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regarding sleep

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Old 12-10-2012, 07:39 AM   #1
Join Date: Mar 2009
Location: Silver Spring, MD
Posts: 71
Monnie45 HB User
regarding sleep

Hi, I have myotonic dystrophy. I go to sleep quite early. In most cases I shut off my lights at about 8 PM. Most times I fall asleep fairly quickly and sometimes it takes me awhile. I am usually up about 7:30 AM giving me about 12 hours of sleep. I don't usually take naps during the day, occassionally I may fall asleep in front of the TV if I'm relaxed and not out running around but for the most part do not nap during the day. I am not taking any medication for sleep disorders. Is this unusual, how long do many people with forms of MD sleep?


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Old 12-16-2012, 08:26 AM   #2
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Join Date: Feb 2012
Location: Berkshire, UK
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imax3d HB User
Re: regarding sleep

Hi Monnie

I have a LGMD 2L I sleep normally about 10-12 hours. Trying not to have naps during a day because if I do I can't sleep at night. Normally I would go sleep between midnight and 2 am to walk up between 10am-12pm. It all depends how intensive was my day, sometimes I sleep more than 12 hours If I have a hard day. I think it's pretty much the same to healthy people but we do get tired quicker.

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