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I think I have a diagnosis, but ?

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Old 07-31-2012, 08:39 PM   #1
Join Date: Jun 2012
Location: Seattle 'burbs
Posts: 6
jrd302 HB User
I think I have a diagnosis, but ?

I've only posted a couple of times before when I was first starting testing. I started having symptoms about 8 months ago, and if you plotted my symptoms, you could draw a line graph type thing where a new symptom would pop up every few weeks until the end of May, then they started kind of tapering off very quickly except I still can't focus for anything, have a hard time communicating/finding words that I want to use, and I have some numbness and tingling in my legs to the point where it is almost painful. Plus slight vision issues but it is real hit and miss, maybe one day a week or so will I have issues with vision.

I had a brain mri with 1 lesion, c-spine with 4, t-spine with 1. None of the mris were done until the end of May. I had a LP a couple of weeks ago. IgG is elevated and I have 22 o bands. There were none in my blood.

My neuro told me yesterday MS, but she isn't an expert, she tried to blow me off after the brain mri only showed 1 lesion and I wouldn't let her. She kept saying the o bands being that high and the IgG being elevated both help the dx. She never mentioned anything about CIS, and I just read a blurb about it being dx for patients with only 1 exacerbation. I don't know if I need to ask about this or what. I have an appt. with a specialist at the end of next week, but feeling overwhelmed and adding this question to the mix doesn't help. Can anyone shed light to the topic at hand? Thanks a bunch!

Last edited by jrd302; 07-31-2012 at 08:42 PM.

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Old 07-31-2012, 10:07 PM   #2
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Location: Arizona, USA
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Re: I think I have a diagnosis, but ?

Thanks for the update and Welcome to the MS family.

CIS would be out of the question based on the continual symptoms you cycled through. As more than 2 lesions were noted, this was sufficient to meet the diagnostic guidelines of the Revised McDonald Criteria. I do not think you need to see an MS Specialist unless you want a second opinion or wish to have one follow your case from here forward.

The o bands being high are probably what pushed her off the fence, but please remember that an LP is not a specific test for MS. 85% of people diagnosed with MS who have had an LP have positive results on their LP like you did.

I would meet with the specialist per your existing appointment and go bearing questions which you have. After reviewing your MRI images and your LP and any other tests you might have had, I think it will still day "MS". I think you can consider yourself out of limbo land and you can start your journey with MS. Please do not fall into a pity party trap and come here as often as you need. You are not alone.
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

Last edited by MSJayhawk; 07-31-2012 at 10:08 PM. Reason: grammatical error

Old 07-31-2012, 10:18 PM   #3
Join Date: Jun 2012
Location: Seattle 'burbs
Posts: 6
jrd302 HB User
Re: I think I have a diagnosis, but ?

Thank you so much! I thought it might be because of my continuous symptoms or the lesions, but I wasn't sure. My neuro wants a specialist to treat me, so I am going to see the specialist for that. I went to this specific neuro because one of my symptoms was headaches and my pcp just heard headaches and said the rest of the symptoms were due to stress. I would rather not be in limbo and be able to move forward with treatment, etc. So When I saw the CIS, I thought I was taking a step back as far as getting to the point of being able to get to that point. Still wading through all the paperwork and booklets, but I am sure I will be around. Thank you so much for answering me!

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