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Old 10-15-2012, 05:17 PM   #1
Join Date: Oct 2012
Location: Pennsylvania
Posts: 1
mollyzmom HB User
Need support

I was just diagnosed with dermatomyositis 10 days ago and would appreciate hearing from anyone with experience in this dreadful disease. I am so frightened of the muscle weakness that began recently. It started with a terrible rash after I was in the sunlight and on an antibiotic called Avelox. My internist thinks the drug caused it, as she had another patient with the same results who is now in remission. I have had symptoms of this since early August and only had the muscle weakness in the past month. I am on prednisone and plaquenil and started an antibiotic for a secondary skin infection I got from using a steroid cream on my arms. I am hoping to be accepted into the program at Johns Hopkins. They are reviewing my case tomorrow. Please let me know there is hope. Thank you so much. These past two years have been horrible ones for me, watching my mother die of dementia and all the stress and now this. I really appreciate knowing someone else is out there with this.

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