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Old 09-14-2008, 02:59 AM   #1
Join Date: Sep 2008
Location: Tallahassee, FL
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fishing911 HB User
Hello just joined this board


My name is James, I am almost 39 years old, and was diagnosed with Becker MD when I was 23. I had symptoms as a child (gower sign, enlarged calf muscles, etc), the symptoms were never recognized by doctors in the small town I grew up in. I went through teasing as a child because of enlarged calf muscles.... I was able to do most physical activities, but had difficulty with doing chin ups and running long distances. Was tormented by elementary school P.E. teachers who would tell me I was just "sorry" and even told my parents that. Was the victim of some mental and physical abuse by my father because of my inability to do certain physical activities. I made it through middle school and was successful at being in marching band. I didn't really start having any difficulty until I was 19 years old and was having difficulty climbing stairs. After being told by a general practitioner that I was just weak and needed to excercise more, I still didn't believe this diagnosis. I met a woman when I was 22 that was a physical therapy assistant and she noticed my gait was different and saw some of the compensating I was doing for muscle weakness. She knew something was wrong and suggested I tell this quack doctor I was going to that I wanted a referral to a neurologist. Well, it wasn't long before I was given a diagnosis of MD. Was told at first it was possibly Limb-Girdle, but further DNA testing showed it was Becker. I am still walking now, but with some difficulty. I have seemed to be really progressing in the last 3 years. I have had more falling incidents and I fell back in April 2008 and fractured the L-1 and L-4 vertebra in my back. I had 2 compression fractures. It has been a long 5 months recovering from it by letting it heal on it's own, but I am making it. My MDA neurologist recently has suggested getting a scooter or power chair to assist me in getting around better when long walks might be required, etc. As I have found wheelchairs make it easier to get around airports, power carts at stores make it nicer to shop especially if it is a large store.

I found this board while doing some searching about elevated liver enzyme levels and MD. I am glad I found it, I am hoping I will be able to converse with others, learn some things, and maybe help others who are dealing with MD. Sorry, if I rambled, but I wanted to get my story out there.

Last edited by fishing911; 09-14-2008 at 03:23 AM. Reason: wanted to add more info to my post

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Old 09-14-2008, 05:54 AM   #2
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Join Date: Mar 2003
Location: Virginia
Posts: 265
Madalot HB User
Re: Hello just joined this board

Hi James --

And welcome to the board. You'll definitely find people here that have similar difficulties.

Your childhood sounds similar to mine, although I was never abused by family or friends. I was teased a lot and had a lot of teachers say the same things to me. I was called lazy sometimes and in early adulthood, was taunted by a physical therapist once when I couldn't perform strength tests to her satisfaction.

Like you, a medical professional noticed my difficulties when I was in my mid to late 30's and HE said that I needed a full evaluation by a neurologist. Even then, I saw 2-3 different neurologists before I got my diagnosis of MD.

It's interesting what you said about elevated liver enzymes. I was diagnosed with those in my early 20's.

I look forward to getting to know you (and other new posters) as time goes on.


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