It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Neurology Message Board

  • Next stop Neurologist!

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 11-19-2003, 04:55 PM   #1
    scant5
    Veteran
    (female)
     
    scant5's Avatar
     
    Join Date: Apr 2003
    Location: NY
    Posts: 443
    scant5 HB User
    Next stop Neurologist!

    Hi Everybody:
    Well I had my appointment with the Neuro oto and after a 3 1/2 hour drive and a whole five minutes with him, he declared with no uncertainty that my problem was not inner ear related. He said that because I did not have vertigo symptoms and my other tests came back negative that it was a central problem. This Dr. was so abrupt with me, basically not taking into consideration any of my symptoms eg. tinnitus, ear fullness, ear pain. It just didn't matter. His final words to me were, "I can not do anything for you." He gave me a number of a top neurologist in Syracuse and so I am persuing this and have already taking the preliminary steps of calling this Dr. waiting for them to go through my paper work and then give me an appointment. The one thing he did say to me was that I was a tough case and that he thought I probably had MAD. However, he gave me no encouragement or was not sympathetic in any way. You would think that these Dr.s know the hell you go through no matter what the root cause and could have been quite more sensative.
    When I arrived with my husband I told him I didn't need him to come in with me and to go fill up with gas...it was meant to be because if he had been in the office with me, I think he would have punched this dr. for the way he spoke to me. You know you never really are sure what is going on and so after a day of disappointment and utter depression, I am moving on to the next phase because I know I must get my migraines under better control if this is the case. I am so much better thatn I used to be, but am always on the edge of this coming back, so like Hbep and Subs have said, keep persuing. Subs, I think you knew something else was up because you said...it will be interesting to here what the neuro oto has to say. I just thank God I am much better because I think this could have sent me into another frantic frenzy. I cried for a little bit and had a depressing evening but by the next afternoon, I just said you are doing so much better and that has to be a good sign. Hbep, I sure hope you don't feel bad in anyway for coming up with this guys name, because even though he was a complete -ss as far as his bedside manner he probably knows what he is talking about and at least is sending me to a top neurologist.
    Jen: Just curious as to what the medication is that your Dr. wanted you to try for your headaches. I can not say enough how much it means to me that you are so similar to my symptoms....it is actually comforting or else I would be a freak and freaked out. By the way, there is no way I am leaving this board no matter what my diagnosis ever comes, this is my home and my security blanket.

    all the best to my dizzy friends,
    Kathy

     
    Sponsors Lightbulb
       
    Old 11-19-2003, 07:33 PM   #2
    Anastasia
    Inactive
    (female)
     
    Join Date: May 2003
    Location: Ontario, Canada
    Posts: 465
    Anastasia HB User
    hi Kathy,

    i'm sorry to hear about your depressing day. i can relate. if these tests from the neuro oto come back negative i don't know what i'll do. iv'e already been to a neuro, i don't know where to go from here.

    i hope your still going to post in here. i can't believe he dismissed you ear pain and pressure. did he give you any other suggestions other than the neuro? did he say what they would be looking for? your one tough cream puff for not punching that guy out! i hope you get some answers soon.

    take care

    Anastasia

     
    Old 11-20-2003, 01:40 AM   #3
    hbep
    Senior Veteran
    (female)
     
    hbep's Avatar
     
    Join Date: Jan 2003
    Location: UK
    Posts: 1,480
    hbep HB Userhbep HB Userhbep HB User
    Re: Next stop Neurologist!

    Oh Scant,

    I am so sorry, the last thing you needed is another bad bedside manner doc. I got his name off this man who has a great reputation in the balance 'community' in The States, I really figured I could trust him to recommened someone good but it seems not!!! I know that Jen had contact with the same man and got a recommendation for a neuro in Australia off him, it turns out it was the doc she'd already seen and didn't like, but I'd assumed that happened because the neuro oto was in Australia and this guy can't know the Australian docs personally - I presumed he had to simply give out a name off a list for other countries, which is always going to be a risk. Unfortunately it seems the same might be true for the doc he recommended in NY. I'm so gutted about this. Although at least he's an improvement (if we can call it that) on the previous idiot who implied you were simply a mystery for whom nothing can be done. He probably does know his stuff, although this doesn't excuse his rubbish manner, why do docs feel the need to behave like this. Half the time it comes down to how people put things - I mean if he wasn't so busy being an --ss, he could have said - I feel you have MAV and there IS something I can do which is refer you on to a top neurologist who can help better than I can. Why not put it like that? Why be an --ss? MAV is treatable, you're already getting better, there is everything to be postive about.

