It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Myositis Message Board!

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 12-14-2008, 07:56 PM   #1
Join Date: Nov 2008
Location: springfield,il
Posts: 4
shepart40 HB User!

okay tonight this is really taking its tole on me, im so drained im not sure if this medicine is working on me. i feel like my whole body is not working, my core muscles are so weak, my head even feels heavy, i dont feel strong at all in any way, my breathing changes day to day and today its not well, my face even hurts today, will i ever feel better, i dont know, i have no one to ask and get the truth. the doctors tell me to stay hopeful try to stay positive, well thats all fine but they arent the ones who have to go through this it hurts,im scared, i might even be depressed at this point. i on 40mg of preds and now 100mg of imuran. my chest burns when i takem deep breaths. my next appt isnt until the 18th of dec, i dont know if i can wait that long but i dont want to be in a hospital. my doctors are trying to get me into washington unv in st.louis they say that some of the best lung doctors are there. i wish i really knew what to exspect with this disease...i just need some reassurance here...please someone respond.........

Sponsors Lightbulb
Old 12-28-2008, 07:45 PM   #2
Senior Veteran
Glojer's Avatar
Join Date: Mar 2005
Location: St. Louis, Mo. USA
Posts: 3,695
Glojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB User

sheppart, Wash U. would be the place to go for some of the best docs in the world. That or St. Louis U. Wash U. has one of the best muscle docs in the world. Can't recall his name now, but he did the muscle biopsy on my husband to definitivly diagnose his dermatomyositis. Your local docs need to push to get you in there though, we tried to get an appt. with him and did not get beyond leaving a message, not even a call back. Our rheumy wasn't much help though. Good luck to you hang in there things do get better.


Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Struggling Addict's cry for help djnotus Addiction & Recovery 2 01-29-2009 02:52 PM
Struggling with anxiety yvette32 Anxiety 1 11-13-2008 08:24 PM
My daughter in Army, Korea struggling with depression help please hotdam Family & Friends of the Mentally Ill 5 07-04-2008 02:36 PM
Baby 6 months - struggling with teething jasminesmummy Infant Care (up to 18 months old) 4 09-28-2007 05:30 PM
Struggling for family support Annie170768 Fibromyalgia 4 02-25-2007 10:50 AM
i am struggling everyday troublex2 Bipolar Disorder 2 10-05-2006 09:25 AM
Confused and really struggling x-Princess-x Teen Health 11 09-07-2006 12:35 PM
Struggling to recover but desperatley want to Mandey Eating Disorder Recovery 4 07-21-2004 11:38 AM
New here and really struggling right now Help me please! girl-interrupted Eating Disorder Recovery 1 04-02-2003 10:37 AM
How much should I eat? Really struggling- Help please! gymkitten Exercise & Fitness 1 07-18-2002 09:54 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 08:08 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!