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Limb-girdle Help I need to know

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Old 04-10-2012, 06:11 PM   #1
Join Date: Apr 2012
Location: Randleman,NC USA
Posts: 1
DragonRose HB User
Question Help I need to know

I don't mean to pry and I know this subject can be painful but I need to know about LGMD Stage 4 and what treatments there are. I just started seeing someone that has it and I need to know about it and everything he goes through so I can be more supportive and have more knowledge on what he is going through. I feel helpless right now being in the dark, and I feel I am not doing all I can to comfort and be there for him cause I don't know what to say or do, and I feel that later on I won't know what to look for when he needs the help he needs. So if anyone out there can help me I would greatly appreciate it, and thank you for all your time.

Last edited by DragonRose; 04-10-2012 at 06:13 PM. Reason: need to replace support with supportive

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Old 04-12-2012, 10:36 AM   #2
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Join Date: May 2011
Location: Montana
Posts: 60
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Re: Help I need to know

First I would like to thank you for your concern and giving him a chance.We are just normal people with problems.Differently abled as some would say.
It would help us answer your questions if we knew a little more about his capabilities at the moment. Or we can tackle specific questions as you ask them.
We are all at diff stages here. So someone will reach out and answer.
Later Dreaman

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Old 04-13-2012, 08:55 PM   #3
Join Date: Apr 2012
Location: Des Moines,Iowa,USA
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Suzebell HB User
Re: Help I need to know

I want to commend you for seeing someone who is disabled. Let us know what it is he can do and not so we have a better idea what to tell you.

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