    Anyway, looking at things positively, which is what Mr --ss should have done, If I remember correctly you are already taking notriptyline? for headaches - I guess as the only course of action for labyrinthitis is VRT and keeping active, which you are already doing, investigating the MAD angle is a really good idea, let's hope that if they maybe switch your drug dosage, or try you on another migraine drug, that it will kick this thing out the door completely. Also, as I understand it, with MAV, people do actually benefit from VRT - I know you do your own version of this - the idea is, I think, to get the headaches under control with drugs and then to back this up with VRT. So, even if it is MAV, Scant, I don't think you've been wasting your time pushing yourself, the drugs you're taking are probably helping the headaches, but maybe just not enough. The only other thing I was going to mention is that I know Wowwweee posted about her experience with MAV and getting her diagnosis, I don't know if you remember that post. If you put her name in search it's all there. If I remember correctly she's also in NY, just a different bit, I know it took her a long time to find a doc she liked, but she did eventually find a neuro oto she was very happy with. If you have any probs with the neurologist, then it might be worth talking to her and asking about the man she saw.

    Oh Scant, I hate to think of you crying after this horrible man - I'm so glad you are so much improved and he didn't throw you off your stride completely. I just don't understand why some of these docs need to be so brutal. Let's hope the neurologist you're going to see actually listened during the bedside manner section of his medical training. Oh yes, one other thing, ear pain and pressure doesn't rule out MAV as a diagnosis, I know that Wowwweee listed those as some of her symptoms, and I know MAV patients do get ear symptoms, in fact pressure in the ears is a common one. Although it was clearly remiss again of this doc not to bother to mention that you could get ear symptoms with MAV - sigh. Anyway, Scant, I really hope you're ok.

    Unfortunately I have been hit by a horrible bout of flu, been in bed for 3 days running a temp, very, very sorry for myself and regretting the day I didn't get the flu jab. I fear I am regressing on the dizzy front as I was so ill I had to shelve the VRT. On the up side, I don't think the flu has caused any further damage - I haven't experienced any new monstrous symptoms or anything, just a feeling of losing ground I've gained due to hours of lying in bed. I think this is going to be my biggest challenge so far, I know I have to pull myself up by the boot straps and just slowly get active again. As you say, Scant, whatever the problem, a grumpy doc, a set back, the only option is to persist, keep positive, keep going, look at the improvements you have made and know you can build on them. Sorry, didn't mean to hijack your post with my news.

    I'm very glad this board is here for all of us, I think it's been more help to all of us than all of the docs any of us have seen. I read a really interesting bit of research the other day, it was a study on factors which can help people recover from illness- one of the factors was how much patients believed they played a part in their own recovery - doing research, finding out info, acting on it, being persistent etc... It said that ironically these were often the type of patients docs didn't like very much.

    best,

    hbep.
    __________________
    hbep

    Last edited by hbep; 11-20-2003 at 01:47 AM.

     
    Old 11-20-2003, 02:02 AM   #4
    Jen30
    Veteran
    (female)
     
    Join Date: Jan 2003
    Location: Australia
    Posts: 381
    Jen30 HB User
    Re: Next stop Neurologist!

    Hi Kathy

    I'm so sorry to hear about your disastrous visit to the neuro-oto. As I was reading through your post however, I was itching to reply to you because the whole time I was thinking "this is not a bad thing", "this is not a bad thing.". I can't help thinking that with our identical symptoms that you too may be a head/neck case.

    You may know that my doc is a neurologist, not a neuro-oto. He just happens to be a neurologist that specialisis in balance and dizzy disorders so has studied further in the inner ear, hence he referred me for the ENG, calorics etc. This man has really been my saviour and it has been drugs that have saved me - the Amitriptylene. Did you see my post the other day in Navelis' 'just want to say hi to my friends' post? My neuro has told me to double my Ami dose as he reckons we are on the right track with the Ami. I may have mentioned this already, but I have had almost life altering improvements where my headaches are concerned. I still get them, but when I do, they're the huge ones. Those incessant, dull headaches are virtually gone. Those were the ones that used to plague me every single day. Now I can see a much stronger correlation between my dizziness and my headaches because when I am particularly dizzy, 9 times out of 10 I will have quite a bad headache. When my dizziness is really low, 9 times out of 10 I will have no headache at all. So maybe there is a reason I got dizzy after all

    So Kathy I think this is a good thing. I have accepted that my ears are fine, although my doc reckons a bout of laby might have set this all off! The fact that I'm a migraine/headache sufferer is the reason I haven't recovered properly.

