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Neurofibromatosis Message Board

family with NF1

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Old 08-19-2012, 10:43 AM   #1
Join Date: Aug 2012
Location: Oxnard, CA
Posts: 1
abcfam4 HB User
family with NF1

Hello, I have a husband that has NF1 and my two kids were born with it. My husband has the tumors on his arms and always wears longsleeves no matter how hot it is. I let him that he shouldn't care what ppl say, but he does care what ppl say. he is really haveing a hard time with this. How can he cope with this?

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Old 12-22-2012, 08:37 AM   #2
Join Date: Apr 2010
Posts: 2
Anthony204 HB User
Smile Re: family with NF1

It's hard to say I'm sorry he is struggling; I have a mild case so I only have a few bumps, and it affected me more orthopedically, But growing up kids made fun of me I tried not to show it bothered me but it did I feel people stare at me, Maybe he should talk to someone maybe his doctor (GP) can help, There is a bunch of message boards and great people he can communicate with. Inspire is a great site. I hope he is doing better,
Iím not sure of this board I googled NF the other day and found it. But I must have did before and forgot because I was already a member and forgot.

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