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    Old 09-05-2019, 11:28 AM   #1
    Blathanna77
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    Possible Infection

    Hi all again,

    Just wanted to update you guy's about the latest I have been told. I had some questions about my last Mri report and one of the radiologists who reported on my scan kindly told me that infective which is listed on my report is a broad term /medical jargon or medical language that means it is possible what they are seeing is possibly an infection that occurred at some point but impossible to say fr certain this is the cause in my case.

    Stability means no change from previous scans he also said. He urged I discuss these findings with my GP/Consultant to help with my future care.

    I don't have any consultant because I was discharged by the neurologists I have already seen. I remain very drowsy with stumbling and extreme tiredness.

    It makes sense to me if it were infection it could have caused what I have and it just stabilised itself and didn't do any further damage.

    The radiologist did say the doctor who requested the scan is the best person to interpret its findings that being a neurosurgeon who didn't really say very much other than no biopsy without a neurologist to ask for one. Biopsy never happened although I did try hard to no avail. I do wonder could it have helped to give closure on things but it's impossible to be certain infection is the cause so biopsy I don't know if it could or couldn't tell if infection did happen.

    I think this new information is helpful in that, it's possible this is why I am ill and should be under a consultant for my illness. I should be but don't know if I will be until I discuss these findings with my GP.

    If it were any of you guys, would you be concerned enough to have a consultant as part of your care? I mean if any of you were told it's possible an infection occurred at some point but impossible to know for certain and you were ill like me, would you want to be under a neurologist or just leave things as they are which is no improvement and like a zombie. There must be nothing that can be done only watch I don't know.

    I think the radiologist is trying to help me in saying to discuss the findings for my future care so that these findings may be helpful to my GP or consultant.

    Has the radiologist told me the answer I believe he has. I am so desperate to know for so long why I am in the state I am. I think this is why but then am I over reacting. All I know is I am like a drunkard as you all know but I don't think it's a mystery why. It's definitely not MS everyone told me. I don't know what happened but something definitely did happen and infection is possible so it's all just been very difficult my quest for answers. I probably will never know for certain unless something changes on my scan or my illness.

    It's all been going on so long and I am very tired of it but this possibility could be why I became ill and it makes sense so I think I should take it as being likely I picked up some sort of infection that stabilised itself.

    What do you think guy's, does it make sense infection is why I never got better. I don't know what to think. It's better than being told I lost my senses which is what was happening. I genuinely never felt my illness was anything other than neurological. A person knows when they are not well and falling around the place. For a while I felt like I was going crazy but there is another cause I always said that.

    What a five years I have put down. It's been unreal. I am no nut the radiologist letter has confirmed that to me.

     
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    Old 09-08-2019, 11:31 AM   #2
    Blathanna77
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    Concerned

    Hi

    My last post I explained that possible infection may be why I have the symptoms I do, although there is no certainty this is why I became ill.

    I am concerned about it because I never improved and remain like a drunkard, I am not sure what will happen regarding my future care or if it can worsen.

    I also don't see why I have been discharged by all neurologists given I am so unwell. It's all very confusing and frustrating. There is no way I am ill for nothing.

    I have severe drowsiness which is causing all sorts of problems for me and if infection was possible at some point, then that may well have caused damage so it makes sense to me that's all I am saying. I thought I had MS for so long because that's what I was being tested for. I don't know if infection can bring on something but if a radiologist says what they are seeing could be infection that occurred at some point, then the lesions must have features of infection.

    I don't know why though I have been diagnosed with somataform disorder when infection may have played a part . I am all over the shop and it's very difficult for me to understand my illness is a psychiatric one when there is talk of possible infection and to discuss these findings for my future care.

    Can any of you relate to my difficulties in understanding my illness is being put down to psychiatric disorders and anti psychotic medicine prescribed that made the drowsiness worse and emotionally drove me crazy as well.

    I don't know what to make of it all. I mean if infection happened, then I could very well be ill due to this more than a somataform disorder etc...

    I've had no breakthrough in the certainty of my illness except that it's psychological. Yet my scans are not normal either. What am I to think? It's just a total nightmare.

    Thanks for your thoughts.

     
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    Old 09-08-2019, 03:24 PM   #3
    Blathanna77
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    Sorry

    Hi

    Sorry if I have upset anyone or anything like that. I just wanted to update you guys on what's been happening.

    I perhaps am asking too much of you to give your thoughts.