    Hbep, don't feel bad. We are all going to take wrong turns on our long journeys to recovery. You have had so many words of wisdom for me over the past 10 months - I will always be eternally grateful. Sorry to hear about the flu. It seems to be global at the moment!

    Let me know what the neuro says Kathy. And try whatever drugs he suggests. My neuro told me that with migraines it's often a case of trial and error. What works for one may not work for another. The anti-migraine medication he prescribed is Sandomigraine but that is the brand name. I don't know the ingredients because I haven't collected them yet. I'm going to take the Ami for a couple more months to see if the double dose does any good.

    I'm onto 1 and a half tablets of Ami and I haven't felt too bad. Waiting for the weekend to take 2 so that I spend the weekend, rather than than week days, feeling like a zombie

    Keep us posted Kathy - and no freaking out now please!

    Cheers
    Jen

     
    Old 11-20-2003, 08:41 AM   #5
    Subs30
    Inactive
    (male)
     
    Join Date: Jan 2003
    Location: Chester Springs, PA, USA
    Posts: 1,674
    Subs30 HB UserSubs30 HB User
    Cool Re: Next stop Neurologist!

    Hi Kathy

    What a jerk!!

    But, one more step closer to finding out what it is or was that brought it on. Had to go read up on what the jerk thought it might be---think this is it:

    ..."Nearly 13% of the adult population of the United States has migraine. There is a male-female distribution difference. At all ages, about 5% of men have migraine (Stewart, 1994; Lipton et al, 2002). Women of childbearing age have a much higher prevalence, jumping up to roughly 10% at the onset of menstruation, and increasing to nearly 30% at the peak age of 35 years. At menopause, rates of migraine abruptly decline in women back to roughly 10%. The prevalence of Migraine is far higher than that of Meniere's disease, which occurs in only 0.2% of the US population (Wladislavosky-Waserman et al, 1984). In a small study of persons with Menieres disease, the prevalence of Migraine was about 50%, compared with a figure of about 25% in the non-Meniere's population (Radke et al, 2002). Other studies have shown different results however. There have also been recent studies showing that there is a higher frequency of BPPV in persons with Migraine (Ishiyama et al, 2000), and almost half of persons with BPPV onset before the age of 50 meet criteria for migraine...."

    Was surprised to find it so prevelent......and the "jerk" is correct on the Neurologist part----seems to be in their area---Christ---let hope he/she is---more on the human side with patients!!!

    Glad you are not letting this get you down and that you are doing so well in the other areas------that is what is the most important---how you feel---like I said---one more step to getting an answer---amazing---how little is known.

    One day--you will look back on all of this--and say---what an experience that was---learned a lot, met some great people, met some jerks--also, but they were in the minority--and did not amount to a hill of beans--anyway---would not want to do it again---but---what an experience---think I might be better for it!!

    Think with the tests and the input from the "jerk" the Neurologist will have the answer for you---then its time!!


     
    Old 11-20-2003, 08:43 AM   #6
    jtiegs
    Veteran
    (female)
     
    jtiegs's Avatar
     
    Join Date: Sep 2003
    Location: USA
    Posts: 381
    jtiegs HB User
    Re: Next stop Neurologist!

    I hope you all don't mind me butting in here with MY problem , but after scanning this thread it sounds like a lot of MAV stuff. I am becoming increasingly interested in MAV as at least a partial cause for my problems. (I have been diagnosed with vestibular damage, that's been established, but my doc said it's possible that MAV is playing into my problems as well).

    Initially when it was mentioned I sort of poo-pooed the whole thing since I didn't have any really good reason to think it was part of it. Yes, certain times of month seem worse, and yes, there is MAJOR family history of migraine in my family. If my siblings and I don't get it, it would be a major upset in the line. It's been in my mother's side for generations.

