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  • Anxiety ms worry

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    Old 10-19-2014, 03:39 PM   #16
    Shaun1978
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    Re: Anxiety ms worry

    I'm so glad I joined this forum you guys are so awesome and inspirational im worried about an illness I may never have but you guys accually live it God bless you all for your strength. thank you all so much, sending virtual hugs to you all

    Last edited by moderator2; 10-19-2014 at 04:20 PM.

     
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    Old 10-20-2014, 04:00 AM   #17
    Shaun1978
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    Re: Anxiety ms worry

    Once again I'd like to thank you all for time it really means a lot.

    Last edited by moderator2; 10-20-2014 at 04:06 AM.

     
    Old 10-20-2014, 04:13 AM   #18
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    Re: Anxiety ms worry

    Shaun,
    No thanks needed. Thats why we are here, to support each other!
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    Old 10-20-2014, 07:34 AM   #19
    MSJayhawk
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    Re: Anxiety ms worry

    Shaun,

    No worries. The fact that you are aware and making efforts to get to an answer is great and positive. Please know that you are not alone in this.
    __________________
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    Eternally blessed and eternally optimistic!<><

     
    Old 10-20-2014, 07:37 AM   #20
    Shaun1978
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    Re: Anxiety ms worry

    I'm thinking all sorts to be honest Iv gone through thoughts of dvt, brain tumor, als and Ms I can't wait three months for Neuro appt im gonna go round the bend.

     
    Old 10-20-2014, 07:42 AM   #21
    Hollykins1
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    Re: Anxiety ms worry

    It is difficult waiting. Then you'll probably wait some more for the tests. But as everyone points out here, there are SO many things that can mimic MS. The odds are in your favor.

    I also know, from experience, that surfing the web for a diagnosis is probably not the best idea. Hard not to do, but it makes the anxiety level go up.

    Stay strong, stay positive. This is a really good place to come to as everyone is very supportive.

     
    Old 10-20-2014, 07:47 AM   #22
    Shaun1978
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    Re: Anxiety ms worry

    I'm trying to stay positive but I just know something's not right, I know my body and it's not running right. And getting worse daily since my first post you can add bad dizziness to the list and upper back pain. I go see my doctor they have already told me they will adress no further symptoms as they are all anxiety related. Why won't they just believe me? I know the story of the boy who cried wolf! But just because your paranoid doesn't mean your not being followed.

     
    Old 10-20-2014, 08:25 AM   #23
    Hollykins1
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    Re: Anxiety ms worry

    I'm the same as you, I know something is not right. I just don't know what and I'm going to make sure I get tests.

    Ah...doctors. I have Meniere's Disease which is not easily diagnosed. I kept going to doctors and having them believe me that something was not right was not easy.

    It's a really difficult balancing act. Knowing there is something not right, with not adding additional worry to make it worse. There is no easy answer.

    At least you do have the appointment with the neurologist. With some insurances, unless your primary doctor agrees, you can't see other doctors. (I've been there)

    And I understand three months feels like forever!

     
    Old 10-20-2014, 10:51 AM   #24
    MSJayhawk
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    Re: Anxiety ms worry

    Shaun,

    I assume you are in the UK by your city listing. You can contact the Royal MS Society. They are well organized and might be able to assist you quicker with a referral. Here there is usually a wait of 3 - 6 months to see an MS Specialist, but a referral or ER referral can often allow you quicker access. Even if you have MS today, however, there are no meds to cure you.

    If you can, you might try a place of solitude wherein you can rest your mind. A new hobby can also help channel the worries in a healthy direction.
    __________________
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    Old 10-20-2014, 10:57 AM   #25
    Shaun1978
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    Re: Anxiety ms worry

    Some of you guys have refered to being med free! In my ignorance please may I ask a question?? Are you also symptom free????

