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Does anyone have bethlem myopathy?

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Old 04-21-2017, 01:20 AM   #1
Join Date: Apr 2017
Location: UK
Posts: 1
MrsG92 HB User
Does anyone have bethlem myopathy?

Hi, I'm new to the forum and am looking to speak with other people with bethlem myopathy. My mum, brother and I have it but it would be nice to speak to someone not so close to home!
My husband and I are currently thinking about children and it terrifies me (not the baby part). Im worried about passing on the disease and how my child could be affected - if anyone has any experience with this or bethlem in general I would love to chat!

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Old 06-17-2017, 10:25 PM   #2
Join Date: Jun 2017
Location: FLorida
Posts: 1
Michael037 HB User
Wink Re: Does anyone have bethlem myopathy?

I just got diagnosed with bethlem myopathy a few weeks ago.

Anyway, as far as your question is concerned, I inherited this from my father. I have a brother and he has it as well. My dad said that when him and my mom were looking into getting pregnant that Dr's were saying that it would be a 50/50 chance. It turned out to be 100% in me and my brothers case. I have read that if you have a really mild case of it that it could be the 50/50 situation more likely. I have decided not to have kids naturally. Me and my girl are likely interested in adopting. If you have any other questions you can ask whatever you want.


Last edited by Administrator; 06-17-2017 at 10:57 PM.

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