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    Old 12-03-2014, 03:10 PM   #1
    mslouise
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    Really scared and need help!

    Hi everyone,

    I have quite a long, involved story that I wonít delve into completely here. But the gist of it is, my problems started with pelvic pain (endometriosis) when I was young, then I started having bladder problems. Was diagnosed with Interstitial Cystitis, but during surgery the doctor found my bladder wasnít typical of an ĎICí bladder, but still not functional. A few years later, bladder problems are worse, severe fatigue and body pains, occasional severe vertigo, constant dizziness, trouble walking normally, occasional blurred vision, difficulty talking/slurred words at times. Emotionally, Iíve always had occasional, low-grade depression, but this last year I have become extremely irritable and emotional. I was diag with Fibromyalgia about a year ago but none of the treatments have worked. Plus this doesnít explain the vertigo, vision, or bladder problems. Saw a pain/spine specialist last week who found that my leg muscles are extremely weak and not functioning like they should. I also have severe lower back, sciatic type pain and hip pain. He ordered an MRI for that, which I havenít had yet. Through some research I came across MS info, and I canít help but feel this explains exactly what I am going through. I have an appt with a Neurologist next week, who will hopefully help me figure out whats going on.

    My question to you all is in regards to what Iíve gone through the last few weeks, and if any of you have experienced something similar. One day out of the blue I had a severe sore throat, and my tonsils felt swollen. The next day I woke up and they were extremely swollen and red, and I could hardly swallow, it was agonizing. This went on for several days, and got worse and worse until I finally was able to get on antibiotics, which did help my throat/tonsils immediately. However, in the meantime, I started feeling fatigue that is unlike anything I have ever experienced in my life. I feel so sick, weak, depressed. My emotions are suddenly severely out of control. I start sobbing out of nowhere, and I mean sobbing! Or I feel this extreme anger that is not like me at all. I feel so depressed, I cannot think straight at all, I constantly have this surreal feeling. I donít know what this is or what to do about it and Iím really, REALLY scared! I have gone through a lot the last several years, but nothing that compares to this horrendous, unending feeling. Have any of you experienced something similar to this? Not necessarily pertaining to the sore throat, but to the severe fatigue, sick, emotional feeling? I am really not trying to jump to conclusions, but I feel so lost and hopeless and donít know where to turn! My upcoming appt with the Neuro is my only hope, as my other doctors will just say Oh well itís the Fibro and do nothing else to help me. Yet I know there is something more or different going on with me right now. This just isnít normal and is far worse than anything Iíve ever gone through before!

    Anyway, thank you for taking the time to read this and for any input you might have.

    Louise

     
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    Old 12-03-2014, 05:16 PM   #2
    MSJayhawk
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    Re: Really scared and need help!

    Louise,

    Welcome.

    Inevitably, most searches on Dr. Internet result in MS as a possible contender. This is due to the algorithms used in the searches as well as the inclusion of but a single symptom. MS can have a multitude of symptoms with some more common than others and not every MSer will experience the same problems or even the same severity.

    You have a lot of anxiety in the words you have shared. Anxiety can present with MS like symptoms and is one of the 400+ known MS mimicries. I am not dismissing what you have shared, but even if you have MS, it is chronic, not fatal. If you want to get to an answer, please see an MS Specialist (a neurologist whose specialty is MS). If you arrive with anxiety, the doctor may need to treat that first in order to see any non-anxiety symptoms. All your symptoms are real, but the MS Specialist is looking to eliminate known mimicries or to identify problems which are quite treatable.

    Please let not your heart be troubled. MS is not fatal and you have many tests and examinations ahead. There are NO SPECIFIC TESTS for MS. This is why MS is diagnosed through a process of eliminating that which you do not have. After all your 400+ mimicries are eliminated, then, if you meet the Revised McDonald Criteria, you could be diagnosed with MS. Finally, if you do have MS, it is NOT FATAL. Lay aside your fears.

    Most MS symptoms will not come and go, they will taper off but most last 24 + hours. If you journal your symptoms, you might allay your fears a bit more too.

    Thanks for sharing. I hope you know that you are not alone. I would hope that you get the right answers and we are he for you through that process. If you have MS, you have come to the right place too.
    __________________
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    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

     
    Old 12-04-2014, 04:39 AM   #3
    MSNik
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    Re: Really scared and need help!

    MSLouise,
    There is about a one in 400 chance you have MS and no- not one of your symptoms is something I have ever experienced in ten years of being diagnosed. HOWEVER, I had Mono when I was in my twenties. The symptoms you are describing sound exactly like what I felt then.

    MS doesnt cause infections- nor does it cause sore throats. MS is a disease of the central nervous system. Eyes, brain and spine. You didnt mention any problems related to those . The bladder problems affect less than 25% of MSers and they absolutely postively wouldnt be diagnosed in surgery. You would find a perfectly normal bladder if you looked at an MSer bladder during surgery. Its not the bladder which causes incontience in MS, its a lesion (scar) or damage to the spine, resulting in this symptom.