     
    Old 10-20-2014, 11:17 AM   #26
    MSJayhawk
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    Re: Anxiety ms worry

    Shaun,

    My MS is progressive. This means that I live with problems daily without "time off for good behavior". The meds available are not cures, and for SPMS and PPMS, the meds are not available. DMDs (Disease Modifying Drugs) are supposed to slow down MS progression, but there are side effects some long term and others short term. The fact is that there is no cure.

    There are also meds which treat a specific symptom. I do not take these either. I have found that I have remedies for specific pains or problems. I think that my avoidable triggers are the big thing. If I avoid those triggers, I can get along fairly well.

    Also, if you have MS, re-defining your definition of "normal" helps, I think. If you accept little things that are symptoms of MS as part of your "new normal", they bother you less. There are many symptoms I disregard nowadays which at one time felt like "the end" but are now joust part of me.
    __________________
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    Eternally blessed and eternally optimistic!<><

     
    Old 10-20-2014, 02:35 PM   #27
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    Re: Anxiety ms worry

    Shaun,
    I too am basically med free....depending on who you ask. I was on Rebif for 5 years and thought I was doing well on it, until My body developed antibodies, which means it was attacking iteslf due to the medication. NO more Interferon for me.
    I have also tried Copaxone, to which I am deathly allergic and stopped breathing (twice).
    Ive been on three of the oral meds, and each one I developed antibodies to- and I was on Tysabri for 3 infusions- I also developed antibodies to that. By the way, the entire time I was on disease modifying drugs, I developed anywhere from 5-50 new lesions a year....they didnt work for me.

    In europe, they have a drug called LDN or low dose naltrexone. ITs also used in Australia. In the US, its NOT a MS drug. However, I did the research and found that many people use it in Europe and use it successfully. I admit, Ive been on it for 5 years- and my lesion count hasnt stopped...its still growing every six months when I get my MRI; however, I feel great. I truly believe it is keeping me pain and symptom free. My doctor allows me to get it because I have proven to him that it works for many MS realted things.

    There are other DMDs out there that my relapsing remitting MS would say I should try- but after 7 failed tries, and all the side effects, Id rather not try them. So, depending on who you ask- Im considered Med free. I dont take any drugs for symptoms regularly, but I will take a Xanax (half of a .25 mg) now and then (about 5 times a year) to get a good nights sleep, usually when I am traveling and on different time zones and KNow I need a good nights sleep to function. other than that, I eat right, exercise regularly, stretch daily, and throw the rest up to my higher power. There is nothing I can do about having MS- so I dont worry about it!
    MSNik
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    Old 11-08-2014, 10:55 AM   #28
    Shaun1978
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    Guys I back again! Just wondering as I am still having all these symptoms without a break from them! In fact some slightly worse, ie the leg twitching is now in both legs but almost a constant cramp like feeling, the ringing in ears is louder, do these present like Ms or do you normally have a little break from symptoms??? Any help or advise would be appreciated.
    Thanks shaun

     
    Old 11-08-2014, 11:03 AM   #29
    MSJayhawk
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    Re: Anxiety ms worry

    Shaun,

    A break? Yes and no. There are some MS symptoms which will stick with you due to a lesion and how long it takes to re-wire the neuron path (if at all). Many of my problems are daily, but I treat them as part of my normal day.

    Muscle cramps can be alleviated with plenty of stretching, sufficient Calcium, Vitamin D, and magnesium, and hydration. My MS Specialist told me to try V8 Juice (vegetable juice) the next time I have a cramp. I have not yet and since stretching and moving about, my cramps are rare though pain remains.

    If you have not yet seen an MS Specialist, please push forward to do so.

    Lastly, anxiety could just as well be your problem and it too can remain constant. A proper evaluation is needed.
    __________________
    MS diagnosed since October 3, 1982
    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

     
    Old 11-08-2014, 11:55 AM   #30
    Shaun1978
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    I have an appt with neurologist on 22 December it can't come quick enough! I'm so scared you wouldn't believe it, scared of never performing again (I'm a singer) scared of not being able to do things with my kids I feel like my whole life is on hold! Even my wife doesn't want to hear it anymore. I just know something isn't right.

     
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