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    Old 12-09-2014, 02:01 PM   #46
    MSJayhawk
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    Re: Anxiety ms worry

    Shaun,

    You are making the effort for psychotherapy. This is a good thing. If you have MS, you will learn things from the counselor which can benefit you. The overlap is such that our minds can indeed affect our bodies. Our brain releases chemicals into our bodies and these chemicals can be therapeutic. If our chemicals are not balanced, however, it can throw us off our game. For some, simple counseling is sufficient to help, but for others it requires meds. For others it is a custom blend of both counseling and meds.

    If you were to see an MS Specialist, they would likely make note of your anxiety and would need you to render your anxiety to a manageable level. Depending on the severity of your anxiety, the doctor may need you to start to combat the anxiety before they see you for further testing. Anxiety can be a great mimicry of MS. Still, however, an MRI could be ordered, but I do not know how your health system is set as to when something is ordered. Should an MRI be ordered, please ask for a head and cervical scan with and without contrast. This should allow you to have a good benchmark from which to review your case.

    Please remember that there are no specific tests for MS. The diagnosis is made through a process of eliminating the known mimicries and then finally evaluating whether you meet the Revised McDonald Criteria or not.
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    Old 12-09-2014, 02:03 PM   #47
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    Re: Anxiety ms worry

    Quote:
    Originally Posted by Shaun1978 View Post
    I am just waiting for psychotherapy appt and can't wait to be honest I can't however see how this will stop physical symptoms but hey il give it a go x
    Shaun, advice from someone who has OCD, health anxiety and panic attacks - please seek psychiatric help before anything else. You don't have MS, and most certainly you don't have a brain tumor. Even if you do, your anxiety would kill you before MS ever has a chance. Seriously, man, take control of the situation, and your symptoms would disappear. Sorry if this is not what you want to hear, but it is the truth. I am/have been in your shoes. Be well, my friend!

     
    Old 12-09-2014, 02:06 PM   #48
    Shaun1978
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    Tmj82 thank you so much for your reply whether I want to hear it or not your words are very thoughtful and you didn't have to reply at all so thank you so very much a kick up the *** is sometimes needed 👍

     
    Old 12-09-2014, 02:20 PM   #49
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    Re: Anxiety ms worry

    Quote:
    Originally Posted by Shaun1978 View Post
    Tmj82 thank you so much for your reply whether I want to hear it or not your words are very thoughtful and you didn't have to reply at all so thank you so very much a kick up the *** is sometimes needed ��
    I know how you feel, I have been there. Unfortunately, once you rule out MS and brain tumors, your mind will find something else to focus on. I have been there, had all sorts of brain scans done, been evaluated by a neurologist and found nothing. My question is, if all your tests come up negative, would you accept and believe the results, or would you think that they have missed something? Think about that. Our brains play tricks on us, big time. Anxiety is so powerful, it can make an otherwise healthy person have a heart attack. If you don't manage anxiety, it will ruin your life much faster than MS ever can. I dealth with this a few years back, that was terrible time. It is very important to get anxiety under control. Sorry, I can't be more helpful. Just wanted to let you know that you are not alone. And... don't trust your brain 100%, it is deceitful. Be well...

     
    Old 12-09-2014, 02:46 PM   #50
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    Re: Anxiety ms worry

    Quote:
    Originally Posted by TMJ82 View Post
    If you don't manage anxiety, it will ruin your life much faster than MS ever can.
    I fully agree with this.

    Although I do have MS I also have Post-Traumatic Stress Disorder (PTSD) with anxiety and panic attacks that are a result (secondary to) PTSD. The PTSD, anxiety and panic attacks did more damage than what MS has done in the almost 30 years with the disease.

    TMJ82, what you wrote was much more eloquent than I could have said. Thank you.

     
    Old 12-09-2014, 05:47 PM   #51
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    Re: Anxiety ms worry

    Hi Shaun,
    I think you are getting some seriously good advice here from people who have walked in your shoes. Please listen to them.

