It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board

  • Got Copies of MRI reports:

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 11-19-2012, 03:16 PM   #1
    Whimpurr
    Senior Member
    (female)
     
    Join Date: Sep 2012
    Location: Tennessee
    Posts: 294
    Whimpurr HB UserWhimpurr HB UserWhimpurr HB UserWhimpurr HB UserWhimpurr HB User
    Exclamation Got Copies of MRI reports:

    Well, I got CDs of my 2 MRIs but they don't work on my computer! *sigh* Also got the written reports that go with them but my Neuro follow-up isn't until the 28th of this month.

    From what I can tell, the same lesions were seen but apparently there were no new ones. It did state that the largest lesion was 8mm. Is that a typical size, small or large?

    The report from the MRI in June said "Several non-enhancing hyperintense white matter foci in the deep white matter of the left frontal lobe suggest a demyelinating process."

    The report from Friday's MRI said: "Stable nonenhancing T2 bright white matter hyperintesities. Common etiologies can include demyelinating disease or migrain headaches."

    Comments? Thoughts?

    THANKS!

     
    Sponsors Lightbulb
       
    Old 11-19-2012, 03:19 PM   #2
    MSJayhawk
    Senior Veteran
    (male)
     
    Join Date: Sep 2007
    Location: Philippines
    Posts: 9,816
    MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
    Re: Got Copies of MRI reports:

    My suggestion would be that you place your report back in the envelope and enjoy your Thanksgiving! You really need to go over the images with your neuro for the full picture.
    __________________
    MS diagnosed since October 3, 1982
    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

     
    Old 11-19-2012, 03:22 PM   #3
    Whimpurr
    Senior Member
    (female)
     
    Join Date: Sep 2012
    Location: Tennessee
    Posts: 294
    Whimpurr HB UserWhimpurr HB UserWhimpurr HB UserWhimpurr HB UserWhimpurr HB User
    Smile Re: Got Copies of MRI reports:

    Quote:
    Originally Posted by MSJayhawk View Post
    My suggestion would be that you place your report back in the envelope and enjoy your Thanksgiving! You really need to go over the images with your neuro for the full picture.
    Aw, come on now, JayHawk! You usually have SOMETHING to say!
    Just your opinion ... pleaaaaaaaaaaaaaaase????

     
    Old 11-19-2012, 08:42 PM   #4
    MSJayhawk
    Senior Veteran
    (male)
     
    Join Date: Sep 2007
    Location: Philippines
    Posts: 9,816
    MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
    Re: Got Copies of MRI reports:

    Because an MRI is not a specific test for MS, I would not want to tell you one thing and have it be something else. I suppose that it is like peeking at a Christmas gift early. I have often seen people who get a report and then spend hours of pain and suffering over something which was not affecting them. The best thing you can do is to relax and allow your body to get better.
    __________________
    MS diagnosed since October 3, 1982
    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

     
    The Following User Says Thank You to MSJayhawk For This Useful Post:
    Whimpurr (11-20-2012)
    Old 11-20-2012, 03:10 AM   #5
    MSNik
    Senior Veteran
    (female)
     
    Join Date: Sep 2006
    Location: USA
    Posts: 13,193
    MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
    Re: Got Copies of MRI reports:

    Whimpurr,
    Because it says Non -ehancing, that means that your lesions (scars) were not lit up on the MRI under contrast, which means they are old....and havent recently formed...and usually when they are old and not recent, they are NOT the cause of any current or new symptoms.

    Because it says stable, they didnt change from test to test

    Because it says "Common etiologies can include demyelinating disease or migrain headaches" it means the radiologist wasnt willing to put himself out there and give a specific reason for the lesion. He isnt willing to commit that they are MS type lesions OR headache type lesions.

    8 mm is large. and not indicative of MS lesions. That lesion is more than likely not caused by a Myelin attack or MS...however, that doesnt mean it cant be...its just highly unlikely. MS lesions have a specific size, shape and placement.

    Now, here is the million dollar question. When you see your Neuro- will he write you off as not having MS because the radiologist isnt sure....OR will he go over the films with you and point out the larger lesion and give you a reason for its being there? Will he show you the smaller ones and explain due to placement what this particular lesion might be doing to affect your body? As in "this coordinates with the numbness you are experiencing on the left side of your body" or "this coordinates with the gait issues you have experienced" ? A good neuro, wont read the report from the Radiologist and WILL make his or her own assumptions based on what they see.......a bad Neuro will take what the radiologist said as gospel and tell you based on someone else's opinion, whether you have MS or not.

