It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Myositis Message Board

toribird /Polymyositis/inclusion body myositis

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 09-30-2008, 04:47 PM   #1
Join Date: Sep 2008
Location: Bridgeport, TX USA
Posts: 4
doris27 HB User
toribird /Polymyositis/inclusion body myositis

I have been diagnosed with inclusion body myositis - has your mom tried water therapy? They first thought I had polymyositis, but turned out it was not. They said that PM could be treated and even put into remission, but IBM is something no one knows anything about. Since no treatment has been effective, I have started water rehab, 1 hr 3 times a week for the last 2 weeks. I think I can see a little improvement in my walking.
I was falling a lot and had not been able to go up or down stairs, step off a curb, or get out of a chair without a struggle. I think I have probably had this for at least 2-3 years. See if your Mom can do some water therapy, insurances should cover it as mine do. The outlook is not good, but who know what might work - I am being optimistic and with God's help, I am going to stay mobile just as long as I can.

Last edited by doris27; 09-30-2008 at 04:48 PM.

Sponsors Lightbulb
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Inclusion Body Myositis doris27 Neuromuscular Diseases 16 08-29-2010 03:21 PM
Myositis Ronnied Myositis 4 07-02-2010 01:17 PM
inclusion body myositis casinogal Muscular Dystrophy 6 06-23-2009 06:53 AM
Polymyositis toribird97 Myositis 4 06-21-2008 03:45 AM
Polymyositis and CK levels Leper Messiah Myositis 1 11-06-2007 02:12 PM
Newly Diagnosed with Polymyositis tschreib1 Myositis 15 04-04-2007 10:01 AM
myositis, polymyositis panther881 Arthritis 0 09-01-2006 04:55 PM
polymyositis toribird97 Myositis 2 08-16-2006 01:53 PM
No polymyositis. No lupus Public_NewSense Lupus 2 08-02-2005 10:51 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 01:19 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!