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looking for support groups on long Island

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Old 01-14-2009, 07:27 PM   #1
Join Date: Jan 2009
Location: bethpage, N.Y.
Posts: 9
Tlove HB User
looking for support groups on long Island

Hi! I'm a 44 year old single mom w/ 4 children diagnosed with PM in April 2008. I have been coping with this horrible and unbelievable disease that I have never heard of before I got it. It's been kind of difficult to talk to people that have this because it's so rare. Recently I decided to explore the internet to see what I would find. So far I have gotten some feedback,and hearing other peoples experiences makes me feel so not alone.Everybody is different although there are many similarities. I almost feel crazy when I explain my symptoms to my friends or family they have no comment,they ask me what the DR. says. I'm looking for support. I live on Long Island in N.Y. I would appreciate any input or experiences. Thanks, TLove

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