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    Old 03-28-2013, 10:41 AM   #1
    Boots1967
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    Does this sound like MS?

    For the past 5 weeks I've been feeling off balanced when I walk, my knees become very weak and I need to sit or lay down to correct the problem... The past two days my hands have started to become tingly.. I woke up a couple of times at night to find them tingly as if I was laying on them but I wasn't, once I moved them around the feeling went away.

    I saw my doctor four weeks ago and all blood work came back normal.. They didn't run all the vitamin test though..

    Saw cardiologist, everything fine.

    Saw the nuero and had MRI, found small blood vessel that said was nothing to worry about, that I was born with it... He actually just called me and said I should see a physiatrist.

    Sound like ms, Lyme.. Anything?.. Male 30.

    Last edited by Boots1967; 03-28-2013 at 10:42 AM.

     
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    Old 03-28-2013, 10:55 AM   #2
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    Re: Does this sound like MS?

    Hi boots and welcome to healthboards.... no one here will call your crazy, promise! I will however stress to you that anxiety can present alot of the symptoms you are describing and assure you that absolutely NOT- nothing you wrote sounds like MS at all...

    When people look up MS and see numbness or tingling, they assume its what they are having- but MS is a disease of the central nervous system- and it doesnt come and go and correct itself when you get up and move around or after alittle while....its nerve damage, from a lesion on the brain or spine, which is permanent. Yes, you can have tingling which gets worse with certain criteria, but what you are describing is not MS pain.....

    Also, there are several hundreds of diseases which mimic MS- and you could have any one of them- and the chances of having MS are only one in 400.

    Weak knees, circulatory problems and being off balance sound much more vascular to me. You said you saw a cardiologist - now its time to go back to your GP and ask for more extensive blood work. Thyroid- vitamin deficiencies- even hormones should be tested...

    Im sorry you are going through all this, its really horrible when you know something isnt right but dont know what it is....but I can assure you, your post doesnt suggest nuerological or MS related symptoms...
    Nikki
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    Old 03-28-2013, 11:19 AM   #3
    Boots1967
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    Re: Does this sound like MS?

    Thank you.

    For the most part I was feeling that it did have something with the cardiovascular system but once I felt my hands tingle I thought maybe its something else.. My left hand does stay tingly though , but just very light.. As if I don't pay attention to it I don't feel it.

    Any vitamin diffencinys that I should request?.. I did check my hormone levels and they were fine.

     
    Old 03-28-2013, 02:10 PM   #4
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    Re: Does this sound like MS?

    Vitamin B and Vitamin D....both can present as if you have numbness and tingling...so can thyroid issues. Good luck!
    Feel better!
    N
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    Old 03-28-2013, 02:33 PM   #5
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    Re: Does this sound like MS?

    Boots1967,

    Welcome. My sister was born with a bad heart valve which did not become apparent until she turned 35. her cardiologist sent her to another cardiologist who found that the valve did not always work improperly, but it was sufficient to cause her weakness and was becoming worse, albeit slowly.

    I would agree that the thyroid levels should be checked as well as your D and B levels. There is a Thyroid Board on this same website. You might peruse the threads and see if there is something with which you can identify.
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    Old 03-28-2013, 02:35 PM   #6
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    Re: Does this sound like MS?

    Boots1967,

    I do not think I would be looking for a physiatrist until you have some evidence in hand that a physiatrist would be appropriate.
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    Old 04-12-2013, 11:10 AM   #7
    Boots1967
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    Re: Does this sound like MS?

    I still have yet to improve.

    I had a MRI but didnt include the spine, I could have a lesion there i suppose.

    Last night my bottom foot kept twitching and so was my toe.. Could it be parkinsons or ms now?

    The only thing I tested low was vitamin d... I no longer work because I can't function for very long.

     
    Old 04-12-2013, 11:17 AM   #8
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    Re: Does this sound like MS?

    Boots1967,

    Are you being treated for the Vitamin D deficiency? If so, how long have you been treated?
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    Old 04-12-2013, 11:20 AM   #9
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    Re: Does this sound like MS?

    Boots, Low vitamin D could be the cause of ALL your symptoms....

    I would rule out Parkinson's- there are WAY too many other things which would be presenting and a neurologist would have seen signs and ordered tests...I honestly think you can take that off your list of concerns...as far as MS, could it be? Yes, but again, you are not complaining of SO MANY different things which SHOULD be presenting, if it was MS....

    Are you aware that something like a pinched nerve could be causing the same distress? Honestly- its that simple...it can cause numbness and weakness- especially if it is in your Cspine, which by the way, absolutely NEEDS to be MRId.

    SO, whats the plan? Are they going to do the complete MS panel and include the CSpine? AND, who read this thing? I cant tell you how many radiologists miss lesions even on the brain, which a MS Specailist will pick up....

