressure pushing outward or squeezing inward? If you have MS, there is the infamous MS Hug. It can be quite strong, but it too passes.

    Do what you can do each day and stop before you go too far. If your limit is 10 things, do not do 11. On a bad day for me I am lucky to do one thing, but each day I try to work back to my "normal" list of things. I would start with prioritizing your list and then divide it into another priority. If you can do 10 things well or 20 things not too well, focus on the 10 things you can do well in doing. As you get better, then add to your list. Add and subtract from the list each day to keep within your limits. It is important to rest so that you can recover. This is the only way you will be able to help others directly outside of your prayers.
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    Old 09-27-2011, 08:36 AM   #8
    Yolanda72
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    Re: MS? weakness on left side, burning ringing ears

    Quote:
    Originally Posted by MSJayhawk View Post
    Keeping your mind active is indeed important, but even your mind needs to rest because it can use up energy reserves. My speech will start slurring and stuttering when I am approaching low energy reserves. I go into my "fortress of solitude" to recover. My service dog can sense this period, too, and will rest with me even ignoring his meal.

    I taught my youngest from my bed. Keep up our efforts.

    As to doctors, you will meet many who do not mesh with you. When my mother was in ICU there was a doctor who told us it was a waste of our time and she should be shipped off to a nursing home. I took that doctor aside and told him what I thought of his attitude and then I told the hospital that he would not be permitted near my mom or in her room. The other doctors were not that way and my mom got to go home where she is today. Do not let one doctor put you off.

    As to the psychiatrist, depression and anxiety can cloud a diagnosis for MS because the effect of depression and anxiety can present as though you have MS. Many doctors do not understand fibro yet alone, MS. This is why specialists are your best bet, I believe. Granted, there are many terrific doctors who have the wherewithal to recognize different diseases, but there are many, I believe, who are myopic. Even among neurologists there are differences. Neurosurgeons and neurologists are different too. A neurosurgeon is well trained to do fine surgery, but MS does not have a surgical cure.

    You have fibro as well as spurring and disc problems. These have to also be eliminated as potential sources for symptoms. Also your meds have side effects. It will take some time to sort things out, but you can get through this. It appears that you have loving parents and trusted friends from church. I would consider you to be richly blessed.

    I can go through cycles of no appetite or periods when only a certain food can be handled. You described a "basketball under your rib cage". Was this pressure pushing outward or squeezing inward? If you have MS, there is the infamous MS Hug. It can be quite strong, but it too passes.

    Do what you can do each day and stop before you go too far. If your limit is 10 things, do not do 11. On a bad day for me I am lucky to do one thing, but each day I try to work back to my "normal" list of things. I would start with prioritizing your list and then divide it into another priority. If you can do 10 things well or 20 things not too well, focus on the 10 things you can do well in doing. As you get better, then add to your list. Add and subtract from the list each day to keep within your limits. It is important to rest so that you can recover. This is the only way you will be able to help others directly outside of your prayers.


    .... You are truly a Blessing to me right now, you seem to have all the answers iV needed. I have felt so very a lone in this until you came along. as for the medications I have not been on some of them since the hospital, seeing that they thought I was nuts I have slowly lowerd my zoloft to 25ml from 200 ml. and no longer take the remron for sleep, no big deal cause it didnt help anyway..lol Im taking 75 ml of lyricatwice a day that i ACTUALLY JUST STARTED AFTER THE HOSPITAL and i take savella100 ml twice a day both for fibromyalgia.Im trying to get completely off of the ZOLOFT WHICH IS FOR DEPRESSION So I cant be judged by taking an anti depressent. I am always positive and have come so far in my life, iv overcome mnay trials and still walk with my head high. I unnderstand that sometimes were tested by god but other times satan can try to turn you against and question God. and I believe this is definitely satan. NOTHING WILL EVER TAKE ME AWAY FROM MY GOD I have never been closer to my Father. so satan can throw his blows but its not gonna work with me. I TRUST MY GOD. He came and took ALL my burdens, guilt, depression,shame and made it disapear, seriously. when I called upon him he BLESSED ME IN A HUGE WAY and I have continued to folow and trust him every single day. my point.. I dont come across as depressed. I come across as a normal person confused, scared and in pain looking for answers yano/ as for the basketball under my ribs thing its like, hmmm very hard to discribe but i will try. A full feeling, tight feeling, when I take a deep breath its uncomfortable. it feels like its squeezing but also pushing outward?

     
    Old 09-27-2011, 08:39 AM   #9
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    Re: MS? weakness on left side, burning ringing ears

    as for wht that dr said about your mom??? grrrrr thats what I mean its crazy how these drs think they are God. Im sorry for all that your dealing with and appreciate EVERY SINGLE TIP you are giving me. thank you...<3

     
    Old 09-27-2011, 09:44 AM   #10
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    Re: MS? weakness on left side, burning ringing ears

    Your rib pain sounds like an MS Hug. You might try cold compresses or warm compresses to see if that lessens the hug.

    If you see a good neuro, he may want you to continue Zoloft just to eliminate any possible depression connected symptoms. Ignore those who think you are nuts. Depression affects many people and a large number of MSers. Because of the nature of depression in exhibiting MS like symptoms, I would remain on the Zoloft until you meet with the neuro. If you are on Zoloft and have been for sometime, the neuro would be able to better diagnose your condition in an unbiased fashion because the depression variable would be eliminated.

    You want to be able to advocate for yourself with the MS specialist. They are there to help you determine your ailment. With any luck it is not MS. It certainly requires the patience of Job!
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    Old 09-27-2011, 12:53 PM   #11
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    Re: MS? weakness on left side, burning ringing ears

    thanks again your awesome. REALLY I almost thought I was going nuts..lol btw the dark chocolate does help. hahaha at least I think it does... lol
    Ice sounds good for my ribs right about now and when u said u could only toerate a certain food I was like WOW That is JUST HOW I FEEL. Good luck to you and you will be definitely in my prayers Im sure u will be hearing more from me.

     
    Old 09-27-2011, 01:21 PM   #12
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    Re: MS? weakness on left side, burning ringing ears

    The dark chocolate and Dr. Pepper were both used in a study of MSers in Oklahoma. Actually caffeine from your favorite beverage will help with MS headaches. I am partial to my diet Dr. Pepper. It melts away the headache quite rapidly for me. The dark chocolate has helped a lot too when I get certain headaches.
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