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  • CMT and Anabolic steroids?

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    Old 03-01-2011, 01:59 PM   #1
    blueredblue
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    CMT and Anabolic steroids?

    Steriods has always been a heated topic but fact of the matter is nobody has reportedly died yet with steroids being the sole cause. I'm not talking about abusing steroids but taking a few cycles with a safe amount. I've read about how typically a person with CMT can only achieve about 50% of the muscle that an average person can gain. It'd be nice while in my twenties to get in the best shape of my life so that I can play with my kids and actually pursue a career that interests me. I'm past puberty I've been the same height for the past 4 years and I am not overweight.

    One doctor which I visited suggested that I choose a different career path after I told her it's my dream to be either a PT or MD because she thinks that I physically won't be able to handle it. I took that as a direct insult and it pisses me off more than you know. I walk fine and can lift a decent amount of weight. I know as I get older my condition will get worse and I will experience more muscle atrophy throughout my body. DMD patients can be prescribed anabolic steroids and I know that is a completely different disease but they both are techinically under the same family of Muscular Dystrophy diseases. One thing that both of them have in common is muscle atrophy, obviously DMD to a much more serious degree of atrophy. I just don't understand why I could not be monitored for a year and take a few cycles of steroids. Drinking alcohol or drug use would be much more detrimental to my health in my mind. If I took steroids I'd recieve injections as I have heard that with pills you have to take more since it's not absorbed as well through the body and there is a better chance of liver damage with the pill form.

    What do you guys think?

     
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    Old 03-20-2011, 04:56 AM   #2
    alpine75
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    Re: CMT and Anabolic steroids?

    Quote:
    Originally Posted by blueredblue View Post
    Steriods has always been a heated topic but fact of the matter is nobody has reportedly died yet with steroids being the sole cause. I'm not talking about abusing steroids but taking a few cycles with a safe amount. I've read about how typically a person with CMT can only achieve about 50% of the muscle that an average person can gain. It'd be nice while in my twenties to get in the best shape of my life so that I can play with my kids and actually pursue a career that interests me. I'm past puberty I've been the same height for the past 4 years and I am not overweight.

    One doctor which I visited suggested that I choose a different career path after I told her it's my dream to be either a PT or MD because she thinks that I physically won't be able to handle it. I took that as a direct insult and it pisses me off more than you know. I walk fine and can lift a decent amount of weight. I know as I get older my condition will get worse and I will experience more muscle atrophy throughout my body. DMD patients can be prescribed anabolic steroids and I know that is a completely different disease but they both are techinically under the same family of Muscular Dystrophy diseases. One thing that both of them have in common is muscle atrophy, obviously DMD to a much more serious degree of atrophy. I just don't understand why I could not be monitored for a year and take a few cycles of steroids. Drinking alcohol or drug use would be much more detrimental to my health in my mind. If I took steroids I'd recieve injections as I have heard that with pills you have to take more since it's not absorbed as well through the body and there is a better chance of liver damage with the pill form.

    What do you guys think?

    Hi there I also have CMT.

    I think that the benefits of someone using steroids are small as compared to the damage that you would be doing to the REST of your body with taking them. Just my opinion.

    I also think you should take what the Dr told you as being realistic. I've been told the same.

    I understand you are ticked. The truth is disease progression is different for everyone. You could be walking at the age of 35 and in in a wheelchair at the age of 36. Not to mention that for some people the fatigue of the daily grind takes more out of them than just muscle weakness. Don't take what the Dr's tell you personally. They are trying to help you. Keep in mind they see people with neuromuscular conditions everyday. They are not out there to tear your heart out.

     
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    Old 03-22-2011, 08:37 AM   #3
    michigani
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    Re: CMT and Anabolic steroids?

    This is a tough one.....

    It's easy to think that steroids might help build muscle. And that the pros might outweigh the cons. But there are a few things to consider.

    There are many types of Muscular Dystrophy. Some in which the muscles are attacked by the illness and actually dissolve. In my particular type however, I simply cannot produce new muscle cells. They do not divide and reproduce. So......all the exercise or steroids in the world would never help me.

    Keep in mind that steroids have many unfavorable side affects, some physical and some emotional. Many cause depression; a situation that many MD patients have a hard enough time dealing with as it is.

    I don't mean to burst your bubble or squash any hope. Always talk to you doctor about things like this. He or she can give a lot more insight on the subject. Best of luck to you.

     
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    Old 02-06-2012, 03:14 AM   #4
    Myoshi patient
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    Re: CMT and Anabolic steroids?

    I have MD and have been on Decadurabolin 50 mg for the last 30 years. I am an RN and one of the neurologists I worked with prescribed it. It has been used for years. Check with a specialist. It doesn't build up muscle but can slow the loss of muscle. We did trials with me, and when off it I had CPK levels as high as 9600 ( a blood test that tells how much muscle was breaking down) when on it my CPK dropped down to 2300. Again I would check with a young neurologist - many of them use it and you can find studies about it.
    Myoshi patient

    Last edited by Myoshi patient; 02-06-2012 at 03:22 AM.

     
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    Old 02-08-2012, 03:15 PM   #5
    imax3d
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    Re: CMT and Anabolic steroids?

    Hello everyone
    I'm new here. Myoshi patient what was your diagnosis if you have one? It it's unbelievable you have been on Decadurabolin for 30 years. Did you have any side effects?
    I was diagnosed with LGMD 2L 2 years ago and I'm desperate to try anything that work and is relatively safe just to make my muscle stronger and get back to normal life I had just few years ago.

     
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    Old 05-30-2019, 10:11 AM   #6
    northnorth
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    Re: CMT and Anabolic steroids?

    Hi there,
    I've got CMT as well and have used steroids in the past. they worked awesome. I'm trying to get access to Oxandrolone now. I have not worked out for a few years but need to get back into it again. I'm very frustrated with the limited options we have in Canada when it comes to various medical options. I've read numerous studies on success stories in Europe and hope to find a way to try this as well.

     
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