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Help with RRMS

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Old 09-12-2012, 05:07 PM   #1
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Location: Sacramento, CA
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Help with RRMS

Hello, I was diagnosed in 2008 with RRMS. I happened to wake up one day after an evening of drinking (moderately) and my left arm was tingling and numb. It has been this way ever since that morning. I spent several months working with my doctor who prescribed carpal tunnel remedies. I pressed him more and after a visit to the MRI, it was clear that I had scaring in my neck and brain. I was prescribed copaxone for the disease and Nortryptolene for the symptoms. I am finding that the Nortryptolene is relieving less and less. I have had some problems sleeping and tried Benadryl to get me to sleep. I remembered it would put me down if I had bad allergies. I puts me in such a deep sleep that I do not wake up at night and for a few hours in the morning my arm stops tingling and being numb. (I feel normal.) Wondering if this is normal? I also have problems with extreme heat and cold. I am constantly testing my limits on both. I have noticed my sensations in my left arm are super-sensitive to air being jetted onto it. It hurts. It makes no sense.
How do you know when symptoms are going beyond RRMS? Are there any guidelines on alcohol consumption. (I am not talking about alcoholism here.)

Anyone else in this boat?

Last edited by Administrator; 09-14-2012 at 04:13 PM.

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Old 09-15-2012, 02:17 PM   #2
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Re: Help with RRMS


Personally, I abstain from alcohol because I am already off balance as it is. If you are taking any medications including OTC meds, you should read the label to see if alcohol is ill advised.

RRMS to SPMS transition is typically a decision your MS Specialist (neurologist) would make. If you visit websites which discuss different MS types, they usually provide a line graph to show you the differences. Some MSers may never move beyond RRMS and some MSers may experience remission which can last for many years (no guarantee).

I too have a temperature window where I am ok. I have learned what my upper and lower limits are and try to avoid these. For example, when the temperature drops below 52 F (11.11 C) I know I will experience numb hands that can feel quite painful and my head will also feel a deep stabbing cold. I will wear gloves and a sock cap, often indoors too. It may be from autumn to early spring for me to wear these.

In the summer months I soak my hands and feet in ice cold water and this alleviates my numbness or tingling much of the time.

For some MSers, they may experience a lasting condition, such as numbness, which does not go away. This can happen regardless of type of MS.

Though females outnumber male MSers, males are the ones who most often develop into progressive MS, but again, this is purely statistics and no guarantee. In studies involving men with MS, male gender was predictive of a shorter time period before an assistive walking device was required. For example, men were quicker to need devices such as canes after diagnosis. I went 20 years before I needed a cane/crutches/power chair.....

The question of "normal", I think, is up to the MSer. What is "normal" nowadays for me would be a terrible rotten day for another MSer. I have redefined what is normal for me many times over 35 years because my benchmark changes.

Again, Welcome!
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

Old 09-15-2012, 05:51 PM   #3
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Re: Help with RRMS

I would just like to add that living where you do, in Northern California, you do not have extreme temperture changes. The fact that air streaming on your arm, causes pain, could be specifically a nerve which is sensitive and nothing more.
When you live in temps that go from 80s during the day to 30s at night, like where I live, you will see that extreme temperature drops significantly impact the way an MSer feels.

Also, benedryl and any type of alcohol are not meant to be consumed together. Even one beer, can affect the absorption of the antihistimine. It may make you sleepy, which is normal; however its not meant to be used as a sleep aide. Have you tried taking something safer, like Melatonin for helping you sleep?

RRMS- dx 05

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