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Neurofibromatosis Message Board


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Old 07-11-2009, 07:32 PM   #1
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avianna HB User

hi, my mother had neurofibromatosis but her parents or grandparents did not have it. my dad doesn't have it. it is just 2 children one male age 20 and one female age 16. my mom got it when we was after 30 years of age. I was wondering if there are any changes of any of us getting it? if there is a change og getting it will it be after 30 years we will get it? thank you

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Old 01-01-2011, 10:58 PM   #2
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HannahJane HB User
Re: neurofibromatosis

Hi, Neurofibromatosis is a condition you are born with.
Early symptoms include Cafe AuLait patches, Which look like coffe stain coloured birthmarks.
Frekles under the armpits and on the groin area.

By Puberty IF you have NF, you will more than likely have Fibromas, "skin Tags" which look like little warts, these can differ in size also, and appear anywhere on the body

You can also have visible speckles in the white of your eye
You cannot develop NF, It just seems your mother in this case was diagnosed later in life,

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