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Old 10-22-2012, 11:45 AM   #16
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Re: polymyositis

Hi Ldymom,

I hope that your CPK level was closer to normal and that you are feeling better.

I was just diagnosed today with PM and a tentative diagnosis of RA, in addition to Raynauds. They are starting me on 60mg of Prednisone for 4 weeks then tapering down. I hope to find others that are suffering with this to chat with because it has been a long, hard, road to diagnosis and I have just as many questions as before.

My Rheumy said I must know my body very well because I am in the beginning of the PM and RA, thus the pain and weakness are not severe yet. However, I did not tell her that I have a very high tolerance for pain even to having a broken wrist and not even going to the doctor. Just thought it was very sprained, et. bruised, swollen, and painful. I have known something was wrong for 2 years at least because of the increasing fatigue, muscle weakness and breathlessness.

Anyway, I'm really glad to have a diagnosis and others to share information with. Thanks.

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Old 10-22-2012, 12:58 PM   #17
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Re: polymyositis

Shari, Could you tell us what antibiotic you were on, for how long, and is there a theory behind why this antibiotic would help myositis? I am glad you are doing so much better. Gives a bit of hope to those of us still plodding along in the thick of it.

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