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Neurofibromatosis Type 2 Anyone?

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Old 07-08-2003, 06:51 PM   #1
Join Date: Apr 2003
Posts: 199
Question Neurofibromatosis Type 2 Anyone?

Just wanted to ask how you are dealing with it and such. I am rapisly losing my hearing----sounds like a dog barking all the time while being beamed up in the old Star Treck movies---drivin me nuts.

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Old 07-13-2003, 12:34 PM   #2
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Hi Hermit- I'm so sorry to hear you are dealing with this rare disorder. I'm sure you've researched it a lot, but here's a link about it (from many different resources including the NIH (National Institutes of Health), National Library of Medicine, Mayo Clinic etc.) that might prove useful.

Have you considered entering any clinical trials? The NIH is recruiting all the time for this disease.
[url=" romatosis+type+2&DISAMBIGUATION=true&SER VER1=server1&SERVER2=server2&START=0&END =25&MAX=500&ASPECT=0"] romatosis+type+2&DISAMBIGUATION=true&SER VER1=server1&SERVER2=server2&START=0&END =25&MAX=500&ASPECT=0[/url]

Good luck,


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