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    Old 12-23-2014, 10:19 AM   #1
    jc520
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    Lesions but no diagnosis

    Hi, thank you for reading. I have had all the lab work, LP, multiple MRIs. I had 1-2 non-specific bright spots on my brain MRI in 2010. I had 1-2 lesions, minimal change July 2014 but then I had 3 new lesions in Nov. 2014. So my MS Specialist cannot rule out MS and will repeat MRIs in 6 months. I have had 1 significant numbness episode which I was told was probably a mini stroke. No lasting effects. I get frequent migraines (average 1 per week), infrequent vertigo, blurry vision, sensitivity to light, bladder hesitation, numbness, heaviness, palpitations, anxiety.

    Could my lesions be from migraines only even with all the other symptoms? What else could they be from? My LP was normal, lab work was normal except for vitamin D was 31 which is low end of normal, and I do have a cyst in my thyroid and many cysts in my irises.

    It's hard to wait another 6 months.

    Thanks for any help you can give me.

     
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    Old 12-23-2014, 10:59 AM   #2
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    Re: Lesions but no diagnosis

    Hi jc520,

    You might end up with a diagnosis of MS or you might not.

    There is no symptom(s) unique to MS as other conditions, diseases, some medications, mental health issues and vitamin/mineral deficiencies can cause symptoms such as those seen in Multiple Sclerosis.

    There is also no single test, by it's self, which can definitely give a diagnosis of MS. Lesions found on MRI can have other causes and is not specific for MS. For this reason redoing MRIs every 6 months is not uncommon. If you were diagnosed with a mini-stroke that can cause lesions on MRI as can migraines.

    Anxiety can cause some of the symptoms you are experiencing, however I am not aware of anxiety causing lesions on brain MRIs.

    Have you been evaluated by a Urologist for your urinary problems? An Ophthalmologist or Neuro Ophthalmologist for your blurry vision?

    Have you had a MRI of the cervical spine? If not you might ask to have one. Multiple Sclerosis is a disease of the Central Nervous System(CNS). This includes the spinal cord, brain, and optic nerves. Lesions can and do show up anywhere within the CNS.

     
    Old 12-23-2014, 11:50 AM   #3
    jc520
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    Re: Lesions but no diagnosis

    Thanks for your reply. I did have 2 MRIs of my spine in 2014 along with the brain MRIs. The spine was clear. I have also been evaluated by a neuro-ophthamologist and a neuro-urologist. Optic nerve is normal and I do not have neurogenic bladder. She told me bladder issues are most likely caused from scarring from 2 c-sections. The neuro-ophthamologist wants to see me again in 1 year to check for MS again.

    The waiting is just hard and I am ready for some clarity on what is causing my brain lesions.

    The mini-stroke was in June. I had my second MRIs in July which didn't show much change from first MRIs in 2010. The 3 new lesions showed up between July and Nov. when I had my third MRIs.

     
    Old 12-23-2014, 02:18 PM   #4
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    Re: Lesions but no diagnosis

    jc250,

    Migraines can cause lesions, but the size of the lesions caused by migraines are usually much smaller than MS caused lesions or lesions attributable to MS. The MS Specialist will look at the lesion sizes as part of the diagnostic process. The MRI will not be able to conclusively confirm or deny MS. The diagnostic process will require the elimination of all known mimicries.

    Lesions can also be present from a childhood illness, fever, infection. The repeated MRI will usually help with the determination as the various MRIs can be compared to see if there are any changes or if any lesions are active.

    A thyroid problem can mimic MS symptoms. Theoretically, if you had thyroid problems and migraines both you would present with lesions and MS like symptoms. This is where the MS Specialist would use testing to eliminate the thyroid or to sent you to a specialist due to your thyroid. Additionally, you could have MS plus something else. Again, the MS Specialist can help sort these things out. It may seem frustrating, but cast your burden on the doctor and try not to worry.

    What you can do (you are doing well to date!!) while going through your journey is to maintain a symptom journal. This can provide some evidence which can help with your diagnosis. It may seem that a small symptom is "nothing", but it might in the long run be something.
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    Old 12-23-2014, 02:22 PM   #5
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    Re: Lesions but no diagnosis

    jc250,

    I would add "ditto" to what Snoopy shared regarding anxiety. Anxiety is a well known MS mimicry and can be a factor which accompanies any number of illnesses and chronic diseases.
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    Old 12-24-2014, 02:54 AM   #6
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    Re: Lesions but no diagnosis

