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Do I have Polymositis!?!

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Old 08-04-2011, 03:38 PM   #1
Join Date: Nov 2010
Location: uk, england
Posts: 3
nannygrumps HB User
Do I have Polymositis!?!

My rheumatoligist has been giving me various test, scans, x rays, examinations for a year now, initially they treated me with predisonole for 6 months for Polymyalgia, but then decided its not that.
I have terrible weakness in my legs, if i walk any distance my legs go ueseless & heavy, very tingly, I have tender calf, thigh muscles,the front of my legs is very tender too.
also pelvic girdle muscles very tender, Muscles feel as if i have done a 10 mile run, the burn all the time. I Have a job to get out of a chair, this gets worse as day goes on, Am a bit like a penguin when i get up in a morning as my ankles & feet are so stiff.
I had to come of steroids due to adverse effects!!

I have just had femur/thigh MRI scan as can feel like tiny little lumps all over mys muscles (both legs) in thigh muscles and they are so tender!!

I am beggining to have doubts about myself, am i being daft!

Blood test showed inflamation levels extremely high for 11 months and still hi.
I have pernicious anaemia, asthma, osteo-arthritis.
Please can someone tell me i'm not going mad, because i look healthy on the outside my family are starting to think its 'all in my mind'.

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