It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Multiple Sclerosis Message Board

gilenya and cold sores

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 10-21-2012, 08:59 AM   #1
Join Date: Oct 2012
Location: miami, fl, usa
Posts: 2
msgmca HB User
Lightbulb gilenya and cold sores

I've been on Gilenya since Feb and I'm experiencing cold sores, one after the other. I have never had a cold sore in my life prior to Gilenya> I'd like to know if anyone else on Gilenya is experiencing this and how they are treating it.

Sponsors Lightbulb
Old 10-21-2012, 10:28 AM   #2
Join Date: Sep 2007
Location: Arizona, USA
Posts: 9,803
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: gilenya and cold sores


Herpes viruses are a concern for Gilenya users. Herpes viruses include chicken pox/shingles, cold sores, genital herpes. Your doctor should test you for antibodies to the three herpes viruses. If you take Valtrex you cannot take Gilenya due to adverse interactions. If you stop taking Gilenya, you are still susceptible to the Herpes Viruses for up to 2 months.

I would encourage you to visit with your doctor. I have read that others have also experienced cold sores or shingles.
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

Old 10-21-2012, 12:01 PM   #3
Senior Veteran
Join Date: Sep 2006
Location: USA
Posts: 12,204
MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: gilenya and cold sores

actually, The info that after you stop taking Gilenya you are suscepitble to cold sores for up to 2 months, is false. Now that you have activated the cold sore (herpes) virus in your body, you will have it forever...and can have outbreaks at any time. Its very common for the first two months that you stop the Gilenya to continue to have outbreaks regularly; however you will more than likely have these for the rest of your life...

Gilenya has warnings about this right on the packaging. This is the reason I choose NOT to start using Gilenya- and the reason that many have stopped.

The virus, which 79% of us have in our bodies, can lay dormant our entire life- using a drug like Gilenya can bring it to life....and once it is alive, nothing will make it go away. Starting an antiviral such as Valtrex, can reduce the chances of outbreaks or even spreading the infection- but if you have kisses a spouse, significant other, even child, while you have an outbreak, chances are you have passed it on to them....but it is true, if you are on Valtrex you must stop the Gilenya. You cant take them together.

This is sad news for many people. Both oral and genital Herpes is a viral infection which has no cure- and unfortaunatly is very contagious- and a life long problem. Taking Valtrex daily can reduce the outbreaks- but also has its own set of problems, and its an expensive drug. One over the counter supplement, L-Lysine, has been known to help heal cold sores more quickly- can be purchased in any vitamin or health food store. You would want to take 1000 mgs of L Lysine dailiy to help heal, or 500 mgs daily to help prevent future outbreaks.

I hope this helps...and its unfortunate, that your doctor didnt talk to you about this risk before you started on Gilenya...its extremely well documented and has been on the patient information guide since it was first released.

RRMS- dx 05

Last edited by MSNik; 10-21-2012 at 12:04 PM.

Closed Thread

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 11:47 AM.

2018 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!