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  • Hello Everyone, Possible MS: I am 26 years old male

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    Old 11-02-2012, 02:32 AM   #1
    ForsakenHawkeye
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    Red face Hello Everyone, Possible MS: I am 26 years old male

    Hello everyone i am new in the term in Possible MS and i apologize first for my bad grammar in English its not my main language but i ask of u kindly to read my experience and worries atm i have no support group or anyone who understand what im going through..so here it is.

    around agust 10 2012 i started to have my feet going into tingling mode
    then it kept going up..since i use to work as cleaning maintenance i though it was cause i over work since i use to work 6 days a week from 11pm to 7 am
    and i dint sleep well, b4 all of that i had a episode of feeling out of breath i quickly droped work and went into ER thinking something was wrong but i had 100% of my breathing capability so they say..so i just though it was cause i havent slept well cause of work i only slept like 1hour or 30min to then go back to work i only slep on me free day which basically i came out during morning, at some point when working my mind wend blank and i stoped doing my work for a second then i snapped out of it i never had that problem..

    later on on one of my breaks i ate and kinda took a short nap..but when i wake up is when i had my feet tingling and restless systom...i just though like i said it was cause i over worked and dint sleep..but days passed and it kept going up from my feet to my legs felt like my musles were tightening and hard tingling kept going to my hip.. thats when i though something was wrong with me..so i went to ER..they though it was Guillain-Barre syndrome but..all the test came back negative to that..

    they kept asking me about my health and family health issues

    my family never had ms in the past we only have in the family some minor stuff

    i was hospitalized for a week..in 3days i had a lot of blood taken out to test..

    on my 3rd day i got my spinal tap
    then 4th day i got my MRI ..creepy tunnel of annoying sound..i might say it wasn't pleasant then on my 5th day..they started to treat me with some thing called Solu-Medrol for 3 days .. every time they put that liquid into my vain i felt my hands tingling since the tingling and numbness kinda affected my hands also my right hand felt like i had arthritis couldn't take a pen well

    but after the 3 days of Solu-Medrol ..my feet started to feel well again my right one i started to feel on the touch on skin normaly and tingling.. after the 3rd a group of specialist ..neuro, psych,gastro,etc a group of ppl came and..just told me i had multiple lessions on my brain scattered they were 2mm..that they think its delimiting disease they dint mention MS at all since i was in ER and i was there w.o a health care provider..etc at some point i got moved into a room..since i could walk normal and had my balance still..i just dint have my right hand working well so they release me from hospital that i could care for my self since i could walk etc since they knew it wast the other thing..and i knew they knew something that they weren't telling me cause of how i would react..they just told me to get the laboratory result and mri results to go to a neurology clinic to continue treatment.. they referred me to it but they still dint mention ms..just some delimiting disease and some code after the word...

    so i called next day to make and appointment. i was released from hospital on September 1 i felt great still abit of restless leg systom but my hand kept improving after 2weeks i everything was normal ..so i though..around thous days on the 3rd week. one i woke up and my eyes couldn't stop moving side to side..for about 4min..i just closed my eyes till it was gone..i got up and ate something..and i felt better..(oh did i mention i was having trouble retaining the urges to go to bathroom some times it leaked at hospital)
    same thing happened at home for the first week but it went away..
    later on i had some weird feeling like my head was on fire..after that i went to sleep and forgot about it but when i woke up my head felt on fire and my right side of face..and i felt dizzy

    i also felt my lower back beating and my head beating my head move couldn't sleep well
    since they told me to get results after 4 weeks..
    i had alot bad experience ending of the month of September

    so on September 22 i went to look for all my results..
    so i got the result reading from mri and lab mri was on a cd and readings were on paper lab was only paper..like all new things in health u cant rly wait to give it to a doctor u have the urge to open the letter and look ur self..
    so i did all was fine.. except my spinal fluid and mri and they did a MS exam..
    which they never told me!..
    in thous lab result showed in reading what i strongly evidence that i had MS
    honestly i am a calm person but b4 i got my result...i started to have panic attacks and anxiety ..and was becoming paranoid looked on webpage of what possible thing could be etc.. etc.. which did no good i just became more stressed and my health went down...but support from my family was there even though they though i was fine and it was just mental for a wile till they
    saw me that i was started to be depressed and have a lot of weird symptoms and they saw me not well..so they started to support me and talking to them about how u feel made me feel better