    However, over the last week or so I have had terrible headaches like I have never had before. They are mostly near my right eye and side of my brain, and tylenol doesn't touch them.

    What have your symptoms been? What leads you to believe you have MAV? Do you get vertigo when you have a headache? I haven't had that happen. Up until last week, headaches had not been part of my problem, but now here they are, and I am wondering if this may be the missing piece of my little dizzy puzzle. Sorry to sort of repeat myself as I already started a thread on headaches, but I didn't see this first. Maybe you all will have some thoughts.

    Thanks,
    Julianne

     
    Old 11-20-2003, 11:33 AM   #7
    willsmom
    Senior Member
     
    willsmom's Avatar
     
    Join Date: Sep 2003
    Location: Britian
    Posts: 233
    willsmom HB User
    Re: Next stop Neurologist!

    Hi Scant5 and all,

    Gee so sorry that you did not have any luck with the neuroto - I think that dont realise the pent up anxiety and worry that these problems create. Its like you think yes I am going to get the answer - but No! I guess he just forgot how this affects us so much. Pity that we could not give them a week of it and then I think they would be so much more compassionate. I think that with a bit of luck the neurologist will be better informed.

    Guys I also like Jteigs have a question about MAV.

    Ok now I have just had my 4th migraine in as many months - complete with visual aura's and nausea then the cracking headaches. I actuallly have the tale end of one today. Please could any of you who also suffer this way tell me what their symptoms are so I can compare - in terms of the dizzy stuff and how long the problems went on for. Many Thanks. Ilia xx

    Last edited by willsmom; 11-20-2003 at 11:34 AM.

     
    Old 11-20-2003, 04:53 PM   #8
    scant5
    Veteran
    (female)
     
    scant5's Avatar
     
    Join Date: Apr 2003
    Location: NY
    Posts: 443
    scant5 HB User
    Re: Next stop Neurologist!

    Hi guys:
    First let me start by saying that Hbep....don't you dare feel bad over this. He may very well be an incredible neuro oto except that he lacks tremendously what is also very important when dealing with people with balance disorders., and that is being sympathetic. I was going to write him a letter but then I just said screw it. I looked up the neuro he recommended and his name pops up on the internet numerous times. A Dr. luis Majico. He did say I could go to any neuro but he is top notch so I'm going to give him a try. I still believe I am going to get better at 100%, unfortunately today because we had torrential rains I am feeling a bit off so the weather definitely affects me.. Jen, believe it or not after much contemplating and thinking, this could also be a good thing. I have already started taking another 1/2 dosage of nort. on my own. Something did start this whole mess and it could have still been a mild case of Lab...who knows? I just know I am able to handle this incident a bit better because I am alot better. I absolutely do not feel that all my efforts I have put into this has been a waste of time. Right now I am seeing a massage therapist and having her concentrate on my neck area, as I may have stated I carry an enormous amount of tension is my neck and shoulder area. Dealing with a new job after doing the same thing for 29 years has also ben a little taxing. The people I work for have been very sympathetic and are accomodating me to make me feel comfortable. Jen I got a chuckle out of your term neck/head case because we are all definitely head cases.
    Subs, it is because of you and Hbep that I continue to persue this, even though I seem to get my share of -sses...somethings gotta click soon. I think you may have also punched the guy also Subs.
    Julianne, Anastasia and Ilia: Thank you so much for your kind words...they mean so much to me and I know you guys have some heavy duty symptoms you deal with on your own. Everybody is truly amazing on this board how everybody just puylls together for support, even when they are feeling like utter -rap themselves....very powerful. When I got in the truck and started to cry, I put my head on my husbands shoulder and he rubbed the top of my head and siad.."Babe, I just wish there was something I could do for you," I told him he already was...I am very fortunate.

    Anywho, as far as my migraines are concerned and my sumptoms, I have suffered from them for about 18 years. Before I was put on imitrex and nort. I could have a migraine for 3 days. Never did I experience vertigo, dizziness, aura, light flashes...only intense pain above one of my eyes. The sides used to vary. The only thing I would feel sometimes was really nauseous, but since I refuse to throw up I never did..just a little quirk of mine. I sometimes notice a tightening of my neck area and then I know I am headed for a migraine, so there could be a neck involvement.
    Hbep, once again don't get bummed over this, I hold you with the highest regard and admire you immensely. I did read wowwweees post yesterday again. Her symptoms are truly intense and I must persue this because if it is MAd it could come back so I need to get a control over the headaches. It's just so weird that you could have migraines for so many years and then out of the blue you come down with a balance disorder. Guess I'll just have to make my list of questions for Dr. Majios. If he gives me a hard time, I'm sending my little 4' 9" spanish mamasita after his -ss and then he's really in trouble. But I'm hoping he's going to be my ticket out of this.

