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    Old 08-13-2014, 04:53 AM   #1
    Leelee1704
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    Could it be ms

    Could it be
    Hi, all well here goes my symptoms any advice wether it sounds like ms appreciated.

    Two year ago it became hard to touch certain fabrics and brush my teeth I just thought I was weird lol
    Then 18 months ago it became hard to swallow pills and I kept getting cramp in my knees quite frequently
    A year ago I got really bad ear pain and hearing loss but nothing wrong with the ear itself and I got what they said was Bell's palsy on the same side.
    6 months ago I suffered vision loss in one eye on the opposite side to the ear and facial droop stuff but nothing was found on an eye exam so I went for a ct scan again nothing found
    Eye sight came back properly after four weeks but my eye sight had deteriorated a little in that eye so stronger script
    I still have all the above symptoms except eye sight one but now with badddd facial pain in the same side as facial droop from my temple to my shoulder and on one of the tests the doc did I now have a weakness in my arm the same side any help or anything much appreciated thankyou

     
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    Old 08-13-2014, 07:28 AM   #2
    MSJayhawk
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    Re: Could it be ms

    Leelee1704,

    Welcome.

    What kind of doctors have sen you? Did you see an ophthalmologist or a neuro-ophthalmologist for your vision problems? You shared that you had a CT Scan, but did you have an MRI too?

    MS has over 400 known mimicries. Your specific symptoms can eliminate many of the possibilities. Blood rests should be done to determine your vitamin and mineral levels.

    An MS Specialist is the best doctor to see to be able to run a diagnostic regarding the possibility of MS.

    When you note your symptoms, you should separate those for which you are cognizant of which lasted 24 hours or more. The others might have lasted as long, but with less severity and you may have dismissed them quickly. If you dismissed symptoms because the seemingly did not really bother you or were not so bad, list those on the same category. Any symptoms which come and go "quickly" would be a separate category. From these two you can gain a bit more insight as can the doctor.

    I have days when certain paper, plastic, or fabric bother me to no end. Facial pain and teeth concerns could be Trigeminal neuralgia (TN) is a stabbing pain in the face. It can occur as an initial symptom of MS. While it can be confused with dental pain, this pain is neuropathic. If you explore this website for TN, you might find some better advice. (Use the search bar at the upper right of this page). TN can be a standalone problem or as I mentioned, an initial symptom of MS.

    It has not been too long since MS Specialists added auditory problems for some MSers. It is not common, but it is no longer outside of a consideration of MS. While I have never had auditory loss, I do get pulsatile tinnitus.

    "Droopy face" has been a long time symptom of mine. My doctor told me to look into the mirror and smile. When you have droopy face, it can be slight to severe. Mine is often slight and I would never know it unless I looked in the mirror. When it is severe, I do not need a mirror as half my face feels as though it is just hanging there.

    Thank you for sharing. I should think that you probably have a neurological concern based on what you have shared. Until you run the diagnostic process and eliminate the known mimicries, however, it is impossible to know what is causing your problems. There are no specific tests for MS. Your doctor has to test you for known mimicries and then if all of these tests are negative and you meet the Revised McDonald Criteria, then you could be diagnosed with MS.

    I am certainly glad you found us. Your symptoms need to be attended to and you need some real answers. If you do have MS, know that it is chronic, but not fatal. Again, Welcome!
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    Old 08-13-2014, 09:01 AM   #3
    Leelee1704
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    Re: Could it be ms

    Hi and thankyou for replying

    The doctors I first saw were in a&e due to the vision loss in one eye the other symptoms befor this were ignored by my gp I kept getting fobbed off , a & e kept me in and I saw the opthalmologist who after eye exams said he couldn't see anything wrong with the eye itself and referred me back to the a & e doc who then discharged me saying I will get referred to ent and for a ct scan, the ct scan was clear and at the min I am under ent but he says he is referring me to a neuro as there is nothing he can do from his standpoint he mentioned ms to me and I am awaiting an mri as he wants to also rule out an acoustic neuroma I have had my bloods done the only anomaly is an elevated esr rate which they said suggest some sort of inflammation and I am still awaiting lyme tests to come back all my symptoms are constant every day except the eye which thankfully resolved and the knee cramps which come and go also I'm 28 if that makes any difference lol

     
    Old 08-13-2014, 09:55 AM   #4
    MSJayhawk
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    Re: Could it be ms

    Leelee1704,

    No worries.

    I am assuming you are in the UK; therefore, you have to go through NHS. A CT Scan will not show any lesions for MS or other lesion caused problems. A clear CT would push it to neurology I should think. The ophthalmologist should have ordered an MRI of your head at the very least. I see that you are waiting for an MRI. When you do get it, be wary of who reads it. That is, an MS Specialist or doctor with MS experience should read the MRI because an inexperienced person (non-MS experience) could tell you it is clear when it is not.

    You might also contact the Royal MS Society there and see if they can assist you. Please feel free to ask questions here and rant as needed. You are not alone!
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    Old 08-13-2014, 10:05 AM   #5
    Leelee1704
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    Re: Could it be ms

    Yep uk and nhs oh the joys lol

    The only one to order the mri was the ent and skull based doctor, the opthalmologist wasn't at all concerned about me.

    My ent doctor will read my mri first then refer me to a neuro but he seems like he knows what he's doing more so than anyone else I've seen and he sent me to a different hospital from him for the mri as he said there's a better radiologist there.

    I know that there's an ms therapy centre near the hospital I'm having the mri at , maybe I'll pop in after my scan and get some info from them to I'm just really impatient and want answers now lol

    Thankyou for replying to me though think everyone I talk to about this is sick of hearing it lol so it's nice to talk to people who understand.

     
    Old 08-13-2014, 11:46 AM   #6
    MSJayhawk
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    Re: Could it be ms

    Leelee1704,,

    Your impatience is not uncommon. When you are wandering in limbo land, those around you do not really know what you are feeling if they have not experienced something similar.

    At the very least you have a doctor who has enough interest to order an MRI. While an MRI may show lesions, the MRI is only one tool and cannot confirm or deny MS. It will help narrow the field for you. You appear to be making headway. Let's hope it all goes smoothly from here on!
    __________________
    MS diagnosed since October 3, 1982
    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

     
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