    .. October also been weird..with the percipience of a supposedly sperm shaped thing on my eye sight on right side and bait on the left..but later on when i went to ER again..they said they were floaters..i use eye glasses for almost half of my life

    October was mostly panic stacks..and gastro problems..i had acid reflux and eyelids twitching up from my ear twitching muscle spasm and pain on my back..mostly lower back and neck and ..well all the back sometimes and ..honestly since all this happen i been burping like a lot and when i look down i feel like a current of tingling all from my neck below hand and feet ...everyday.. weird current

    i still haven't gone to my neuro clinic appointment
    cause i still dint have a primary doctor till nov 1 which i have to see to complacently refer me to the one i made an appointment to which is on nov 15..but i been on ER for a lot gastro problems..one of the doctor was kind enough to look all my results..and saw..that indeed i had Strong evidence that i had ms... so im still on the i do have ms but not on treatment cause of personal situations cause i dint have a medical plan or health care till recently

    all i hope in god that my primary doctor tells me i do have it and start treatment quickly..cause i been in ER a lot from end of sept and October..and must doctor i shown result..they said i was lucky to be found on early stages of ms.. and the doctor who sent me to a hospital with their own group of specialist i thanked her cause if it wasn't for her i wouldn't had been transferred and sent home like it was nothing

    all n all i still on the loop in not having treatment..

    and 1 day im ok the other i have a new weird feeling
    im a mellow person so having ms for me is not bad nor anything if it is ms
    well hope ms understand that i could care less about it cause im just gona continue living my life but atm is stress full since this is the first time i posted on a forum having no one to understand u in rl is painfully in the emotional expect but little by little i will do things..like finding a support group in my area etc i just hope..i wont go on w.o treatment for long time cause all of this symptoms sometimes annoys me..


    ty for reading..and hope u post of what u think etc..

     
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    Old 11-02-2012, 04:43 AM   #2
    MSJayhawk
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    Re: Hello Everyone Possible Ms im 26 years old male

    Welcome.

    As you are in Puerto Rico, I would want to make sure that there is not a tropical disease affecting you. If you were seen by an MS Specialist, probably unlikely, then you would have had tests run to eliminate other possibilities.

    As to getting a consult with an MS Specialist, mI know my first neuro used to do consults with doctors in Puerto Rico. I remember my first office appointment with him he had to finish an emergency consult in 1982 for an MS case in San Juan.

    The steroids they gave you were an attempt to reduce the inflammation responsible for your problems to present.

    Panic and anxiety are two things you cannot have or should avoid if you have MS. If you have had anxiety as a factor in your life, this too can cause MS like symptoms.

    For now you need to try to relax and stay calm while the doctors run through the diagnostic process. If you do have MS, it is not fatal. You may have difficulty in dealing with the heat, but even in Puerto Rico you should be able to do that.

    In the meanwhile, as you have questions or need information, I hope you will find yourself welcome here.

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    Old 11-02-2012, 03:45 PM   #3
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    Re: Hello Everyone Possible Ms im 26 years old male

    Hi. wow. I hope you can read English ok? And, dont worry about your English, you did well enough to understand you.

    First of all, Im not surprised that they didnt tell you they were running a MS panel on you- its the logical thing to run based on your symptoms. There is no ONE test for MS; instead they have to rule out everything else. So, you may not get an immediate answer. They already ruled out Guilianne Barre you said- thats good. MS is similar in its presentation. Other things are also similar. There are 300 diseases which look like, or seem like MS- most of which can be ruled out by blood work. Since you said they took alot of blood, probably they have ruled out alot by now.