    A Big cyber hug to you all, and any more questions you have, that I may have missed just let me know,

    all the best,
    Kathy

     
    Old 11-20-2003, 05:27 PM   #9
    pd50
    Member
     
    pd50's Avatar
     
    Join Date: Nov 2003
    Posts: 80
    pd50 HB User
    Re: Next stop Neurologist!

    Quote:
    Originally Posted by scant5
    Hi guys:
    First let me start by saying that Hbep....don't you dare feel bad over this. He may very well be an incredible neuro oto except that he lacks tremendously what is also very important when dealing with people with balance disorders., and that is being sympathetic. I was going to write him a letter but then I just said screw it. I looked up the neuro he recommended and his name pops up on the internet numerous times. A Dr. luis Majico. He did say I could go to any neuro but he is top notch so I'm going to give him a try. I still believe I am going to get better at 100%, unfortunately today because we had torrential rains I am feeling a bit off so the weather definitely affects me.. Jen, believe it or not after much contemplating and thinking, this could also be a good thing. I have already started taking another 1/2 dosage of nort. on my own. Something did start this whole mess and it could have still been a mild case of Lab...who knows? I just know I am able to handle this incident a bit better because I am alot better. I absolutely do not feel that all my efforts I have put into this has been a waste of time. Right now I am seeing a massage therapist and having her concentrate on my neck area, as I may have stated I carry an enormous amount of tension is my neck and shoulder area. Dealing with a new job after doing the same thing for 29 years has also ben a little taxing. The people I work for have been very sympathetic and are accomodating me to make me feel comfortable. Jen I got a chuckle out of your term neck/head case because we are all definitely head cases.
    Subs, it is because of you and Hbep that I continue to persue this, even though I seem to get my share of -sses...somethings gotta click soon. I think you may have also punched the guy also Subs.
    Julianne, Anastasia and Ilia: Thank you so much for your kind words...they mean so much to me and I know you guys have some heavy duty symptoms you deal with on your own. Everybody is truly amazing on this board how everybody just puylls together for support, even when they are feeling like utter -rap themselves....very powerful. When I got in the truck and started to cry, I put my head on my husbands shoulder and he rubbed the top of my head and siad.."Babe, I just wish there was something I could do for you," I told him he already was...I am very fortunate.

    Anywho, as far as my migraines are concerned and my sumptoms, I have suffered from them for about 18 years. Before I was put on imitrex and nort. I could have a migraine for 3 days. Never did I experience vertigo, dizziness, aura, light flashes...only intense pain above one of my eyes. The sides used to vary. The only thing I would feel sometimes was really nauseous, but since I refuse to throw up I never did..just a little quirk of mine. I sometimes notice a tightening of my neck area and then I know I am headed for a migraine, so there could be a neck involvement.
    Hbep, once again don't get bummed over this, I hold you with the highest regard and admire you immensely. I did read wowwweees post yesterday again. Her symptoms are truly intense and I must persue this because if it is MAd it could come back so I need to get a control over the headaches. It's just so weird that you could have migraines for so many years and then out of the blue you come down with a balance disorder. Guess I'll just have to make my list of questions for Dr. Majios. If he gives me a hard time, I'm sending my little 4' 9" spanish mamasita after his -ss and then he's really in trouble. But I'm hoping he's going to be my ticket out of this.

