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Facioscapulohumeral Trouble swallowing?

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Old 07-07-2011, 08:23 AM   #1
Join Date: Jan 2008
Location: Paso Robles, Ca, USA
Posts: 7
yncruzr HB Useryncruzr HB User
Cool Trouble swallowing?

Hello everyone.....I am having more and more difficulty swallowing as time passes. Choking often during meals, having to spit food out. Is anyone else having this issue? A few years back I worked with a speech therapist when this problem first started and learned many techniques to help me, but as time goes by the issue becomes more advanced and now I have to avoid certain foods.

I want to avoid having an Esophageal Dilation if I can. That is where they surgically cut the throat opening a little larger so food does not get trapped on the flap that covers the throat while we drink and chew, but opens upon swallowing. Once you have this type surgery, it cannot be reversed, and the throat stays open and you can suffer side affects like acid reflux, etc.

I have all the swallowing techniques down pat, keep a drink handy when eating, use a straw, eat slowly, small bites, little to no talking while I eat (not much fun when socializing), dip my chin when swallowing, and all the other little tricks, but my problem seems to be advancing.

Any food tips, tasty food ideas, any advice you may have is welcome. I was a Foodie before this, loved wine tasting with friends, etc. but it isn't as much fun when you choke in public, or even at home for that matter. I've even had people from other tables in a restaurant want to come to my, but I hold up my hand, finger extended, letting them know I am and will be ok in a minute. Gosh, it's good if you can laugh at yourself in these situations. Makes everyone more comfortable.

Thanks and have a wonderful day...........Linda

Last edited by yncruzr; 07-07-2011 at 08:28 AM.

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Old 10-28-2011, 08:40 PM   #2
Join Date: Oct 2011
Location: Rochester, NY USA
Posts: 2
cvanslyk HB User
Re: Trouble swallowing?

I have recently been diagnosed with OPMD. I have many of the same swallowing issues you have mentionned. I very rarely eat in front of people during the day. It is just not worth the effort if there is any time limit and it is embarassing to have to eat very slowly and not be able to carry on a conversation.

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