    MS isnt fatal. For most people, the symptoms come and go- and what you described, the tingling and numbness are common. Also, eye problems are common. The SoluMedrol you were given, is a type of steroid, a derivitive of Prendisone- which is always given thru an IV, to reduce inflammation. It stays in your system up to a month, so Im not surprised that things got better as time went on, but are now returning again.

    At this point, all you can do is wait for that appointment. Find out when you go if they are suspecting MS and find out if there is a specialist you can see in PR who does only MS....there is no treatment for MS. There are medications which reduce the amount of flareups- and hopefully prevent progression- but its not an exact science. Mostly, you learn to live with the bad days and figure out if there is something that triggers them. For me, really humid weather, or too hot of a shower, can bring on symptoms. Anxiety and stress also make me feel awful.....but we cant live in a bubble. You just have to find ways to destress- like exercise, or music, or watching a funny movie- whatever helps.

    MS doesnt have to change your life. I work 50 hours a week. I have gotten 2 college degrees since I was diagnosed and am working on a third. I have kids and a family- and a home. I manage.....for each person with MS its alittle diferent; but for 85% of people with MS, its an annoyance, but nothing more.

    The anxiety and stomache problems you are having are from being afraid- which is perfectly normal. BUT you need to tell yourself that you dont know anything yet...and until you do, youre not going to dwell on it......and even if it is MS, you can live with it! You do not have to change your life...your life will not be shortened....

    Please try to breathe through all this....and yes, you found a support group to talk to about your questions and symptoms....please keep us updated on what you find out.

    Hang in there. Its scary not knowing, but knowing isnt all that bad!

    Nikki
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    Old 11-02-2012, 05:23 PM   #4
    ForsakenHawkeye
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    Re: Hello Everyone, Possible MS: I am 26 years old male

    yea i can read English perfectly just really to lazy about the commas and points and separation in the grammar aspect ..lol

    well looking at test results
    they did liver profile and blood work urine and ..well poop..lol
    and a Multiple sclerosis panel 2 test
    which on the notes said i showed on csf that it contained 5 well defined gamma restrictions bands that are not present in the patients corresponding serum sample, these band indicate abnormal synthesis of gammmaglobulins in the central nervous system. this finding is supportive in evidence of multiple sclerosis etc...etc


    so kinda read that now... i just need to show all my test result to my primary doctor..i was told by a doctor and a neruo specialist today since i had to go to er today cause i almost couldn't get up from bed and felth out of breath they dint do test tho just blood work and they found nothing wrong w me so they just told me that and sent me home since i started feeling better.

    im glad that i found this webpage..kinda feel if its ms..im not alone
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    Old 11-02-2012, 07:30 PM   #5
    MSJayhawk
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    Re: Hello Everyone, Possible MS: I am 26 years old male

    The CSF result is not a specific test for MS. It is a test to eliminate other possible causes for your symptoms.

    The Puerto Rico MS Society can help you with Spanish language materials to advise you. You should also get a copy of the Revised McDonald Criteria in Spanish which will allow you to follow your diagnostic process. Their chapter is covered out of South Florida, but you can contact them and they should be able to get you the information you need to fully understand what is happening.

    You are, of course, welcome here always!
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    Old 11-02-2012, 11:05 PM   #6
    ForsakenHawkeye
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    Smile Re: Hello Everyone, Possible MS: I am 26 years old male

    Thanks for the info i just been told about a specialist of MS in puerto rico that has a MS clinic so im glad i just found that from my kind my neighbors and a support group that if i have ms they help me w my treatment cost..so

    atm little by little good things happening btw the chaos i'm having of symptoms but i'm remaining calm and patient.

    but honestly all of this kinda happens for a reason..i kinda was going through a bad path in life had no faith in god or believes but

    honestly i been checking for my history of symptoms since i was a child

    when i was a kid i use to have epilepsy i had a neuro but my primary doctor told my mom that she say that she saw my epilepsy as uncommon that it was weird musty when they magical went away after that i never got tested and supposedly got cured..

