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i put 2and2 together and came up with MS. my symptoms.

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Old 11-27-2012, 12:24 PM   #1
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michellejoan HB User
Question i put 2and2 together and came up with MS. my symptoms.

hi im new to this. But i hope someone can tell me im on the right track. Once upon a time there was a 23 year old girl she woke one morning with the most severe facial pain,doctors said ear infection,migrane maybe, brain tumor?.. NUP finally deciding on trigeminal nuralgia. Pain went away,girl happy.then i started to get these weird sensations like every molocule in my body was spinning and buzzing, iwould habe to astop for awhile and power back up, the feeling wasnt unpleasant, just different.. Cut forward to feeling like the muscles in the back of my right leg were to short, wouldnt stretch out. I could hardly walk. Same with neck and shoulder. Had patches especially on my head that felt like i had pulled my hair to tight in a pigtail. like a sburning spot. Then came the double vision,flashes of light in dark rooms,spots in my field of vision,and one brief momment of blindness.I also have periods when i have to get up to pee 9 times a night. Not to mention the jumpy bouncy jerky muscles,the restless legs at night,But i think my weirdest symptoms the repating of song lyrics over and over again in my head, this sounds silly i know
I forgot to mention feeling like im walking on marbles and waking up with pins and needles. Now these things come and go, i can go ages than the wack me one. Is this possibly MS? I just need to know if this sounds plausable. I sometimes think im just wired wrong or something. I mentioned to my doc and dissmissed me out of hand.

Last edited by michellejoan; 11-27-2012 at 12:27 PM. Reason: forgot to add that this started at23 im now 43

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Old 11-27-2012, 12:39 PM   #2
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Re: i put 2and2 together and came up with MS. my symptoms.


As you noted trigeminal neuralgia is indeed painful. It can be a stand-alone problem or it can exist as a subset of MS. As you are aging and the problems appear to be progressing, it sounds as though there are neurological concerns. 2 + 2 = 4 but never MS

Joking aside, your intuition is pushing you in the right direction. If you want to know if you have MS, you need to be seen by an MS Specialist or a neuro with MS experience. This will keep you in limbo land the least amount of time.

At this point it would be difficult to really know what is happening. Your symptoms might be oblivious to another doctor, but you need to keep pushing forward. Ask to see an MS Specialist or make an appointment directly.

The diagnostic process can take time because there is no specific test for MS. The doctor has to eliminate over 300 possible causes because those other possibilities can mimic MS symptoms.

Again, welcome. I hope you can get some resolution soon!!
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

Old 11-27-2012, 04:24 PM   #3
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Re: i put 2and2 together and came up with MS. my symptoms.

welcome to healthboards. Im going to take the opposite approach here and tell you that if this has been going on for 20 years, that its nearly impossible that you have MS. Without any treatment, without any drugs and without having had any actual severe symptoms, severe enough to put you in the hospital or drag you to a MRI machine- its highly unlikely that you have MS.

MS is a progressive disease- in 20 years, something would have happened which would have sent you into a state of panic. The things you described can all be neurological in nature- but MS is substantial. There is no such thing as having MS part of the time...

Now, please dont be offended but I have to ask. Did you symptom search your symtoms? If you did, and MS came up- its because its the most highly searched disease in the world. What most people do not know is that 300 diseases mimic and present like MS does...meaning that you have a 1 out of 300 chance that this is MS.

IF you sincerely feel that somethng is amiss and you want to be checked out, you absolutely need to see a MS specialist and get the testing done. You can look up the revised McDonald criteria to see what it takes to get a MS dx...based on what you told us so far- its not that likely you have MS.

But we are here whether you do or dont, for you to ask questions and look for welcome to healthboards.

RRMS- dx 05

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