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  • Average diagnosis time for MS

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    Old 08-17-2013, 06:00 AM   #1
    ladybounty's Avatar
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    Average diagnosis time for MS

    Hi I am 29 yes old. I was diagnosed with MS about 3 weeks ago. I was fortunate in that I was having paroxysmal attacks and weakness in my right side that mimicked TIAs or mini strokes so MRIs and CT scans were ordered immediately and they saw the lesions and ordered a spinal tap. The local neurologist wrote me an emergency referral to an MS specialist in Shreveport and I saw him within days of being released from local hospital. The MS specialist looked at my records and diagnosed me w MS as bands were present in the spinal fluid. After talking with the MS specialist in hois office and in the hospital, we figured out that I had been having symptoms and mild flare ups for years. None of them were severe enough for me to pay attention to them before this one .
    A lot of people have said I've been very lucky to get a diagnosis so quickly. Was just wondering how long it has taken others to get a diagnosis.
    Thanks for the replies in advance!

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    Old 08-17-2013, 07:46 AM   #2
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    Re: Average diagnosis time for MS


    It could take 3 days (a review of previous records and tests) to 35 years. I know a lady who went 35 years without a diagnosis because she went to different doctors and as she was treated, the problems coincidentally went away. Both she and her doctor for the problem thought that it had been properly resolved. There really is no average time that can be relied upon. Other constraints are the insurance system, lab testing schedules, wait for appointments etc.

    In the best situation with green lights and no speed limits, if you went to the right doctor and presented with the requisite symptoms and meet the right criteria, 2-3 weeks would probably be a good goal. Limbo land is probably the first thing I would try to eliminate. The less time in Limbo Land, the less stress in a patient's life.

    In the hands of some doctors, you have to deal with fence sitters who do not want to give you "the bad news" and even though they are 90-95% certain, are worried about the 5 - 10% margin of error and what a litigious problem could arise.

    MS diagnosed since October 3, 1982
    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

    Old 08-17-2013, 09:44 AM   #3
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    Re: Average diagnosis time for MS

    My Dx was quick. I had ON third week of April, with EVP, MRI's and Dx by MS specialist on 5/13/13.

    I was lucky.

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