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Myositis Message Board

Childhood DM & Auto immune issues

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Old 02-12-2009, 08:47 PM   #1
Sage Owl
Join Date: Feb 2009
Location: Color.Springs,CO USA
Posts: 1
Sage Owl HB User
Cool Childhood DM & Auto immune issues

My 32 yr. old daughter was diagnosed with DM in 1985 at age 9. She was pronounced Cured 2 years later after prednisone treatment. We have since learned DM is auto immune. Now, at age thirty she has developed 4 auto immune diseases - hepatitis,celiac sprue (hereditary) hoshimoto's thrydroiditis & Auto immune vasculitis. She is on prednisone again, and immuran for the hep. The Rhuematologist insists the dermotomyositis has not returned. The red nail beds, the bluish tint on the eye lids, excessive hair growth , and joint and muscle pain are back. Anyone else had any experience similar? How does one find a rheumatologist that will take it serious? She has seen 2 rheumy so far. What testing should she be demanding?

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Old 03-20-2009, 08:13 AM   #2
Join Date: Mar 2009
Posts: 5
meg82x HB User
Re: Childhood DM & Auto immune issues

hi i have had polymyositis for 15yrs + and currently in remmission but still get pains and nothing shows in my bloods. I was sure it had flared up and still think likely. I have recently had an mri done which was also normal. You could request and mri. I have also seen a few rheumies and sometimes feel they dont really understand. Good luck x

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