    Pay attention to what your doctor says. Question anything you dont understand. This is your brain! Make sure you understand what the doctor is telling you. And, if he isnt telling you enough specific information, tell him you want a referral to someone better equipped to make Multiple Sclerosis diagnosis's.

    MRIs can change from week to week. What doesnt show up now could show up next month...which is why they normally do them every six months in the dx phase.......after 2 years if the MRI is still stable, without change, thats when they rule out MS in most cases. Unless new symptoms show up, there is no reason to keep repeating them indefinately.

    I hope this is good news...and that you dont have MS...but, from the little you read to us, its impossible to know which way this is going to go. Remember, not all Neurologists OR Radiologists are specialists in this type of thing, and now that you have the tests in hand; its important to make sure whoever reads them is qualified !

    Happy holidays. NOW go rest and relax because you wont get any more information until a doctor reviews those films!

    Hugs
    Nikki
    __________________
    RRMS- dx 05

     
    The Following User Says Thank You to MSNik For This Useful Post:
    Whimpurr (11-20-2012)
    Old 11-20-2012, 04:32 PM   #6
    Whimpurr
    Senior Member
    (female)
     
    Join Date: Sep 2012
    Location: Tennessee
    Posts: 294
    Whimpurr HB UserWhimpurr HB UserWhimpurr HB UserWhimpurr HB UserWhimpurr HB User
    Re: Got Copies of MRI reports:

    So what is a typical size for an MS lesion then?

     
    Old 11-20-2012, 05:07 PM   #7
    MSNik
    Senior Veteran
    (female)
     
    Join Date: Sep 2006
    Location: USA
    Posts: 13,193
    MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
    Re: Got Copies of MRI reports:

    A usual MS lesion is between 1 and 5 mm...but thats not to say it cant be bigger, it can be.....its the shape and placement which also determine if its MS related or not. My largest one is 6 mm and its definately a MS lesion....Ive been told this is highly unusual.....

    Nikki
    __________________
    RRMS- dx 05

     
    Old 11-20-2012, 05:17 PM   #8
    Whimpurr
    Senior Member
    (female)
     
    Join Date: Sep 2012
    Location: Tennessee
    Posts: 294
    Whimpurr HB UserWhimpurr HB UserWhimpurr HB UserWhimpurr HB UserWhimpurr HB User
    Re: Got Copies of MRI reports:

    I Was confused by something else you wrote . You said something like an old or inactive lesion doesn't cause symptoms? I would think that because it was a scar over a nerve that it would cause a permanent damage to the "injured" area like evenutally the black holes that can form?

     
    Old 11-20-2012, 05:28 PM   #9
    MSNik
    Senior Veteran
    (female)
     
    Join Date: Sep 2006
    Location: USA
    Posts: 13,193
    MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
    Re: Got Copies of MRI reports:

    Let me try to clarify, I can see why you are confused...(sorry!)

    Symptoms usually do not stay forever. When they begin, if they are a new symptom, they are usually being caused by an active lesion. These show up as glowing or white, or enhancing on an MRI... For most people, who have Relapsing/ remitting MS, those symptoms usually do go away eventually.....now, I have some symptoms which are my onset symptoms- the ones which took me to the ER wondering what in the world was going on with me- which never stopped. I have had numb/ tingling hand and fingers for 9 years now...those lesions are not glowing, and they are very old. The only way a black hole forms (and I have several of those too) are if you get soo many lesions in the same area, that there isnt enough brain tissue to support them...and then the dissipation of the brain tissue shows up as a black hole on an MRI. IT doesnt happen to everyone.

    Now, a NEW symptom, one which you havent previously had before, will almost always show up as enhancing....an old lesion, even if you are still having problems or pain, will not......my old lesions which caused my onset symptoms are either non enhancing, or gone by now...not because they healed but so many new lesions formed in the same place, they dissappeared and a black hole remains behind.

    You asked about permanent damage. Its a 50-50 chance that this will happen. Normally, with R/R MS, permanent damage doesnt happen....as the disease progresses, or if you have a more progressive type rather than relapsing/ remitting, permanent damage is more likely....in this case, it doesnt mean that the lesion is still active, or that the pain stil exists...it could simply be a weakness in a limb, or gait....or a noticeably slower reaction time in a reaction. Does that make sense?

    Old attacks can heal completely...leaving behind a scar/ lesion, but no symptoms. New lesions can heal completely leaving nothing behind.....or they can leave a scar with no damage....or they can leave a scar with some damage...it all depeneds on what extent the myelin is attacked...

