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    Old 09-19-2019, 11:30 AM   #16
    Blathanna77
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    Re: Possible Infection

    Quote:
    Originally Posted by MSNik View Post
    Blathana, An infection or virus can cause allot of the symptoms that you had, but infections and viruses show up in blood work... they are very easy to identify, even if they dont know which one, a broad spectrum antibiotic will usually take care of infection and an antiviral can take care of some virus's; but not all. The MRI would show if you had any sort of brain virus which you clearly do not have.

    You are asking if you should have a neurologist... no. What about a general doctor? Do you have one of those? You need someone to oversee your general health as well as your anxiety over your health... and that person can decide if you need to see a neurologist in the future. No neuro is going to do anything for you without some sort of neurological diagnosis.

    You asked if an infection could cause your symptoms that you never got better from. Its not likely.....infections run their course with or without drugs for them. My husband has never taken a pill since he was 18 years old (he is 50 now) and he just lets his body fight off things and run their course...its his choice. I much prefer to take a pill and get rid of it! But any infection will go away on its own eventually unless it is so serious that you need to be hospitalized and with the tests you have had, if it was that serious, they would have found something.

    My guess is this will show itself when it is ready...and you worrying about it is making you hyper aware...it appears to be all you are focused on... please get yourself a trusted general practitioner who can work with you to eliminate things and help you get control over your health again.
    MSNik,

    Thanks for your thoughts and advice. I have a General Practioner. I discussed the findings of the radiologists letter to me with him. He felt I should see yet another neurologist.

    I am waiting for an appointment. I have seen several who all say the same thing which is I don't have MS, yet they have no other answers either. That's why I am continuing my search for answers because I am very unwell.

    If like the radiologist said its possible infection happened at some point, then that's kind of concerning I think because of its possibility especially on my brain and what if it caused what I have for five years now. There's no rehabilitation or nothing happening regarding any sort of plan for my care.

    The radiologist said the findings should help my GP and consultant for my future care, so I hope that happens in light of the possibility of infection at some point.

    I understand I am anxious regarding what it is that hasn't changed. I am anxious to know yes, why I am ill. I definitely think the radiologist has helped to narrow down what they are seeing as possibly the cause of my symptoms. I am glad he urged the findings be discussed for my future care because regardless of no change, it's what may have happened at some point could be the answer for my illness.

    I think it's worth mentioning to my GP and neurologist about seeing an infectious disease specialist as well. Infection at some point on my brain is serious as it could have caused damage to my brain hence why I am like a zombie.

    I of course want answers and looks like they are coming. It makes sense if it's definitely not MS, infection happened so at least I know I am not a nut or over thinking. I know I didn't just wake up one day ill for nothing and continue to remain ill so for me, I know my illness and cause go hand in hand. Only thing is its taking years of questions to get an idea of what I am dealing with which is very frustrating and sometimes felt like I was losing my mind.

    I am going around in a bad way so I will ask questions. I hope MSNik that things will not worsen. I got a real bad dizzy spell when walking today. I was falling to my left and right. It lasted seconds but it was the worst one I got.

    Thanks for your help MSNIK, I appreciate it as to q.

     
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    Old 09-20-2019, 09:56 AM   #17
    Blathanna77
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    Re: Possible Infection

    Quote:
    Originally Posted by quincy View Post
    Im just going to add based in the balance and heaviness part... have you seen an ent who specialises in balance disorders. And did the head MRI include your ears?

    q
    Hi q,

    Yes I did see my ent surgeon as well to check my ears. He sent me at that time to a hearing specialist who all was normal. I did not have Mri of my ears, but did have spinal Mris.

    Those were checked by a spinal surgeon who advised surgery of my cervical spine but later was told not to proceed by my then neurologist. Also the surgeon said it probably wouldn't help much anyway for my symptoms.

    I think maybe there is nothing that can be done. Perhaps infection caused my symptoms but thankfully didn't progress further. No progression is also on one of my other reports.

    The radiologist who clarified infective as being possible to have happened at some point, I feel is the answer now but no one will say this is what happened if you know what I mean. I think that's about as close to an answer I will get.

    It's definitely not MS every neurologist confirmed that. My GP said it's interesting everyone is saying the same thing. But no other neurological conditions either. Then there's the recent letter from one of the radiologists who reported on my last scan telling me when I queried infective, that it's possible it happened at some point but impossible to know for certain.

    My guess is it happened and that's why I am ill. The thing is he also said to discuss the findings with a consultant as well as my GP for my future care, whether there is a chance it will progress or not, it looks like it they don't know and as long as no change is happening, I just must accept this without any assurances as to the certainty of what happened, and was told my prognosis was good by another neurologist who also hedged his bets on it not being MS. He didn't though say what has a good prognosis.

    One of the neurologists I saw said a process may be happening but could not say anything more as to what process on my scans was happening and again he also said it doesn't look like MS.

    What is it is just so frustrating. Now because of the radiologists letter, I don't know if that's the answer but then I think it is as well.

