HealthBoards (
-   Multiple Sclerosis (
-   -   MS Symptoms? (

friendly21 03-19-2013 12:12 PM

MS Symptoms?
Over the past 2 months I have been under extreme stress/anxiety. On January 16th i began having this nerve burning sensation on both inner thighs and top of knees. I also had malaise, achey legs, fatigue, and pain in my groin. I worried myself to death, thinking I had HIV - this consumed my life for a month and a half, finally got tested and it was negative. When I went to my doctor he had some blood work done which came back fine, but he did see that my vitamin D was extremely low. Now I am on vitamin D pills.

Recently I have been extremely fatigued even when i get 8 hours of sleep, have occasional burning sensation/cold/shooting pain on both of my knees at same spot and other parts of leg especially when clothes are touching them. My legs have also been weak and I get the occasional muscle twitch in my arms or legs. I have also felt very foggy.

Does this sound like MS?

MSJayhawk 03-19-2013 12:20 PM

Re: MS Symptoms?
:wave: Welcome friendly21,

Your first sentence "Over the past 2 months I have been under extreme stress/anxiety. " could be your answer. Stress and anxiety are or can be mimicries of MS. By your own admission, I would encourage you to seek medical assistance related to your stress and anxiety first and you might find that your symptoms disappear. Whether you will need a lifetime of assistance or whether your problems can be resolved through other means is best in the hands of a doctor. I think (non-medical opinion) that after 6 months if your symptoms persist (or how ever long the doctor tells you), then you should seek further inquiries to see if there is something else.

Stress and anxiety can be sub-sets of MS or they can also be stand alone problems. Whichever is the case, please know that you can get treatment and you can get answers. You are dealing with a real problem.


friendly21 03-19-2013 12:52 PM

Re: MS Symptoms?
Thanks or the quick response Jayhawk. I was actually on zoloft for 10 years, then in November decided to go off it. I started taking it again yesterday.

Were my symptoms classical/have you seen other with these presenting symptoms? The nerve burning sensation has been on and off. Based on your posts I can see you are very knowledable on MS.

MSNik 03-19-2013 02:37 PM

Re: MS Symptoms?
The fact that you are vitamin D deficient could be the root cause of all of your symptoms. You are not spelling out any red flags for MS....however, anxiety, vitamin D deficiencies and several other things can cause every symptom you have mentioned.

I really hope you arent looking up symptoms. It kind of sounds like you might be. When you look up things like numbness or tingling, you will always find MS at the top of the list - its the most looked up symptom.

But there are so many onset symptoms of MS, none of which you have mentioned..i really wouldnt be worried about MS right now. It can take up to a year to straighten out a vitamin deficiency- work with your doctor on that first, and keep getting the blood work done so you know where your levels are- and go from there.

I hope you feel better soon

MSJayhawk 03-19-2013 09:54 PM

Re: MS Symptoms?
[QUOTE=friendly21;5149256]Thanks or the quick response Jayhawk. I was actually on zoloft for 10 years, then in November decided to go off it. I started taking it again yesterday.

Were my symptoms classical/have you seen other with these presenting symptoms? The nerve burning sensation has been on and off. Based on your posts I can see you are very knowledable on MS.[/QUOTE]

Going off the Zoloft should be noted by your doctor. You mentioned Vitamin D. Was this found to be deficient or are you taking it yourself? I take Vitamin D3 1000 iu per day as ordered by my doctor. Unless you are following your doctor's advice as to type of Vitamin D and amount, you should be careful. :angel:

friendly21 03-20-2013 08:44 AM

Re: MS Symptoms?
My Vitamin D level was at 12 so I was prescribed 50,000 iu per week. I am on my 4th week right now. The fatigue seems to not be as severe over the past couple days but still getting the weird sensations. Hopefully these will resolve soon, I know it can take a while to get levels up. Thanks to Nik and Jayhawk for all your advice and support.

MSJayhawk 03-20-2013 09:03 AM

Re: MS Symptoms?

With your D level so low and stoppage of your Zoloft, I would say it is likely a combination of both. You are quite correct that it will take a little time to notice if your problems have been resolved. If your problems continue, however, do let us know, but more importantly, let your doctor know. At that time an MS Specialist might be the right direction to go. For now, relax and breathe deep. You are making the right moves. :angel:

MSNik 03-20-2013 11:10 AM

Re: MS Symptoms?
Hi, and your welcome! I have to agree with Jayhawk that this is going to take some time to resolve- keep up with your blood work and making sure you are taking the correct amount of D- and make sure your doctor is watching your Zoloft as well. Drugs, like Zoloft, have been known to cause many side effects, even if you took them previously without the effects- they can start at any time.
Just keep an eye on things medically and you should be okay- but dont assume anything and dont try to adjust your dosages without your doctor knowing what you are doing. Starting too high back on the Zoloft can cause issues- and too much D can also cause side aware! Ok??