    Hate to say it, but its time to contact a MS specialist- and ask for a second opinion on whats going on....of course, something as simple as a CT scan of the Cspine, could pick up anything small, like a pinched nerve....you could get that done thru your family doc.

    Im sorry you are still in distress....but at this point in time, its really time to call in the specialist - and get some real testing going. No one tests for MS, and only does "half" the test...

    Hang in there, and continue to update us...we are here if you have more questions.

    Nikki
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    Old 04-12-2013, 11:21 AM   #10
    Boots1967
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    Re: Does this sound like MS?

    Quote:
    Originally Posted by MSJayhawk View Post
    Boots1967,

    Are you being treated for the Vitamin D deficiency? If so, how long have you been treated?
    Yes.

    I just started yesterday, my doctor didnt want to give me the test cuz she thought it wasn't connected with my episodes of feeling offbalance and dizzy.

    My level was a 8... I heard that if your level is really low that u might have ms or some autoimmune disorder?

     
    Old 04-12-2013, 11:28 AM   #11
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    Re: Does this sound like MS?

    8 is low....and you can have a vitamin D deficiency and nothing else....there have been studies linking MSers to low vitamin D; however that has also been questioned. I grew up at the shore- worked as a lifeguard all thru my teens and into my 20s- spent every day of my life in the sun...and still got MS.

    A deficiency that low, could definately be causing ALL your problems, Boots...keep with the supplements and see how you feel in a few months- it will take 3-4 months to bring your levels up to where they need to be...and remember, too much D can hurt you; so dont skip any blood work.

    And one last thing. What type of doctor are you seeing who actually thought that running this test was a waste of time? YES< having D that low, can cause all the problems you have mentioned....seems odd that a doctor wouldnt want to run that on you, especially with the symptoms you have mentioned.

    Nikki
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    Old 04-12-2013, 11:33 AM   #12
    Boots1967
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    Re: Does this sound like MS?

    Thanks Nikki.

    The neurologist read the MRI.. I would love to go back to have my spine done but its way too expensive, I can't afford it.. I no longer have the tingly feeling anymore, idk if that was stress.. I just struggle with being off balance more then anything to you the truth and get fatigued easy.

    Since I no longer work I'm going to look into getting Medicare if I can one day.

     
    Old 04-12-2013, 12:26 PM   #13
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    Re: Does this sound like MS?

    Quote:
    Originally Posted by Boots1967 View Post
    Yes.

    I just started yesterday, my doctor didnt want to give me the test cuz she thought it wasn't connected with my episodes of feeling offbalance and dizzy.

    My level was a 8... I heard that if your level is really low that u might have ms or some autoimmune disorder?
    8 is too low. A deficiency of Vitamin D can mimic MS. The fact that you are so low, you will need to bring it back within a safe range and then be able to maintain it. You may need to allow 4-6 months of vitamin D usage before you notice changes. You will need to maintain your vitamin D and know how much you need to take to maintain your levels. The good news is that you should be able to get back to normal.
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    Old 04-12-2013, 12:35 PM   #14
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    Re: Does this sound like MS?

    Boots
    Look into the Multiple Sclerosis Association of America. They have a grant program which pays for MRIs. If you qualify, based on income, they actually pay for the test....in your case, I think it would be worth it to pursue this.

    Im still pretty much sold on the idea that the low D COULD be your only problem, but if you can get this test done, why not have it? Rule everything out....

    As for your choice in doctors- thats your decision. I live halfway between NY and Philadelphia- we have a broad range of foreign doctors here- and many of them are really good. In fact my own beloved Neuro is Pakistani, although born and raised in the US- he is my hero! But I can understand why you might feel the way you do- not every area has as large a selection of physician to choose from as I have where I live. You have to keep screening them until you find the one you are comfortable with....To be honest, in my line of work I credential doctors- Im not so sure that where they are from is as important as where their education was gotten. I DO prefer doctors who were educated in the US, as opposed to foreign medical schools.. maybe you want to consider that as part of your criteria for selecting one. You can usually find out where they went to school by looking them up...

    You sound alittle bit better. Im glad. The D thing will take some time- but stick with whatever protocol you were given...it WILL help you. Especially with the fatigue. Bet you are feeling like your old self within a few months..keep us posted.

    Nikki
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    Old 04-12-2013, 12:45 PM   #15
    Boots1967
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    Re: Does this sound like MS?

    Yes I will be looking into the Multiple Sclerosis Association of America.. Ill for sure do that.. I do feel ok but last night I felt horrible, I felt horrible for the past two days but since knowing that I was low on vitamin d it gave me hope that it can solve my problems, I pray that it does.

    Last edited by Administrator; 04-19-2013 at 07:57 PM.

     
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