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    Old 09-21-2019, 03:01 AM   #18
    yayagirl
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    Re: Possible Infection

    Dear Blathanna,

    I think that for you to dwell on a past infection that you may or may not have had is confusing the doctors and distracting them from finding the true cause of your current condition.

    Yes, fear of a problem can cause more physical problems, so I can see why doctors tend to think this is likely all in your mind. On the other hand, if you can let go of the idea that you had a mysterious unsolved infection in the past, then the doctors may be able help you get back to a healthy state of being.

    The more we dwell on our ailments the more crippled up we become. That is pretty much the same for most human beings. I am a survivor from a serious accident, many years ago. The effects physically crippled me, and many of the effects will be with me the rest of my life.

    I live with almost constant physical pain that no doctor can fix, but I still do things that give me enjoyment. I choose to still do as much as I can for myself. Hon, it does not really matter why you have your suffering, you can still live your life and do things that you enjoy.

    What are your hobbies and interests ? What did you like to do before you began to have problems? Even my friends with MS work and have productive and happy lives.
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    Old 09-21-2019, 11:40 AM   #19
    quincy
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    Re: Possible Infection

    Blathana....I agree you won't find the why, but the point is there's no reasons now why you are affected except that the lesions are in the area of balance.

    Did you have balance tests done by the neurologist or ENT?

    To have you move forward while searching, I suggest physio or OT that is geared towards your balance. Even taking something like yoga and/or tai chi could be of help?
    Massage and/or accupuncture could help as well.

    Hugs,
    q
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    Old 09-23-2019, 11:20 AM   #20
    Blathanna77
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    Re: Possible Infection

    Quote:
    Originally Posted by yayagirl View Post
    Dear Blathanna,

    I think that for you to dwell on a past infection that you may or may not have had is confusing the doctors and distracting them from finding the true cause of your current condition.

    Yes, fear of a problem can cause more physical problems, so I can see why doctors tend to think this is likely all in your mind. On the other hand, if you can let go of the idea that you had a mysterious unsolved infection in the past, then the doctors may be able help you get back to a healthy state of being.

    The more we dwell on our ailments the more crippled up we become. That is pretty much the same for most human beings. I am a survivor from a serious accident, many years ago. The effects physically crippled me, and many of the effects will be with me the rest of my life.

    I live with almost constant physical pain that no doctor can fix, but I still do things that give me enjoyment. I choose to still do as much as I can for myself. Hon, it does not really matter why you have your suffering, you can still live your life and do things that you enjoy.

    What are your hobbies and interests ? What did you like to do before you began to have problems? Even my friends with MS work and have productive and happy lives.
    Thanks for your thoughts yayagirl, Sorry to hear about the accident. I am the one confused by my reports so asked the radiologists to help me understand why infective came to light on my last two reports. Five years later and infective comes along.

    The radiologist said infective is a broad term, medical jargon meaning what they see is possibly infection having occured at some point, but impossible to know for certain if this is the cause in this case. He also said the referring physician are the best people to interpret this language in the context of my medical history and current symptoms.

    I am obviously concerned that my symptoms may be down to infection. That's why I want to discuss these findings with the appropriate person who may be able to help me.

    The radiologist has urged I do that and hopes that these findings will be helpful in making decisions for my future care.

    There is now sense being made. The scenario that I am ill due to psychiatric disorders don't make sense where my symptoms and scan findings are concerned so I should not have had to go to psychiatrist's in the first place and diagnosed and treatment for somataform disorders.

    I can now stop probing and get on with my life. I have been given an answer and it makes sense this is why I became ill and never recovered.

    Infection is a serious problem on the brain anyway so if there were no signs of it on my scan, it would not be a possibility.

    I think people do better when they know what they are dealing with.

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    Old 09-23-2019, 02:08 PM   #21
    Blathanna77
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    Re: Possible Infection

    Quote:
    Originally Posted by quincy View Post
    Blathana....I agree you won't find the why, but the point is there's no reasons now why you are affected except that the lesions are in the area of balance.

    Did you have balance tests done by the neurologist or ENT?

    To have you move forward while searching, I suggest physio or OT that is geared towards your balance. Even taking something like yoga and/or tai chi could be of help?
    Massage and/or accupuncture could help as well.

    Hugs,
    q
    Hi q,

    I did have balance test such as walking heel to toe by the neurologists. Other than that the only balance test was by the physiotherapist I saw. The one who told me it will take years of rehabilitation.

    What I am now going to do is ask to be referred for rehabilitation from my neurologist and OT. The problem is because I don't have a diagnosis I don't know if he or the new neurologist I am to see will refer me.

    I would assume physiotherapists would need to know my issues and why I have those issues. Perhaps the radiologists letter would be of use to the physiotherapist.

    The lesions are in both frontal lobes most numerous on the right lobe with no spread to temporal or brainstem.

    I'd say infection is what happened. It makes sense to me. My ENT surgeon way back said a deeper look was needed but that didn't happen not for the want of trying on my part.