Feel better,

friendly21 03-22-2013 05:02 PM

Re: MS Symptoms?
I have an appointment with a neuro on Tuesday. Any advice on what I should be telling him or ask or tests to run?

MSJayhawk 03-22-2013 06:55 PM

Re: MS Symptoms?

Tell your neuro just what you have told us. Your neuro may run some initial tests, but he may also ask you to schedule another appointment after some needed time has passed. The doctor needs to be able to make a distinction between your symptoms due to D and Zoloft stoppage and any other symptoms. :angel:

MSNik 03-22-2013 07:00 PM

Re: MS Symptoms?
Is your neuro a MS Specialist? And is he the prescribing doctor for the Zoloft? If he isnt...I would suggest you first make sure he is completely aware of what dosage of Zoloft you are on, how long you have been on it, why you stopped and what dosage you started back on...because I have a feeling most of your problems are from that. If you started back on the dosage you used to be on, and you were off it more than a week, you could be overdoing the Zoloft, which would cause you to have problems.

You want to talk to him about your D levels- so you should be asking him to run blood work- and how often he wants it run. You cant supplement vitamin D without constantly knowing where your levels are, because too much is more dangerous than not enough.

Lastly, if he isnt a MS specialist, ask his opinion on seeing one. If he is one, ask his opinion on MRIs and what he thinks might also be causing some of your symptoms. My guess is that he isnt going to look into "something else' until you get the D levels and the Zoloft straightened out because there is a good chance that things will reverse when you do.....and by the way, a neurologist doesnt usually worry about vitamin deficiencies or anti depressents, so he may be referring you back to your GP or prescribing physician, if he isnt the one managing these other drugs..

Let us know how it goes.

friendly21 03-23-2013 11:33 AM

Re: MS Symptoms?
I am not sure if he is an MS specialist but I don't think so. He is not the prescribing doctor of zoloft. Recently I have been so sensitive to some higher pitched sounds like crinkling of a wrapper too so cognitively slow, and a little bit a headache at the back of my head. Does this make it more likely to be MS?

Hoping he will be able to provide some answers and hoping he will go ahead with an MRI. I just tested negative for Lyme disease, was really hoping that was the culprit since i do remember i had 2 bulls eye rashes on my arms at 2 different times. One was 3 years ago, and the other 2 years ago.

Thank you both for your time and advice you guys are great.

MSJayhawk 03-23-2013 12:07 PM

Re: MS Symptoms?

If MS is remotely possible, you really need to work with an MS Specialist and to confirm that your neuro is or is not. As to Lyme, false positives and poor results from laboratories not experienced with Lyme have been the bane of the Lyme diagnosis. There is a board for Lyme which might help.

I get head pains that are quite intense and very specific in their location. For me, the headaches at the back of my head do not respond to ibuprofen, acetaminophen, or naproxen sodium. My best response is from dark chocolate. I currently have two types I use. I have a Dove dark chocolate which has responded better than the Hershey dark chocolate, but the best one was a Belgian chocolate which my niece sent me. 3 squares of the Belgian and the pain is gone twice as fast as the Dove. It is more expensive, however, so I save it for the really painful times.

For the area of head pain right above the back of my head (mostly top center) I have gotten the best relief from Diet Dr. Pepper. You might try your favorite caffeine as this might work for you.

As to the ear sensitivity, I get pulsatile tinnitus and I also experience times when certain sounds are quite irritating (our household vacuum is one). I have found that 2-3 times a week I need to use my shooter's ear protection. I purchased a pair at the discount store and they are passive. I use them and they really help. They also are great to wear when I nap.

Ear pain/sensitivity and the head pain can be MS related, but they could be other things too. :angel:

MSNik 03-23-2013 03:25 PM

Re: MS Symptoms?
Friendly, ask this doctor if he thinks referring you to a MS specialist is a better plan. You may be wasting alot of time. Many neuros specilize in migranes, Parkinsons, Strokes- but not MS.....very few specialize in MS.

As for the Lyme test. Id say unless you were seen by an infectious disease doctor and if that test was sent out to a specialty lab- not run at your local blood center- forget it. Read the Lyme boards on Healthboards...youll see , the statistics are probably 75% or so of false negatives...which means just because the blood work says no, doesnt make it negative.

You truly need to start working with some specialists. Youre in a bind here trusting people who know nothing about your past (Zoloft) or about what you are dealing with. He may order you the MRI because you have headaches; however he may not be credentialed to read the MRI looking for MS, in which case, its going to be read by a radiologist who is even less qualified...

Please seek out some specialists..

friendly21 03-23-2013 03:58 PM

Re: MS Symptoms?
I will definitely seek out some specialists. As for the lyme test it was sent to the Mayo clinic in Rochester, Minnesota.

Question for both of you: What does your gut tell you if you had to predict whether I have MS or not. Honesty is appreciated

All times are GMT -7. The time now is 06:12 PM.