    Very hard to explain, Im sorry if Im confusing you further....But picture a mouse and an extension cord...if you chase the mouse away before he chews through the entire thing...minimal damage...a scar for sure- but possibly the connection is still good. If he chews through it completely, more than likely permanent damage.....it can heal partly (like wrapping it in electrical tape) or completely- some damage does actually rewire itself to find another pathway (the amazing brain!) but the myelin will not repair itself, the scar will always remain behind.

    I really better stop before I confuse you further....I hope this helps alittle?
    Nikki
    __________________
    RRMS- dx 05

     
    The Following User Says Thank You to MSNik For This Useful Post:
    Whimpurr (11-21-2012)
    Old 11-20-2012, 09:20 PM   #10
    Whimpurr
    Senior Member
    (female)
     
    Join Date: Sep 2012
    Location: Tennessee
    Posts: 294
    Whimpurr HB UserWhimpurr HB UserWhimpurr HB UserWhimpurr HB UserWhimpurr HB User
    Re: Got Copies of MRI reports:

    OK, I understand now and that is pretty much what I had thought. I guess I am just concerned about having noticeable lesions but only in one tested location (brain) and no new ones since 1st MRI five months ago . Just trying to sort of prepare myself for how my next neuro appt might go. I am just afraid of being put off again and again to wait and see changes in my MRI. I asked about having a thoracic one done this time but my neuro said that you have to stay in the machine too long so they don't like to do those very often. This time though they only did my brain and did not even do the cervical spine this time since there were no lesions there 5 months ago. I just don't like feeling like she is going too slowly with the testing. AT this point I am hoping for some other form of testing like the evoked potential or EEG.

     
    Old 11-20-2012, 09:46 PM   #11
    MSJayhawk
    Senior Veteran
    (male)
     
    Join Date: Sep 2007
    Location: Philippines
    Posts: 9,816
    MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
    Re: Got Copies of MRI reports:

    It just takes 2 lesions to render a diagnosis for MS if everything else is eliminated as a possibility. If you do not have new lesions, consider it a blessing. Lesions can be caused by infections, high fever, etc.
    __________________
    MS diagnosed since October 3, 1982
    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

     
    The Following User Says Thank You to MSJayhawk For This Useful Post:
    Whimpurr (11-21-2012)
    Old 11-21-2012, 03:57 AM   #12
    MSNik
    Senior Veteran
    (female)
     
    Join Date: Sep 2006
    Location: USA
    Posts: 13,193
    MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
    Re: Got Copies of MRI reports:

    Whimpurr,
    I think you should ask about having the CSpine repeated and possibly doing the Thoracic as well. Its very uncommon to have lesions in the thoracic spine; especially with a new diagnosis, but it can happen.

    Having all 3 areas done, would keep you in the machine for a very long and very uncomfortable time..but having just the C and T spine done, is about 45 minutes....not too bad.

    Ask. All you can do is ask.

    As for what Jayhawk said that you only need 2 lesions, technically that is correct...but its 2 lesions with corresponding symptoms- AND a history and physical which shows signs of MS AND everything else has to be ruled out....tests like an Evoked potential can rule out nerve damage. For instance I told you that I have extensive numbness and tingling in one hand/ fingers...for a while, they said "Carpal Tunnel". An evoked potential test can rule that out and has - several times..we now know my numbness is a MS thing. BUT, it doesnt confirm MS, it simply helps to correlate the pain and symptoms with the disease.. which, in the end, is the way MS is dx.....

    Unfortunately for you, this is going to take some time to get to the bottom of...but on a brighter side, you wouldnt want a dx unless they were 100% sure.

    Hang tough my friend....and happy holidays to you. Im sending prayers for strength your way!
    Nikki
    __________________
    RRMS- dx 05

     
    The Following User Says Thank You to MSNik For This Useful Post:
    Whimpurr (11-21-2012)
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Is my neuro intelligent or ignorant??? tinkertot Multiple Sclerosis 1 03-02-2010 04:33 PM
    Need some answers please Toni110364 Multiple Sclerosis 14 12-29-2008 11:54 AM
    Back From Neuro, Says i have PPMS Roadworker Multiple Sclerosis 10 10-28-2008 10:30 AM
    Thoughts Please , Losing my Mind Roadworker Multiple Sclerosis 9 05-22-2008 11:31 AM
    Dr. said Brain MRI to R/O MS FLFLOWERGIRL Multiple Sclerosis 14 08-22-2007 03:26 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 10:44 PM.





    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!