    but wierd things had happen since then..my life never been good as a kid im the 3rd child and last, back then there were much preferency btw my brothers but its common but i really just grew up making my own belief and also glad for my mom that raised.

    i use to run when i was a kid an walk faster..but when i kept growing up my pace became slower but i can still jog and run but my walking became dragy

    after the epilepsy gone i grew up w.o problems

    but i had weird symptoms the feeling out of breath was one..it haven't happend only once ..they tough it was asthma but i always had 100% breathing they still gave me therapy as precaution.

    eventualy my grandma passed on i became stressed then year after that my uncle died he was like a father i am the person who bottles up everything and hides stress and depression all to my self

    after my uncle died i started feeling like electric shock on top of my head and always had muscle twitches after my grandma died

    ive had a lot of test but never a mri back then till now

    sometimes i couldn't hold my urine nor the other thing etc..had accidents but eventually it would be gone.

    cramps on my legs a lot also all of that happened when i became stressed cause my uncle death

    after 2- years i became OK and accepted my uncle was gone so stress was gone and i was fine..during my uncles death i also ended up having a gf who helped me a bit to over come my uncles death

    but that relationship became stressful also.. i became so stressful i am a patient person i never fought back and always wanted to give everything cause i loved her. but well we were two different person but we lasted 2 years..reason was when my father died..i became again stressful bottle up insade

    some systems came back.. couldn't retain my urine..always felt tired and slept alot never had energy in me had some tingling on my back also and feet.. i never had anxiety disorder always been calm


    after alto stress whit relationship it broke off and felt much better..after
    wile all symptoms where gone when i became better from my dad passion away and breaking off w my x-gf.

    found a job loved it but it became stress full in the end cause my family kinda drifted and had that feeling my family were breaking apart
    i became a bit depressed but dint have symptoms

    but working some how i cough a stomach virus i use to trow up
    and bronchitis same time doctor found it weird but it did go away

    after awhile i lost my job kinda became stressed but no symptoms
    but after trying to look for a job i became stress and depressed cause
    finding a job here in p.r now in days is really had i started having thous wierd twitches on muscles all over body sometimes eyes, sometimes cheeks etc but eventually i found a job

    that's is my recently job witch i had to give up cause i couldn't do the work
    i ended up working from 11pm to 7am ..it was on a pediatric hospital a lot of kids a lot of babies a lot of death i saw i had to clean around them. i started to become depressed and stressed of the work.. carrying 70-100lb of bio waste boxes etc

    when i became full of stress at work and depressed cause i couldn't slept well and sometimes i stayed awake for 5 days and work..

    And thats what when things from the first post happend

    some of this thing i never said to the doctors/and the group of specialist..
    cause ..well must of the time a person for get things to say..

    so yea that's been my life if its ms i prob had it for a wile..and i never knew MS existed so i never checked my self back then till now

    when i see the specialist neuro or ms i prob write all of symptoms i had in my past so they can read it cause sometimes i forget them and i know they are important.

    sorry that i write to much
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    Old 11-03-2012, 08:04 AM   #7
    MSJayhawk
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    Re: Hello Everyone, Possible MS: I am 26 years old male

    I am glad there is an MS clinic there.

    It sounds like you experienced a cascade of stress in your personal life and the shift at the hospital is a difficult position with much stress. All of this stress can affect even the healthiest people. For those with MS or the propensity for MS to develop, the stress is like the "final straw". Each of us has physical and physiological weaknesses.. When we have stress, we can manage some of it, but when we have too much stress, our weakest areas in our bodies will fail. Like a chain reaction, if we do not intervene, a cascade of problems will present.

    It is important for you to manage your stress levels and reduce them as much as possible, This includes environmental stress too. You can still be fully employed, but you have to know what your limitations are.

    Stay strong, I will add you to my prayers.
    __________________
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