    I understand you are not medical professionals so you can't give me any help in understanding this and that.

    I am just wondering so many things because I am being told now that infection may have happened so I am obviously concerned by that due to my symptoms and no improvement.

    Hopefully things don't get worse. Thanks to you all over the years for your help and patience with me. Same to the docs who dealt with me. I just think my illness is a neurological because I am like a drunkard and very very tired. The drowsiness is awful and my head feels achy a lot.

    I don't know what it is for sure and it's horrible whatever it is so just have to bear it and looks like nothing can be done. I am not even under a consultant anymore other than a psychiatrist and I really don't feel that's where I should be attending for my symptoms. Am I so wrong I don't know that's the problem. If I am ill this long and it is psychological, then I am truly after losing my senses. I really don't know guys what's happened to me. The radiologist telling me possible infection and care for the future has confused me yet again but also has put a doubt where it's psychological. That's what I think.

    Anyway sorry if I am being a pain.

     
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    Old 09-14-2019, 08:57 AM   #4
    quincy
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    Re: Sorry

    Hi...have you seen a rheumatologist as of yet? Or an infectious disease specialist or an internist? And you've had ct of your neck?
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    Old 09-14-2019, 01:56 PM   #5
    Titchou
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    Re: Sorry

    Part of why you haven't been answered much is that most of us are in the US and the "consultant" model is not done here. And if doctor should dismiss you, that pretty much means he fired you as a patient. Be that as it may, I would see a neurologist...of course I can pick the one I would want to see which you probably can't but that's the direction I would go.

     
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    Old 09-14-2019, 02:56 PM   #6
    Blathanna77
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    Re: Sorry

    Quote:
    Originally Posted by quincy View Post
    Hi...have you seen a rheumatologist as of yet? Or an infectious disease specialist or an internist? And you've had ct of your neck?
    q
    Hi,

    I did see a rheumatologist way back and he found nothing that he could relate my symptoms to. I did have CT of my brain, but not my neck. I am on the waiting list to see yet another neurologist my last neurologist having referred me on to a her. She is part of the neurology team where I saw my last neurologist.

    I don't know what she will make of my illness and scans, but several neurologists have found nothing they can come to a conclusion on in my case.

    The radiologist says, when I queried infective on my mri report that it is possible infection occurred at some point, but impossible to know for certain if this is the cause in my case. The findings he said should be discussed with my GP or Consultant for my future care thats all I know for now.

    I spoke to my GP on Friday and he referred to whatever it is to a tennis ball, an orange or a concrete ball, who knows is what he was saying what it is and that the way forward is to see this other neurologist whom I am waiting to see since last April, but so far no appointment yet.

    Maybe an infectious specialist may be the way to go, I don't know. Several neurologists have told me, it isn't MS. Infective is a new possibility listed following seeing a neurosurgeon who also works alongside my old neurologist and the new one I am to see, so it's all going back and forth and I asked the radiologists who reported infective on my report to help me understand the meaning of it and stability which he said means no change.

    It's all just bizarre that's all I know. I am ill and it's looking like there's no way of knowing what these abnormalities are, just that there isn't change and they can be from infection but no certainty in that either.

    I really don't know what happened to me and may never know for sure.

    Thanks for your thoughts.

     
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    Old 09-14-2019, 05:39 PM   #7
    Blathanna77
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    Re: Sorry

    Quote:
    Originally Posted by Titchou View Post
    Part of why you haven't been answered much is that most of us are in the US and the "consultant" model is not done here. And if doctor should dismiss you, that pretty much means he fired you as a patient. Be that as it may, I would see a neurologist...of course I can pick the one I would want to see which you probably can't but that's the direction I would go.
    Hi,
    Yes I understand most of you are in the US. I have seen several neurologists, none of which have any answers for my illness. I can see any neurologist if I request which I did.

    I am on the waiting list to see another neurologist for yet another opinion but it's all not going anywhere so I don't know if she will have anything further to add than all the others before her.

    If infection was possible at some point, as the radiologist said but no way of knowing for certain, it is something that could explain why I am ill should that have occurred and then stabilized. I don't know.

    All I want is to know why I am ill. There has been no improvement in my symptoms and I am like a drunkward so something caused this but no certainty as to what. If infection at some point then it may be why I am ill who knows.

    Will wait to see what the neurologist says. Infectious Diseases maybe be another avenue to explore I will ask her if she too can't come to any conclusions.

    Thanks for your thoughts

     
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