It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Myositis Message Board

renal patient with a 8000 cpk,, i need answers

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 06-10-2007, 02:09 PM   #1
Join Date: Jun 2007
Location: orlando, florida, u.s.a
Posts: 2
plzerone HB User
Talking renal patient with a 8000 cpk,, i need answers

hello every 1, i had a cpk of 8000, im down to 4200 now, i have problems with stairs and lifting. how long does it take to get back to climbing stars without using the rails? i have had myositis since 1998 and my cpk always hung around 3-4000. im currently taking 60 mg of prednisone daily, can i get any advice?

Sponsors Lightbulb
Old 06-28-2007, 12:19 AM   #2
Join Date: Mar 2007
Location: Vancouver, BC, Canada
Posts: 4
vonboo HB User
Re: renal patient with a 8000 cpk,, i need answers

I am sorry that you haven't had any replys to your question I find this board pretty quiet which is why I don't visit often.

I am afraid that I can't really offer you much in the way of advise since I am pretty new with my PM dx and I also have it very mild at the moment so I am not having the same difficulties as you.

However you might want to consider seeing a nautropath or having accupunture both of which have helped me feel better. I do wonder why your dr is not suggesting methotrexate rather than the predisone as my understanding from my dr is that predisone helps with the symptons where as methotexate can induce remission. Don't quote me but you might want to ask your dr about it.

wishing you lots of luck.
dx: Polymyositis
Also have Factor V Lieden

Last edited by moderator2; 06-28-2007 at 04:54 AM. Reason: Please do not post websites that sell books or products

Old 06-29-2007, 09:42 PM   #3
Join Date: Sep 2006
Location: Oregon
Posts: 9
tmjtrans HB User
Re: renal patient with a 8000 cpk,, i need answers

Sorry to hear you are not getting better. This can definitely be a slow process. I was diagnosed with dermatomyositis last August and could not climb stairs without a rail until at least December.

I think that each person is so different with this disease. Some people take a lot longer to recover than I have; others more quickly.

Advice: If you are not satisfied with your progress, you should discuss it with your doctor. There are not a lot of treatment regimens from what I have seen, mainly the Prednisone, Methotrexate/Imuran or equivalent, and skin medication (if you skin is affected) and some people have to have IVIG injections.

My doctor recently told me that while I am so much better I will probably never be what I was before I got this. At this point, that is okay. I can't do as much for as long as I did before, but I can climb stairs, get out of a chair, etc. We have to look at all the positives, how much better we are, how fortunate we are, etc. when we have an illness like this and pray that we will continue on a path to wellness while focusing on the positive.

Hope you continue to get better and QUICKLY!

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Renal infarct Brandy Lee Kidney Disorders 2 05-25-2008 08:16 PM
Help!!! Bi-lateral renal reflux & ureter duplication in 6 1/2 yr. girl angela5271 Children's Health 29 05-20-2008 07:27 PM
Inflammation of the Renal Pelvis nysailor Kidney Disorders 6 03-11-2008 07:59 PM
Chronic Renal Tubular Acidosis accessn12 Kidney Disorders 86 09-18-2007 06:58 AM
Renal Cell Carcinoma Just_V Cancer 7 06-15-2007 11:02 PM
Renal Artery Stenosis snowy owl Kidney Disorders 3 02-10-2006 01:23 PM
Need Renal Artery Bypass Surgery...Can Anyone Help? momof2A's Kidney Disorders 4 06-04-2005 09:18 PM
Need Renal Artery Bypass....Have Some Questions momof2A's High & Low Blood Pressure 2 05-30-2005 01:12 PM
Renal Mass sspitfire37 Kidney Disorders 1 07-29-2004 10:00 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 11:41 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!