    jc250-
    I want to add that the doctor who is reading your MRIs should be able to determine if the lesions they see are from migranes or from something else, like MS. They appear very different. MS lesions have a specific size, shape and placement like no other. As mentioned before, other lesions can be caused by migranes, childhood illnesses or brain trauma. There is a very definitive difference on the films.
    What type of neurologist are you seeing? If you are seeing a general neuro- you might want to bump it up to an MS specialist just to get a second opinion. If you think you are seeing a MS specialist- make sure you are. Not every doctor is qualified to diagnose MS....
    As far as the neuro-opthamologist goes, many cases of MS have started in their offices. They are pretty good about understanding MS and seeing signs- its important to take care of your eyes with a good eye exam and it sounds like you have someone taking care of that....your symptoms do say "Neurological" but MS is only one of the thousands neurological diseases which present similarily. Keep insisting on further testing, your answer is not far away.
    Happy Holidays.
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    Old 12-24-2014, 06:14 AM   #7
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    Re: Lesions but no diagnosis

    I am actually seeing an MS specialist. He's one of the best in the country. He's so nice and seems very thorough. Even he wasn't sure if the lesions were from migraines or MS or something else, which is why he wants to repeat MRI in May. He ordered blood work to check my thyroid and it came back normal. He said it's a small cyst now so we just need to measure it again on further MRIs.

    Also, I really need to take a vitamin supplement that includes Vitamin D and Omega-3 (for dry eyes). My doctor said to use Doctor's Advantage Omega Shield, but what should I use for multi-vitamin and especially Vitamin D? My chiropractor said the stuff at GNC is no good. He referred me to another chiro for supplements but I don't want to start over. I also have friends who swear by DoTerra Lifelong Vitality Packs. Has anyone heard of that or do you have any recommendations?

     
    Old 12-24-2014, 06:22 AM   #8
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    Re: Lesions but no diagnosis

    I'm also taking a daily aspirin to prevent stroke. I've read that you shouldn't be on Asprin and Omega-3 at the same time. Does anyone know more about this?

     
    Old 12-24-2014, 08:10 AM   #9
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    Re: Lesions but no diagnosis

    jc250,

    If you need to supplement with Vitamin D, you should supplement with D3. It is not expensive. Unless you have a medical need for a multivitamin, I do not think you need it. I will use vitamin C if I feel a cold or cold like symptoms. I will take 3000 - 6000 mg per day (spread throughout the day) and stop 2-3 days after the "feeling" has passed. I last did this 3 years ago. If you have MS, your immune system is running in hi-gear and, for me, I do not need to turbocharge it.

    As to your Chiropractor dispensing medical advice- they are not internal medicine doctors. Save your money because many out their sell you things you do not need. Also, if you have MS, a Chiropractor is not recommended because the manipulation of tissue and vertebrae can cause MS Symptoms to present or worsen. While this is not a guarantee, most doctors ask their MS patients to refrain from seeing both Chiropractors and Masseuses. Now, there are some Masseuses who have experience with MSers, but, again, there is a risk for symptoms to present or worsen afterwards.

    I do know that there are eye drops for dry eyes. What kind of doctor is pushing you to use that brand of Omega 3? If in doubt, seek the counsel of an ophthalmologist regarding your dry eyes.

    What doctor put you on a daily Aspirin dosage? This is the doctor with whom you should discuss the mixing of Aspirin and Omega-3. If you are getting sufficient Omega's in your diet, you may not need to supplement. Fish oil and other products containing omega-3 fatty acids may RARELY increase the risk of bleeding when combined with other medications that can also cause bleeding such as aspirin.

    If you go online you can find a list of foods rich in Omega-3 fatty acids. I know that I posted a list on these threads long ago. You can use the search bar for this site and pull up my list. Seafood is a top choice. Since you are near an area with abundant seafood, you can easily supplement your needs with seafood, certain nuts, cooking oils, certain vegetables, etc. Your doctor should also have a list of such foods and may also be able to have you see a dietitian or nutritionist who can assist you too.
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    Old 12-25-2014, 03:53 AM   #10
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    Re: Lesions but no diagnosis

    Aspirin and Omega 3 are both blood thinners. Unless you have a bleeding problem, or the risk for surgery, taking them together isnt risky~ however if you have a history of bleeding issues, it can be.
    When you are scheduled for any type of surgery, they tell you to stop BOTH for up to a week prior to surgery as the blood will not coagulate properly when on both of these...even if you were only on one of them, they would have you stop them prior to a scheduled surgery.
    GNCs products are actually rated very highly...they are made with pure ingrediants. Your doctor is sending you to someone who is selling "after market" which he probably is having bottled under his name or the name of his company- save your money. You can get vitamin D3 in any store- but dont take it in high doses without having your blood done regularly.You can OD on vitamin D3.
    MSNik
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