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Muscular Dystrophy Message Board

Diagnostic - Miyoshi Myopathy(?)

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Old 10-15-2012, 11:30 PM   #1
Join Date: Oct 2012
Location: Chatswood NSW
Posts: 1
masafumi HB User
Diagnostic - Miyoshi Myopathy(?)

Hi, it will be my first thread to this site.

Since about 2-3 years ago, i started having problem falling over, going up stairs and felt something was weird and went to a clinic in Chatswood.
I got my ex GP sent me to this other clinic in chatswood and they told me to go, neurogenetic(nerve conduction studies), blood test, another neurogenetic(muscle biopsy), and once again nerve conduction studies... been going through diagnostic for the past 3 years but still no sign of a definite diagnose... geez.
I Changed my GP to a place in Northbridge, and now Im seeing a science team in North Shore Hospital, which I will have my genetic test, blood test, MRI, Nerve Conduction Studies(againX( ).
I saw a pathologyst yesturday, and still waiting on my results.
I just need the diagnose done so I can get benifit from centerlink but I guess that won't happen till mid next year.

anyone having same problem, pls contact me so we can share information thx!

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