    A Big cyber hug to you all, and any more questions you have, that I may have missed just let me know,

    all the best,
    Kathy
    I am 50 but got my first .....well I didn't know what the hay it was at the time when I was around 20. It was a visual disturbance of zig zag lines that clouded a portion of my vision and then slowly moved to the out corners of my eyes. Sometimes they were red white and blue......oh how patriotic huh? lol
    Took 4 years to finally get diagnoised by a neuroligist . He called it a Mirgraine equivalant. I never got the headaches.....after the visual thing I got sore tender spots and burning in my upper back muscles. He told me that was from lack of blood during the migraine and the muscles were bruised.
    Got them a bit more frequent during my first trimester of pregnancy at age 30. After that I would get just a couple a year.......sometimes even went a bit longer. Now that I am at menopause age.......I have gotten so many strange things I cannot make heads or tales at what is happening to my body. Since I was told I had labs at the end of august I get these pressure type headaches .......my ears block.....i get ringing......i get off balance if I move fast.......not sure if it is from labs......migraine......or my allergies.......I was just put on beta blockers around a month ago......my ordeal with this inner ear thing sent me blood pressure over the roof........I use to be able to control my allergies real well......so I don't know what the hay is going on with me. I never had constant ringing like I do now.........and if I sneeze it stops for a short time.
    I bet no doctor will ever be able to tell me what is going on. Well, I guess I should not be so negative.......but I just can't get no where.

     
    Old 11-20-2003, 08:05 PM   #10
    Jen30
    Veteran
    (female)
     
    Join Date: Jan 2003
    Location: Australia
    Posts: 381
    Jen30 HB User
    Re: Next stop Neurologist!

    Kathy

    I think you are on the right track!! Now that you have told me you carry a lot of tension in your shoulders and neck I really think we could be twins!! My whole life has been about shoulder, neck and head pain. This is my headache history for those of you who asked:

    I got my first headache when I was 5 years old. I used to complain about headaches quite often so it became a way of life for me from early on. I used to get migraines with aura and very bad headaches from the age of 5 until the age of 14 when they abruptly stopped. I used to get these migraines about once a month, but they were never accompanied by nausea and vomiting. From the age of 14 to the age of 28 I did not have any migraines, but never stopped being plagued by headaches. I got headaches between 3 and 7 days a week, averaging about 4 a week with 1 or 2 of them being very severe. It felt like every day of my life was a headache. In the past 2 years they got so chronic that I had a headache at least 5 or 6 days of the week. The migraines came back suddenly just after I turned 28 (2 days before I emigrated..stress??) but they have been very mild. The aura lasts about 20 minutes and the headache that follows is not too bad. I only get 1 every 3 months or so. In September 2002 I got dizzy. Not suddenly and with no vertigo. Just dizzy. It was bad for the first 4 months, improved from month 6 - 10 and has been pretty good for the past couple of months. My improvement has been marked mainly by longer and longer 'good' spells inbetween bad spells which have always ranged from 7 to 10 days. The bad spells are also milder than they used to be. It was only when I started taking Amitriptylene which virtually eliminated the chronic, every day headaches, that I started to notice a correlation between headaches and dizziness.

    On top of all this I have tmjd. I clench my jaw every single night and no splint or mouthguard has ever been able to stop me doing this. There is a part of me that knows that if I stopped doing this, I could probably eliminate even more headaches and probably the dizziness, but how do I do this? The only thing I haven't tried is hypnosis, which I'm seriously considering doing.

    So that's my headache story. I too did not link my headaches to my dizziness. I think when you've lived with something for so long you can't imagine it changing form but in my case it did. It became headache+dizziness, and not just headaches alone. The neuro says migraines take many forms and that an aura and neausea is not necessary for a headache to be classified a migraine.

    Kathy, I'm sure you're on the right course. Let us know when your appt. is.

    Have a nice weekend everyone. And for the English people out there who will be watching the final tomorrow.... Aussie Aussie Aussie...

    Cheers
    Jenny

     
    Old 11-23-2003, 02:37 PM   #11
    TMJgirl
    Senior Member
     
    TMJgirl's Avatar
     
    Join Date: Sep 2003
    Location: Pa. USA.
    Posts: 137
    TMJgirl HB User
    Re: Next stop Neurologist!

    Did you ever look into the possiblity of TMJ dysfunction? I have that, and boy do I have ear symptoms, vertigo, brain fog....on and on. Check the health board for what people talk about there.....ear and jaw are closely related.

     
    Old 11-23-2003, 03:18 PM   #12
    scant5
    Veteran
    (female)
     
    scant5's Avatar
     
    Join Date: Apr 2003
    Location: NY
    Posts: 443
    scant5 HB User
    Re: Next stop Neurologist!