    Hopefully I get to discuss the radiologists letter with my last neurologist. I have asked to see him. Whether that will happen or not I wait and see.

    Thanks for your advice q, I will keep you and the others posted.

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    Old 09-23-2019, 03:16 PM   #22
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    Re: Possible Infection

    I look forward to your updates...do pursue the OT for movement and brain conditioning of those areas.

    Take good care,

    q
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    Old 09-24-2019, 08:08 AM   #23
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    Re: Possible Infection

    Sometimes possibilities need to be ruled out, that's all. DX sometimes just takes time. There is not always a way to diagnose or sort it all out.

    I have many health issues that all originally stemmed from being hit by a truck 53 years ago. So when I have symptoms I ask for therapy or pain med or whatever, about the current issues.

    We stopped wondering exactly what affected or affects what long ago. That might work better for you now, too. Clearly you are having effects from whatever has happened in the past. Sometimes all we can do is go from here and now, and it is the symptoms you have now that is causing the current problems.

    Wishing you all of the best.
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    Old 09-27-2019, 01:31 PM   #24
    Blathanna77
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    Re: Possible Infection

    Quote:
    Originally Posted by quincy View Post
    I look forward to your updates...do pursue the OT for movement and brain conditioning of those areas.

    Take good care,

    q
    Thanks q, I have asked to be referred to physiotherapy and OT, to my neurologist secretary. Unfortunately I have to wait to discuss my issues with him again is what I have been told. I even sent a copy of the radiologists letter to his secretary but no mention of any reply to my request for help only that I can discuss my issues once I see him. No appointment to see him as of yet. He is well aware of my issues and I thought it would not be a problem for him to just refer me so as I would at least be on their waiting lists.

    I did receive an appointment to see the new neurologist that my neurologist referred me to. I am due to see the new neurologist who is part of the same team in mid November. I was supposed to receive an appointment with my own neurologist for October, but no word on that. Last I seen my neurologist was last April.


    To save time, I think I should at least be referred so as to be on waiting lists. I thought the radiologists letter should have been more than enough for me to get the help I need.

    I will keep you posted. I have no appointment to see my neurologist which I was due to see in October. I probably won't get to see him until after I see his colleague in November.

    Just have wait again and again. There has never been an offer to send me for physiotherapy or occupational therapy and that's five years of seeing neurologists. Nothing. Interesting my GP told me that they are all saying the same thing that I don't have MS. I have possible infection as a cause so I don't know at all they are taking my symptoms seriously or that they should be looking for something else if it's not MS. It's of no use to me telling me they don't know why I am ill, because they haven't looked outside the box either. It's not MS so it's nothing else in neurology that's it.


    Talk soon
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    Old 09-27-2019, 02:21 PM   #25
    Blathanna77
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    Re: Possible Infection

    Quote:
    Originally Posted by yayagirl View Post
    Sometimes possibilities need to be ruled out, that's all. DX sometimes just takes time. There is not always a way to diagnose or sort it all out.

    I have many health issues that all originally stemmed from being hit by a truck 53 years ago. So when I have symptoms I ask for therapy or pain med or whatever, about the current issues.

    We stopped wondering exactly what affected or affects what long ago. That might work better for you now, too. Clearly you are having effects from whatever has happened in the past. Sometimes all we can do is go from here and now, and it is the symptoms you have now that is causing the current problems.

    Wishing you all of the best.
    yayagirl, whatever it is that happened in the past is something that happened on my brain that shouldn't. What I mean is, the awful mornings headaches I had daily in early 2014, and no feeling in body suggests to me that these headaches were not normal and something went wrong. Now be that infection or not, the fact that it's possible makes sense to me that's what happened.

    Those headaches were the beginning of my illness, I never felt right since having them. I went from perfectly normal to having all sorts of debilitating symptoms. The worst is that my head is fuzzy and drowsy all the time since the headaches and my balance and coordination are all out as well. The drowsiness is absolutely awful. I cannot understand why my head is fluy all the time and I am falling into things and can walk but with difficulties. I get more woozy and unbalanced when I walk, having to stop and go, stop and go. Little steps, watching I don't trip or fall.

    For the life of me, I cannot understand how I could go from being fine to a nightmare where this whatever it is has left me with disabilities and there's no answer. No offer of rehabilitation nothing. I can't understand that.

    They keep telling me it's not MS. That's great, but now there's possible infection so I am taking that's what did happen because it makes sense where those headaches are concerned. They were going on for weeks daily and with them, I didn't feel right.

    My headaches were diagnosed as migraine. Can Migranes leave a person in a state of drowsiness that never went away as too my balance and coordination, fluy fuzzy head five years later. I doubt it.

    Whatever it is, I do not believe it has not revealed itself in some shape or form on my scans. I mean going from five or six spots to nineteen and they have no bearing on my illness is like saying these just came out of nowhere as too my symptoms. Mystery. I can't understand it at all.

    Thanks for your thoughts yayagirl. I wish you all the best always too.

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