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  • possible MS.

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    Old 05-16-2014, 04:42 PM   #16
    chooky01
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    Re: possible MS.

    Quote:
    Originally Posted by MSNik View Post
    Chooky,
    Im glad you have an appointment being made! That's also great news! Let us know when you are going...
    Nikki
    29th of May is my appointment
    and because my memory has run away on me (if anyone finds it pls let me know) I've written a list of symptoms to bombard my neuro with that has plagued me since I last saw her.

    newest being cramping in my foot arch, toes and calf muscle when I stretch out in bed, or turn to lay on my stomach in bed. Has woken me once so far, but happens when I'm just resting also before sleep Occasionally happens after walking regardless of distance but is more just tightness almost to the point of cramping. Toes curling in also when I walk, weird, is like my shoe is too small when it isn't and all this only happens on my left foot not the right foot. Slight cramping in left hand on occasions also but not enough for me to go, arrrggghhhh, just enough to rub it to soothe or relax it.

    will keep updating after I see my neuro.

    Oh haveto see a kidney specialist also soon, as my creatinine level is 4.5 (not sure what that means guess I'll find out) but doctor was a little concerned at my results when I went for a urine test, not overly concerned, says he's just sending me to be sure if there is something going on we can catch it sooner rather than later (makes sense to me) So that's another doctor to add to my list lol .. check.

    be well all
    Chooky

     
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    Old 05-16-2014, 06:35 PM   #17
    MSJayhawk
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    Re: possible MS.

    Chooky,

    My creatine levels always ran high when I was power lifting. I also ate meat and consumed high protein. There are many things besides exercise which can cause creatine levels to be elevated from vitamin c to various medicines or even antibiotics. False readings of creatine often occur.

    I certainly do not trust my memory nor my handwriting. I keep mine on my mobile device or computer and then print a hard copy to cover with the doctor. If I forget the hard copy, I could also email her the memo during my appointment too.

    When my calf and feet cramped the first time I was in bed, I pointed my toes away from my body which triggered more painful cramps in my legs. I quickly learned to remind myself to point toes toward head as directions in bed can be disorienting for me sometimes. After a few nights it became a habit. Overtime, however, the stretching really helped and night cramps are now a rarity. Still, however, I habitually stretch toes toward my face and this can hold off a cramp until I can get out of bed and stretch if needed.

    Another check you may wish to monitor is your calcium/magnesium level which can also affect cramping in addition to dehydration.

    May 29th is not far off. I certainly wish you the best and hope you have something benign and entirely treatable. If MS is your final destination, no worries, you can continue to count on us
    __________________
    MS diagnosed since October 3, 1982
    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

     
    Old 05-17-2014, 01:19 AM   #18
    chooky01
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    Re: possible MS.

    Quote:
    Originally Posted by MSJayhawk View Post
    Chooky,

    My creatine levels always ran high when I was power lifting. I also ate meat and consumed high protein. There are many things besides exercise which can cause creatine levels to be elevated from vitamin c to various medicines or even antibiotics. False readings of creatine often occur.

    I certainly do not trust my memory nor my handwriting. I keep mine on my mobile device or computer and then print a hard copy to cover with the doctor. If I forget the hard copy, I could also email her the memo during my appointment too.

    When my calf and feet cramped the first time I was in bed, I pointed my toes away from my body which triggered more painful cramps in my legs. I quickly learned to remind myself to point toes toward head as directions in bed can be disorienting for me sometimes. After a few nights it became a habit. Overtime, however, the stretching really helped and night cramps are now a rarity. Still, however, I habitually stretch toes toward my face and this can hold off a cramp until I can get out of bed and stretch if needed.

    Another check you may wish to monitor is your calcium/magnesium level which can also affect cramping in addition to dehydration.

    May 29th is not far off. I certainly wish you the best and hope you have something benign and entirely treatable. If MS is your final destination, no worries, you can continue to count on us
    what a lovely post MSJHawk, thank you very muchly, have weirdly come to think of you guys as surrogate family regardless hehe funny that huh

    Am almost sure, but don't quote me on it, that my neuro, after reading the boards, will order more tests as I've only had one MRI before I seen her in the hospital, the whole space in time thingy I think, but I could be wrong, she sounded almost certain of MS last time I met up with her.. so you never know.
    I almost, myself, will ask for another MRI because of the same reason for my own records, can never be too sure I guess and will be good to compare the first with the last.
    Apparently she is at the moment, in America at some confrence, both her and the head of the department, and the 29th is the day after she returns.

    I knwo the thyroxine can play havoc with the kidneys also because of sodium in them so maybe my dr is a little concerned with that

    I feel there is a bit of a flow at the moment and I don't wish to upset the apple cart, work is doing fine with my hours, going onto 6 hrs as of monday (today is saturday) and after seeing the neurologist I get to do full hours from the 30th of may so yayy paycheck being bigger lol need it trust me.

    I am looking forward to my appointment though, will bring my bulldog (partner) with me because he is more vocal than I am and I can't seem to find words lately, he's great with noticing things with me and can be my advocote . I mean what are partners for hey.. he's good like that so I am happy to have him along, anything I forget he will remember or add to.

    cramping was really bad today because we went into the city for lunch, had to walk to train station then to resturant in the city from city train station, hips gave way on me also, was funny though, my partner and I looked like two cripples, we don't knwo who is worse, him or I.. at least we can laugh at ourselves, laughter is the best medicine and trust me we laughed all the way to the resturant lol

    funny how laughter can take your mind off of pain hey

    well we just got back and collapsed both of us into the sofa, and I don't think either of us is moving for a while till bed time, think we are even going to skip dinner becaust we are too sore to get up and stand there cooking, plus we are full from lunch.. soo for now.. guess it's relax time

    be well
    chooky =)

     
    Old 05-17-2014, 07:04 AM   #19
    MSJayhawk
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    Re: possible MS.

    Chooky,

    Just wanted to clarify that there is a difference between Creatine and Creatinine. From a European study in cases of hypothyroidism, thyroxine can lead to an increase in creatinine levels. Creatinine is a break-down product of creatine phosphate in muscle, and is usually produced at a fairly constant rate by the body (depending on muscle mass). Creatinine and its clearance are the main measures of kidney function.
    You can add Creatine as a supplement to get strength and body cell mass but protein will also supply creatine. The kidney function you took measures Creatinine.

    Having an advocate is always good because four ears will hear more than two! I am glad your partner will go with you. You still need to be watchful regarding moderating activities as to not cross a line wherein you are left with a sore recovery the following few days. I am glad to hear that your hours are increasing. If you do have MS, you might be on an upswing.

    With any luck, your neuro will have heard something good at the conference that will bolster your situation! Stay strong and do not forget to indulge in some self pampering as needed.
    __________________
    MS diagnosed since October 3, 1982
    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

     
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    hypothyroidism, multiple sclerosis, neurological symptoms



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