    Quote:
    Originally Posted by TMJgirl
    Did you ever look into the possiblity of TMJ dysfunction? I have that, and boy do I have ear symptoms, vertigo, brain fog....on and on. Check the health board for what people talk about there.....ear and jaw are closely related.

    TMJ girl:
    Thanks for replying. According to Hbep you don't need to have joint pain for TMJ so anything could be a possibility. I have no joint cracking, popping or anykind of pain what so ever in my jaw area. I have had each one of the Drs. I've seen felt my jaw area asked me if I experience any kind of pain and I can honestly say no. I know I don't clench my teeth at night although at this point I'm surprised I don't do that . But I will certainly bring up the subject matter as I am shipped off to the next specialist.


    all the best,
    Kathy

     
    Old 11-25-2003, 01:52 PM   #13
    Cldwv
    Senior Member
    (female)
     
    Join Date: Apr 2003
    Posts: 195
    Cldwv HB User
    Re: Next stop Neurologist!

    I was very interested to read all of your posts! I also have similar problems but my symptoms seem to have gotten worse or I'm noticing them more after my latest migrane, about 6 months ago. I have ringing ears, stiff neck and shoulders, dizziness or brain fog. I have also started to suffer from panic attacks which I'm sure is from worring and imagining all sorts of terrible things. There are a lot of similarites between us and I hope I can contribute to this conversation.

     
    Old 11-25-2003, 03:10 PM   #14
    TMJgirl
    Senior Member
     
    TMJgirl's Avatar
     
    Join Date: Sep 2003
    Location: Pa. USA.
    Posts: 137
    TMJgirl HB User
    Re: Next stop Neurologist!

    CLDwv:
    Hi, Have you checked into the TMJ? It just took me a "mere" year to find this out with all the idiot doctors and specialists I had seen. Not to mention the mega bucks I have spent. I have major anxiety due to the horrific symptoms I suffer every day. Everyone says I look great, the hair the makeup, working out, yeah right. I feel like a zombie every single day. Sometimes I feel like I am caving in and the advise of the neuromuscular dentist and my chiropractor bring me back around. My trainer does too. They all say that they are in the circle with me trying their best for me, and it is basically up to me. BUT, they dont have my clogged up, dizzy head on their shoulders. I am going to try Prozac this week. Trying to get the nerve up, and maybe after Thanksgiving or something. I tried other meds before and all they did was screw me up more. Gave me more side effects, like the dizzys and the spins. I dont need this. Sooooooooo after hours I crack a bottle of wine and have a few just to take off the edge. Then it starts all over again the next day. Burt Reynolds had TMJ so back he was a basket case for 4 years according to what I have read. I just wish he was a spokesman for the condition so that we can get in touch with him and hear his story and how he recovered. I have tried, but no can do. Hang in there, and try to have a decent holiday on Thursday. Tata.

     
    Old 12-01-2003, 08:42 AM   #15
    Mel1
    Newbie
     
    Mel1's Avatar
     
    Join Date: Dec 2003
    Posts: 6
    Mel1 HB User
    Re: Next stop Neurologist!

    I'm wondering if I am from the same area as you. I live in Ulster County, NY. Are you in the same area?

    I have just joined this group and have many of the symptoms you are all discussing. I too have been to several doctors and received no help.

    I was wondering if the neurotologist you saw was Dr. Mieteles in Westchester.. or was it someone else. I had been to Dr. David Foyt and he basically said the same thing to me... that I was hard to figure out.. and I never went back to him.

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Seeing a Neurologist Next Week... What do you think? ljd88 Neurology 2 07-29-2007 05:27 PM
    When do myoclonic jerks stop being "normal"? Minerva78 Epilepsy 0 07-28-2007 07:22 AM
    tubes tied and got pregnant dont know what next mandy. Birth Control 15 12-15-2006 11:08 PM
    Has anyone had to stop driving due to NP? Nancy1961 Neuropathy 10 09-02-2006 04:55 PM
    Stopping Namenda... can you just stop? Adidas0298 Alzheimer's Disease & Dementia 6 12-13-2005 09:31 PM
    Unsure where to go next. danaz Open to All Other Health Topics 1 05-31-2005 08:17 PM
    neck pain won't stop beach_tiglet TMJ Disorder -TemporoMandibular Joint 7 05-05-2004 07:38 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 09:41 PM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!