HealthBoards (
-   Multiple Sclerosis (
-   -   Hi all... (

mamax3 01-30-2013 03:22 PM

Hi all...
Have been a member for a while, but haven't posted anything in a long time. Just looking I guess for some insight/support. Have been having troubles for quite some time now. Have had a few episodes in the last year or so of pins and needles/numb limbs/fatigue/balance issues/ect, ect. Have had an MRI before, and an emg (which was normal), but was done quite a while ago. Majority of the time though, it just gets brushed off. Well 15 days ago I lost some vision in my right eye, went to get checked out and they noted that I have a swollen Optic Nerve. My eye is still not back to normal, and for the past 3-4 days pins and needles/numbness has been creeping all the way up, and I keep fumbling around, and dropping things all the time. Frustrated at the moment. I did briefly see a Neurologist, and she just suggested that maybe I should go to London for further testing. They did not treat my swollen optic nerve, as they stated they don't like to unless it's really severe. I can still see out of my right eye, but it's blurry! Anyway, last night the pins/needles/numbness was so bad that I could hardly lift up my foot. Husband took me to Hospital, and I did have another MRI without contrast, just of the head, so we will see what happens. Just wondering how much of this sounds like MS. A few of the Doctors have briefly mentioned it being a possibility, but definitely have not been given any kind of diagnosis. Thanks in advance for any insight you may have to offer. And I hope this makes sense, as my thoughts are a lot more scattered then they used to be.

MSJayhawk 01-30-2013 04:06 PM

Re: Hi all...
Optic Neuritis can be part of MS or a stand-alone problem. Most doctors would treat the inflammation with steroids. With the other problems you are having. I would encourage you to seek the review of an MS Specialist rather than risk being brushed aside by a neurologist with little or no experience.

Your EMG could appear normal, but it is not as sensitive, (my non-medical opinion), as the VEP or other evoked potential tests. A proper MRI should be with and without contrast and at a minimum your head and neck (head and cervical spine). Do not rely on a radiologist to read your results. You need to have your results reviewed by an MS Specialist.

London? Since you are in Canada, I assume that this London is in Canada too? There are many MS Specialists available and you should not have to journey far. :angel:

mamax3 01-30-2013 04:31 PM

Re: Hi all...
Thank you for the response. Sorry, yes I live in Canada, so it would be London Ontario. I have not been to an MS specialist at all, just a regular Neuro that honestly really wasn't very helpful. They are very hesitant to do MRI with contrast here, and I'm really not sure why. They didn't use contrast with my last MRI either. Waiting on results of latest MRI, but thinking it would be best to push for referral to London. I have not had any evoked potentials done either. Thank you for the advice!

MSJayhawk 01-30-2013 04:35 PM

Re: Hi all...
You should still be able to be referred to an MS Specialist- I hope. You might have to be a squeaky wheel. There should be someone in London, Ontario whose specialty is MS. I do not know why they do not do the contrast. Perhaps it has to do with the Canadian National Health Care budget? I would think that an MS Specialist should be able to order an MRI with and without contrast. :angel:

mamax3 01-30-2013 04:44 PM

Re: Hi all...
You're probably right. Most likely does have to do with budgeting! It's ridiculous how hard it is to get proper care around here. When I first went in with complaints of not being able to see properly out of my right eye, they acted like I was just making it up. Quick attitude change when they discovered I had an inflammed optic nerve. Like I have better things to do than to fake ailments. Lol. I read your response to my husband, and he agrees we need to go elsewhere! Thank you for replying :)

MSJayhawk 01-30-2013 05:26 PM

Re: Hi all...
No worries. Do let us know how things go. I know that there are others in Canada who have had to go through the same troubles you are now experiencing. I will keep you in my prayers. :angel:

MSNik 01-30-2013 07:31 PM

Re: Hi all...
Hi. Im sorry you are not having an easy time of it....a swollen optic nerve is called optic Neuritis or ON...and it very well can be the first sign of MS....however, my own brother has had it numerous times, gets checked for MS regularly, by my own MS specialist, and does NOT have, it can be a stand alone problem as Jayhawk said.

You really do need IV solumedrol (steriods) to cure ON quickly, but it will resolve on its own. If you are having pain - you should find a good opthamologist to see asap- and have them start the IVSM, because if you wait too long, it wont work anyway. IV solumedrol may also resolve the pins and needles feeling if it is due to inflammation...

You definately need to see a MS specialist, whether its in London or if you come to the States...before this becomes a problem with permanent disability issues...

I hope your eye resolves soon and you get the care you need .

mamax3 01-30-2013 08:03 PM

Re: Hi all...
Okay, thank you. Yes, I was told it would resolve on its own, but may take some time. I'm definitely not getting very far in the way of help in this city, so I will be going elsewhere. Thank you for your input :)

MSJayhawk 01-30-2013 09:12 PM

Re: Hi all...
Optic Neuritis (ON) will heal on its own, but doctors will try to heal it faster with steroids. I do not do meds and all of my ON episodes have healed fine for me. Though it may be difficult, sometimes you have to work with what you have. :angel:

mamax3 01-30-2013 09:30 PM

Re: Hi all...
Okay Jay. I will just ride it out. Tomorrow is day 16. How long did your ON typically last for? Just wondering what to expect. Thanks.

MSJayhawk 01-30-2013 09:46 PM

Re: Hi all...
Mine has always healed quickly and within a month or less. I often will "patch" my eye because the light frequency bothers me. I will wear a patch over the affected eye for 3-5 days during the day, but not when I sleep. I also found that I have had fewer eye problems when I wear my sunglasses. Since 2002 when I started wearing them all the time, my incidents of eye pain and ON have decreased greatly.

Your healing time may vary and there is no "typical" recovery that I could say for any certainty. You will get better. Stay strong! :angel:

mamax3 01-30-2013 09:57 PM

Re: Hi all...
That's kinda funny because my husband actually mentioned getting me a patch for the affected eye. He jokingly now calls me one eye. Lol. Thanks again for your response.

dleone6 01-31-2013 12:05 PM

Re: Hi all...
I am not an MD by any stretch but you have very typical symptoms of MS. I dont know if they see a lot of MS up there and maybe thats why they are not diagnosing you with it, but typically you would get a steroid treatment for your optic nerve and the numbness will most likely stay with you. My suggestion is to go to a doctor that specializes in MS or is very familiar with it.

mamax3 01-31-2013 02:11 PM

Re: Hi all...
It takes a long time around here to get diagnosed with anything. Just seems to be the way it is. Frustrating, but I guess just a part of life. A few of the Doctors have mentioned MS of course, but nothing concrete. Will be getting a referral to hopefully an MS specialist, as not getting anywhere here. They decided not to treat my ON, just supposed to ride it out.

MSJayhawk 01-31-2013 02:40 PM

Re: Hi all...
You might see if you can be seen by a neuro-ophthalmologist who could "find" that you have Optic Neuritis and order the treatment. Afterwards you can discuss additional symptoms which could then be referred on to an MS Specialist. These are my thoughts from one outside of the health care system which you are navigating.

Have you spoken with an MS office such as the MS Society? They can be a place to obtain advocates and referrals. :angel:

All times are GMT -7. The time now is 12:15 PM.