    I do hear the anxiety which Jayhawk also noted. And, its normal to be afraid, but you have an unusal amount of anxiety/ fear in your post. Please first of all, try to get that under control. Whatever you are dealing with, sounds like you have been dealing with it for quite some time.....so this isnt life threatening. Pain can make anyone cry! And Fibro can cause very real pain! SO, can medication for Fibro by the way. Are you under the care of a Rheumy? You may want to discuss the meds you are on and see if any of them could be causing you to feel like you are- maybe a medication tweak is in order?
    Also, a really bad infection, one serious enough to put you on antibiotics, could definately cause the fatigue you mentioned. Rule out the exhaustion as also being physically sick for now. But if you still feel that exhausted a few weeks later, you really might want to ask for blood work to rule out Mono...its actually going around again. Its not a thing of the past. My college student came home with it only 2 months ago and said that hundreds on campus are getting it.

    Please try not to worry...and take one thing at a time. Im glad you are seeing a neuro~ that should put your mind at ease and get you some of the tests youll need to rule out things...but please, no internet searches. Youll always get MS first because it is one of the most widely searched diseases in the world and thats how the symptom checker works. By pulling up the most widely searched things first. If you were to read about Mono right now, youd find many of the same symptoms..

    Best to you, please know we are here if you have questions, but I really wouldnt put alot of stock into what you read and this being MS unless the Neurologist has more reason than what you stated to believe it could be true. And, as Jayhawk stated, its a chronic disease, not a fatal illness. We will be here if you ever have to cross that bridge!

    MSNik
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    Old 12-04-2014, 11:15 AM   #4
    mslouise
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    Re: Really scared and need help!

    Thank you for your replies. I do want to clarify some things though, I did not jump to the conclusion of MS by doing internet searches. I feel that you guys jumped to the conclusion that this was the case. It was first mentioned to me because of the bladder issues I have, and the fact that my bladder does look normal (which was what they found in the surgery) yet I have pain and difficulty with my bladder function. Second, because I have blurred vision and muscle weakness and other symptoms that are non-fibro related. I have many, many symptoms related to brain/spine, some of which I already mentioned above. When I researched it further, it hit home as I have almost every symptom, and I have been through a number of other tests for pretty much any other illness, except this one. Which is why I am going to see a Neuro to start the process and rule this out.

    I was just wondering if any of you experienced any worsening symptoms or fatigue after getting sick or along with a sore throat. I understand that MS is not fatal, but yeah I'm a bit upset and anxios because I am REALLY, REALLY sick! In the meantime I have to function, I have to work and be a mom and it is really difficult, especially when you aren't sure exactly what is wrong with you. So yeah I guess I'm a little anxious about that.

    So I thought I would reach out to this board, but I apologize if I shouldn't have done so without being diagnosed first.

     
    Old 12-04-2014, 11:33 AM   #5
    MSJayhawk
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    Re: Really scared and need help!

    mslouise,

    No apologies are needed. Thank you for your clarification.

    MS Symptoms could present from an infection elsewhere. I do not have sore throat issues coinciding with my MS, but this does not mean that MS can be readily dismissed.

    Bladder issues can swing either direction with MS. Under stress my bladder frequency increases. Once I assume control and eliminate or reduce the stress, this symptom will disappear.

    Fibro and MS specialists are in different practices. I would journal those non-fibro symptoms and the fibro symptoms both. Ar rhe very least, some of the overlapping symptoms might provide some key information.

    You are on the right path to eliminate MS as a possibility. Hopefully you have something treatable. I was in Lomita in 2002 when my MS worsened. I went to UCLA to see the MS Specialist. They are well equipped, but they are also fence sitters. That is, in 2002 they were. The litigious nature of the area affects their enthusiasm to deliver bad news. You need to be pro-active to push them if their feet are dragging.

    Secondary illnesses or even your diagnosed fibro could very well affect you and even give cause to MS presenting. Fibro and MS are shared by other MSers. Personally, I rarely have any colds or infections. If I over do something, I do have MS Symptoms which will present. Much of this deals with your personal tolerance levels and your body's coping abilities.

    I hope that you get some answers. We are here for you at whatever stage you are in this walk.
    __________________
    MS diagnosed since October 3, 1982
    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

     
    Old 12-04-2014, 05:11 PM   #6
    MSNik
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    Re: Really scared and need help!

    MSlouise,
    No apologies are necessary- and yes of course you can post here without being diagnosed. I think what we were trying to say is that reading about symptoms, is always a big no-no when it comes to MS because there are 400 diseases which mimic it- and the symptoms are SO random- that just because you have symptoms listed as being MS symptoms, they are also symptoms of 200 other diseases and disorders.
    For instance, I have none of the issues you have had~ but I definately have MS. I do not have bladder issues, no sore throats, my fatigue is minimal, I have never had blurred vision (ive gone totally blind however and lost my color vision), I dont get irritable or depressed...yet I have over 100 lesions on my brain and have completely OTHER symptoms. My left hand has been numb for ten years. I have no use of my thumb on the left hand. I cant feel it. I burn myself often and forget carrying anything from the kitchen to the dining room. I also have foot drop on my left side when I am especially tired. I hide it well. And occasionally I have extreme pain which feels like Reynaulds (circulatory issue) in both my feet, but thats been ruled out and the doctors swear that its from a lesion in my brain.
    So, you can maybe see why its hard for any of us to do anything but suggest the right testing, by the right doctor.
    I pray for you that you dont have MS. But I also send you prayers for quick answers.
    PLease keep us posted on what you find out.
    MSNik
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