    MS is not a fatal illness- and even if worst case scenario you did wind up with it- youd deal with it. We all do and its not impossible to live a perfectly normal life while dealing with MS....however, as TMJ stated, its highly possible that its only your mind playing tricks on you and you do not have any disease - but suffer from extreme anxiety. Your doctor knows you. The fact that she isnt running any tests and insists you wait to see the other doctor is probably a good thing. Youll get honest answers from someone who doesnt know you at all...so take a deep breath and distract yourself until that appointment. Youre going to be fine...if you can convince yourself something is wrong, maybe you can convince yourself NOTHING is wrong!

    Its holiday time. Please find something to celebrate and be grateful for...
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    Old 12-10-2014, 06:42 AM   #52
    Shaun1978
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    And to add insult to injury the leg twitches that I reported in a previous post have also returned constant non stop!!!!! So annoying!!! This has to be abnormal surely???

     
    Old 12-10-2014, 06:59 AM   #53
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    Re: Anxiety ms worry

    Quote:
    Originally Posted by Shaun1978 View Post
    And to add insult to injury the leg twitches that I reported in a previous post have also returned constant non stop!!!!! This has to be abnormal surely???
    No, leg twitches are not necessarily abnormal in the sense of having a serious condition.

    There can be very benign reasons for this to happen.

    Please see a psychiatrist and psychotherapist and see if through medication and cognitive behavior therapy if your symptoms will improve. Unfortunately, anxiety can cause body wide neurological type symptoms. Fortunately, with the right medications and therapy it is possible to be symptom free of anxiety induced symptoms.

     
    Old 12-10-2014, 09:37 AM   #54
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    I just constantly link things together maybe I shouldn't I know but with headaches facial numbness pins needles and tingling in hands and legs and feet I just presume they are all neurologically linked

     
    Old 12-10-2014, 09:39 AM   #55
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    Re: Anxiety ms worry

    Shaun,

    Snoopy has given you some good advice. The mind can block pain, heal the body, or deceive. Anxiety is part of or can be part of that process. I had a friend who twitched from kindergarten to high school, but no longer. He was nervous as a child and grew out of it. There can be a plethora of reasons behind what you are experiencing. It is not your imagination because it is real. You mind can be distracted or redirected in a manner whereby it "forgets" your twitches.

    Until your appointment and whilst you await the psychotherapist appointment, I would encourage you to get out and take some walks or if you have access to a pool, swim. The more you can focus on things away from you, the less you will dwell on the "if's or but's". Please defer the worries to the doctors.
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    Old 12-10-2014, 09:49 AM   #56
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    Re: Anxiety ms worry

    Shaun,

    If you can, please journal your symptoms. The severity, the onset, the disappearance, etc. When we write things we employ part of our brain which is affected by stress and it can allow us to think more clearly.

    Physiologically, everything messages through our neuro pathways. If their is a glitch or a lesion, then the pathway could affect you. BUT within the neuro pathway are also glands, muscles, and organs. Anything could be firing incorrectly or secreting too little or too much of a chemical. While all of what you are experiencing is interconnected with your CNS, it does not guarantee that it is neurological. That said, there are people who are non-MS, but who benefit from neuro-psychiatric therapy. That is, your neurologist might not find anything that can be resolved, but they might refer you to a neuro-psychiatrist. There is no reason you should not get an answer. When you do get an answer, ask for the evidence. The evidence should allow you to be able to accept their diagnosis and move forward with your treatment.

    Our body's systems are interconnected, but our problems are not necessarily linked together. Allow the doctors the opportunity to sort things out.
    __________________
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    Old 12-10-2014, 10:00 AM   #57
    Shaun1978
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    I'm really sorry I bother you guys so much honestly I am but I have no where else to go atm
    I have noticed that all the symptoms I have mentioned tend to be worse as the day goes on!! Right my toes are physically twitching so bad I can see them moving! The right side of my chin feels numb but I can feel it if I touch it my right eye is painful my pinky on my right hand has severe pins and needles my right temple feels tight the back of my right calf is twitching constantly. And on top of that my head (right side) is killing me. This is enough to drive anyone mad!! But because I havnt passed out or suffered seizures!!! It will not be looked at until the 22nd. I'm at my wits end.

     
    Old 12-10-2014, 10:36 AM   #58
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    Re: Anxiety ms worry

    Shaun,

    I understand. The fact that your problems worsen as the day progresses would, to me, indicate anxiety and stress building through the day. To stop this, try to take 2 -3 breaks during the day. As you journal your symptoms, you may find specific times during the day when things worsen.

    Last year my head pain which I treat with dark chocolate started to worsen in severity. The time between my consumption and the pain melting away was increasing. My MS Specialist suggested preemptive consuming of dark chocolate because the onset was within a certain window of time. I gave this a go and it has helped. I never have my morning pain and sometimes my afternoon pain never presents at all.

    What I am suggesting is that based upon your records in your journal you might be able to determine points in your day when the problems increase. What you can do is to preemptively strike back by taking a 15 - 20 minute walk (or longer) and see if it pushes back the time of onset or worsening for you. When you exercise, your body will secrete chemicals from your brain that promote healing and a sense of euphoria and wellness. Keep this up at least until the 22nd.

    Long term, IF you have MS, keep moving and stretching so that your life will remain active and your problems minimal.
    __________________
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    Old 12-10-2014, 10:45 AM   #59
    Shaun1978
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    Thank you all for you advise and kind words! I will do my best to try and remain positive although it's honestly not easy!

    I am very anxious of Ms as my cousin was diagnosed aged 38 and only survived for 10 years he was bed ridden it really scares me!!!!

    On a bright note, thank you guys!
    God bless you all xx

    Last edited by Administrator; 12-10-2014 at 10:49 AM.

     
    Old 12-10-2014, 10:51 AM   #60
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    Re: Anxiety ms worry

    Shaun1978,

    Hyper focusing, worry, anxiety and panic attacks can cause physical symptoms to appear and can cause those physical symptoms to morph into more or worse symptoms.

    Let me share what the reality is of having Multiple Sclerosis.

    MS is an incurable chronic progressive debilitating Neurological Disease. There is nothing you can take medication wise that will "fix" this disease or it's symptoms. It is very common for those with Multiple Sclerosis to deal with symptoms on a daily basis.

    Even though there are Disease Modifying Therapies and symptom management medications there is no guarantee any of them will help.

    Many may say Multiple Sclerosis is not a death sentence but the MS community has lost quite a few to this disease some who were in their early
    20s. Complications of MS is usually the listed cause of death but if you are a close relative or friend to the person with MS you would see the end effects of the damage this disease can cause.

    You very well may be dealing with the physical effects of worry, anxiety and panic attacks. In this case medication and Psychotherapy can and does improve quality of life.

    In the case of MS, what you are experiencing symptom wise is not considered an emergency and there is nothing an ER would do except to tell you to contact your Neurologist.

    In the case of an acute relapse the only options are high dose steroids. Unfortunately, steroids can cause you to become worse before "maybe" feeling better. Sometimes steroids are only a short term solution for a long term symptom. The more steroids are used the less effective they can become. Steroids are not used to treat symptoms.

    This disease is not a piece of cake and life can be very difficult when having MS. Do many of us have good lives? Yes. However, it is usually not the life any of us would have wanted and sometimes relationships can be tested due to limitations, medical costs, and disabilities.

    Multiple Sclerosis is a life sentence and unfortunately, the disease is the one in control.

    Please look at the life you have (wife, kids, friends and extended family) and give thanks for all you have. Then --- seek the help of the Mental Health Profession.

    Take care and best wishes on your upcoming Neurology appointment. I hope that appointment will give you some peace.

     
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